Today I had my first appointment with an actual therapist (not a counselor).
Even though one hour wasn't long enough to spew out everything I need to talk about, this woman completely picked up on 2 truly major points.
1) Even ONE of the stressors I have been dealing with over the last year is more than enough to warrant therapy!
2) I have been the "caregiver " for everyone in my family since I was 12 years old!
She asked me what I do for myself?
I had absolutely no answer!!
Hence therapy!! Lol
Caring for a narcissistic LO is a labor of love!
Not because they will love us back, but because we need to love ourselves!!
How do you keep caring selflessly for your selfish LO?
What do you do for yourself?
(((Hugs)))
I think the only doctor that can monitor antidepressants is a psychiatrist. He sees you often in the beginning to try medication with a trial and error approach. They are the ones that can adjust the medication.
Ill be fine. I have friends and a therapist I can talk to. It’s all just a process once your LO is no longer here.
Lea, I am so sorry for everything you are going through right now. Medicaid is a pain. I went through it with my son who has autism and I have legal guardianship. I had someone help me with the process step by step. Hoping things get easier for you. Giving both you and Needhelpwithmom a big virtual hug!!!
You certainly deserve better!
It’s so challenging to sort though so much when we are caught smack in the middle of a mess!
Your words mean a lot to me.
You got that right! Ten years is a very long time indeed. You have done an enormous amount of caring in those ten years! You absolutely did and are still doing your best. It’s truly exhausting!
You know what? I couldn’t even remember what sleeping peacefully was when I cared for my mom.
I bet that you have forgotten what a peaceful evening is like too, unless we utilize meds to help us relax to get some sleep.
Otherwise, it’s like you said, we feel the negative effects that goes along with caregiving.
I hope the storm isn’t too bad. I think about my daughter adjusting to the cold weather. Ha! She wore t-shirts and shorts here for most of the year! No more!!! Now she knows what winter really is!
Piper said: "I need help controlling my moods for the times that I have agreed to spend time with her. I really don't know what to do about it. I don't know how to explain to her that this is TOO MUCH for me, that I absolutely HATE the fact that she relies on me for 100% of her social activity." Hoooooo golly can I relate. This is *exactly* how I feel about both my mother and aunt who don't seem to even realize I have my own life, problems, issues, etc. since I'm expected to call every day and sit on the phone for at least an hour apiece listening to what they had for dinner, what's on television, how every ache and pain they have is likely cancer, in my mother's case how she's going to run out of money (and I'm never allowed to point out this wouldn't have happened had she saved instead of spending.) No matter how much attention I provide it's never enough.
In my own case what I did was just use my mother giving away $1000 of my things as an excuse to quit talking to her. I've also backed way off my aunt. I'm sure they're confused and in a way it's not fair, but I 100% KNOW I cannot call either and tell her how exhausted I am of listening to all her problems without triggering drama of the very highest proportion and I just cannot right now. Not on top of a year of covid taking away friends/fun and adding terror since we're in a very high case count area, on top of spouse with no job. I'm really not sure how I'll ease back into this because I doubt I can get away with not talking to them forever. All I know is I MUST have a break.
I know you're in a different situation in that your mother has dementia, but seriously - you have GOT to hire a caretaker or hustle up on putting her in AL or my guess is one of these days you're just going to snap like I did. In my own case I know my mother has other people she can call to whine to and I need her to start calling them, which is partly how I have the luxury of very low contact.
I have to wonder if your mom won't fight like hell at first but then once she gets to AL, at least somewhat enjoy it? There'll be people around 24/7 and others her age. Believe me I know how they get when they like things just as they are but this sounds so unfair to you.
Chris said "Sadly many of the effects of having an NM are there for life, even with the plans in place. I guess we have to learn to live with these effects, long after they have left this life or we are distanced from these people." Yeah, lately I've found myself melancholy over what life might have been if I hadn't had mother so unhealthily attached to me. Might have been able to go to a better college, have kids... I'm on another message board for children of NPDs and soooo many of us said having children of our own just seemed like insurmountable work on top of the demands of the parent, which was definitely the case for me too.
NHWM "Sometimes when things change, we can’t ever go back to the way it was or what we thought it was before. It’s not about holding a grudge. It’s not about forgiveness, none of that."
I don't think I can go back to un-realizing my mother likely has NPD. It hurts because it means I have to give up on the idea of us having a truly close relationship, but it just isn't safe with NPD - their wiring makes them manipulate others, even and especially their children. I don't need Mom wheedling me into spending my own retirement savings on her.
The sour moods come with the territory b/c there's always something to fend off with them; some attack against our character or something we're 'not doing', according to them, making us feel 'less than' and as if we aren't doing enough. My DD just called and said there's a huge BLIZZARD coming here this weekend and my first thought wasn't 'do we have food in the house?' but OH GOODIE WE CAN"T GO HAVE A WINDOW VISIT AT THE MC ON SUNDAY!
Right now I'm jumping thru the roof every time the phone rings. I hate that; it's the heightened startle reflex that goes along with anxiety. I've had SO MANY calls from the MC lately about all the falls my mother's had that I'm always expecting another.
I'm glad to have you all here, it does help me. Love you too, NHWM. Hugs to all
You do have to feel comfortable with the doctor or PA.
It does sound like it was too strong.
We have all had to have meds adjusted to suit our needs. Yes, some meds only need modifications, others just don’t serve the purpose.
Whew! I hear your exhaustion. I hope that you get a chance to catch a breath soon.
I understand how you feel when you speak of a ‘sour mood’ when interacting with your mom.
I went through that also. My therapist recognized so many of my emotions.
It was such a relief to have my feelings validated by him.
I had the ‘sour mood’ that you describe, depression, anxiety, hopelessness, frustration and down right anger at times because I felt trapped in a never ending vicious cycle.
My word, look at the never ending cycle you have experienced. It continues on and on.
How many times have we wanted to scream, “Stop this roller coaster. I want to get off!”
For many of us that happens every single day that we have to interact with our parents or crappy siblings, right?
Don’t give any credence to anyone that doesn’t empathize with your feelings.
Well, I see you as a strong woman. I had to learn to become strong and I learned a lot of that from you.
There was a time that I put myself dead last. My therapist would give me homework to place myself in the forefront and give myself permission to live for me. That was a tough lesson for me to learn.
I guess that I was stupid or brainwashed at the time, or simply blinded by the agonizing pain that we as caregivers go through.
Please know that we are all here for you, no matter what you feel, no matter where you are on this long and difficult road.
We love you. Take care.
I've been reading the last few days of posts here, and keep thinking, "That's me! That's me!".
Thank you all for your wisdom.
And, praying for us all. :-)
Colleen
I can't do Xanax during the day; knocks me right on my butt. I can take it if I can't sleep, it's great. I am thinking about getting back on Paxil though..........past few days I've been doing well though, so we'll see. DH is in good spirits, thank God, so that helps ME.
I am hiring someone to help me through the Medicaid process; got a referral from the SNF; the gal sends off the app (I fill it out with her help) and monitors the progress, etc. The fee is around $1400 which is fine with me. Mom has $$$ left to private pay the SNF until Medicaid kicks in. She has to quarantine in a private room for 14 days and then she's let loose. I can just imagine the carrying on that will be forthcoming when I let her know the move is happening w/i the next few months. By summer the latest, I think. This is out of my hands now, so sorry/not sorry............I have no choice.
While we can't really 'afford' a hotel for DH's DD and her 3 kids, we can't afford to have them wreaking havoc over at our house MORE, you know? I'd rather shell out a few hundred bucks and call it a day than deal with those out of control kids all night long. My DH doesn't have the word NO in his vocabulary, unfortunately, esp where his 5 kids are concerned. No regard to ME and my feelings on the subject either.
I use my 'living in the moment' exercise frequently and it DOES help. Sometimes I feel overwhelmed with ALL that's going on and have to step back and remember to breathe. We get to meet our new grandson on Sunday and I can't wait! He's so sweet and happy............my son said he's doing great & for that I am grateful.
Sending YOU a big hug EP, too, b/c I know what you are going thru with your NM is no joke at ALL. I remember the days when my folks lived in IL about 5 miles away and going over there for dinner. I had to grit my teeth every time, but fortunately dad was alive then and he was a dear dear man who softened the experience of dealing with my NM.
I know you are worried about your DH, and I don't blame you. Can I ask- why the colonoscopy? Did they biopsy the liver tumor to determine if it is primary liver cancer? You will learn a lot in the coming weeks, and I am praying that DH is a candidate for surgical removal. There is also cryo-therapy for liver tumors that they may talk about.
I know you already know this, but please take any and all measures to take care of yourself as you and DH navigate this liver stuff. Maybe going on Paxil would be a good idea? Xanax would be good to have on hand too. Whatever works for you.
I'm sorry you might also be dealing with a Medicaid application. Can you get a social worker to help with that? It's good that you already found a place, maybe a social worker from that place could help? I agree with you that your mom is ready for skilled nursing. The constant falls are just too much and her dementia is getting worse. BTW- does your mom have enough funds left to pay for the skilled nursing for a few months while the social workers get her Medicaid ready?
Keep us posted Lea. You have a lot going on. Try not to worry yourself into a frenzy over the "what if" thoughts. I know easier said than done, but remember your "living in the moment" exercise? It really helps, I've been doing it since you posted about it. Also, there are many possibilities and many with positive outcomes for DH. When my dad had liver work (twice) over 20 years ago I was amazed at what they were able to do and he had multiple diffuse tumors. The liver regenerates, so recovery is definitely possible.
Sending you a huge hug.
Thanks for listening, your supportive voice on this forum is something I value very much. Same for the others. When I come here it's like I've run from an insane asylum into a safe space.
The time is getting ripe for me to bring up hiring a companion as much as I dread the convo. I had been waiting for covid to get better, and it slowly is getting better here in Florida. My mom gets her second dose on March 15th. So, the companion conversation needs to happen and soon. This latest event might even be a good lead in - as I explain to her the reason I wanted to leave and left is because I am BURNED OUT being her ONLY socialization. These are hard conversations for me to have. I always end up triggered and exhausted. Last time she started saying I talked her into moving here. Total lunacy, untrue, and a bizarre re-write of history. Sigh.
Wouldn't it be wonderful if we could trade bodies for a short time so that somebody else could have the emotionally difficult conversations we need to have with our NMs..... It kind of amuses me to think about it. They would be all emotionally detached and unable to be triggered, so they could stay firm and say all the right things. I'd try to recruit Barb Brooklyn, she could calmly, sanely and politely lay it out for my mom. My mom would probably pass out from shock 😂
Elaine, I don't think you can judge all anti-depressants from taking one tablet. I took Paxil for 5 years and it was life changing/life saving for me from an anxiety standpoint. I may need to go back on it (or something else) again now, we'll see. Sometimes it's a matter of trying different meds before you find the right one; don't give up, and don't let your mother WIN by contaminating your MEMORIES now that she's gone. Get this matter taken care of so you can make the rest of your life the BEST of your life.
My NM has fallen 8x in the last 10 days or so at her Memory Care, due to mass confusion from the Cymbalta which she has been taking now for about 2 months. She doesn't even realize she's fallen and immediately forgets it ever happened! She can't remember she's unable to walk or stand up, so she tries, and down she goes. They're now weaning her OFF of the Cymbalta once again, so her pain will go back up once again and so will her horrible moods. I am having a phone conference with the ED of the MC on Thursday afternoon; they may want her to leave, IDK. It may be time FOR her to leave in any event, and to go into Skilled Nursing on Medicaid. I feel like she needs a higher level of care at this point and a shower where they can WHEEL her into for more safety, etc. I called the SNF and they do have availability, and their dining room is open and so is activities, etc. She'll have a roommate which is a con since she hates women, but oh well. What I DO NOT need right now is the added brain damage of applying for Medicaid but I may have no other choice.
DH is going to the surgeon a week from Weds for a consult to see if surgery is even an option for removal of the tumor in his liver. I'll go with him, naturally. Then he has an endoscopy/colonoscopy on the 31st. They're trying to see if he's even a candidate for a liver transplant at this point. He has other health issues (heart disease) that may prevent him from getting ANY surgeries, we don't know.
Meanwhile, his one daughter with 3 small kids wants to come to visit in 2 weeks for 3-4 days! UGH. We only have 1 guest bedroom and I DO NOT want them sleeping here. It's too much. We'll speak to his other son who lives here about putting them up at his house (at night) or we will pay for a hotel for a few nights. We have to tak
I've somehow gotten myself stuck in this mode of seeing her every other day for dinner and social activity- which consists of me, DH and her sitting around while she drones on about HERSELF. (this is in addition to carting her around for groceries and appointments) It's just never pleasant. Being in her company has never been pleasant, and now with the dementia it's so much worse. So the plan was for us to go to her place for dinner yesterday. This is one of her ways of getting us over there- she buys things that are suited to cooking for more than one person- like a roast. Then we HAVE to come over, because she has this roast. It can feel like manipulation, plus when over there I do half the work anyway, but then my husband will say- she is just trying to reciprocate because I cook 80% of the time.
I just turned sour after about an hour over there. I didn't want to be there, and she was taking forever with the food wanting more to hang out, talk (HER), have drinks, and make the event longer than I wanted. By sour I mean I wasn't saying much and then I tried to move the food along and said I was tired. So then she copped an attitude, and started rushing the food and made some snide remark about me wanting to leave and "she's always tired". I barely ate and then did leave, even before my DH. He came home shortly after and was frustrated because he felt she didn't do anything to bring on my sour mood. His suggestion was that I talk to my mother, basically about her adjusting her expectations of me.
I need help controlling my moods for the times that I have agreed to spend time with her. I really don't know what to do about it. I don't know how to explain to her that this is TOO MUCH for me, that I absolutely HATE the fact that she relies on me for 100% of her social activity.
I've tried to address this in the past and she blows smoke telling me she is going to meet people, at the pool, this summer. This is NEVER going to happen. Our pool here is not full of seniors. It's mostly guests with kids and small groups doing their own thing. So.... she is not going to meet friends at the pool. I know this. She just throws out something trying to appease me, but it doesn't because I know that sad truth. My mom's dementia is advanced enough that she can't make new friends anymore outside of a controlled environment where she is the sole focus. Or maybe she could make friends with other people with dementia? I don't know. I feel so stuck and I really don't know what to do about it.
Shell, we are in a similar boat, but my mom is physically healthy enough to live many years. Doesn't seem like your mom is, and I get how you feel about it. One of the cruel things about dementia is the misery drags on and on, for the person with dementia, and those trying to care for them. If the pancreatic cancer is back your mom may find peace soon. And so will you.
NAILED IT!!! Lol
Elaine,
When it comes to antidepressants, the side effects lessen after a week or so.
If therapy is working, that's awesome!
Pelar,
Kudos!!! Set those boundaries!!
NM behaviours: rewriting the story about a particular situation, walking out when confronted rather than facing the music, hysterical behaviour when not getting their own way, blaming someone else for their own behaviour/shortcomings, blaming someone else when they cannot have their own way, lack of respect for others and their possessions, lack of motherly love....
The effect on the victim: anxiety, stress, depression, feeling one is deficient in some way, feeling one is to blame, feelings of isolation, loneliness, anger, disgust, confusion, replaying the numerous bad scenarios, feeling “empty”, lack of mental “peace”...
The most effective solutions: setting boundaries and sticking to those boundaries about what you will and won’t accept in terms of behaviour, refusing to provide an audience for the bad behaviour and outbursts, refusing to become emotionally involved, distancing yourself from the NM physically, mentally and emotionally, to the level required for your own good health.
I am summarising this as a mantra for my own mental health: identifying the problems, recognising and noting the effects they are having, and trying to put a plan in place to deal with them.
Sadly many of the effects of having an NM are there for life, even with the plans in place. I guess we have to learn to live with these effects, long after they have left this life or we are distanced from these people.
I talked to my therapist during that time and she helped me without meds.
My other doctor retired and I have been seeing a physician assistant. If I ever want to go back on meds again I will contact a psychiatrist.
I didn’t put too much trust in the physician assistant.
I have crappy memories of my mom too. I only allow a certain amount of time in my head for it. Otherwise, I will become too depressed. It is horrible to remember the unpleasant times.
I only call my mom once or twice a month. It’s all that I can handle. Plus she can barely hear. I don’t stay on the phone long.
Sometimes when things change, we can’t ever go back to the way it was or what we thought it was before.
It’s not about holding a grudge. It’s not about forgiveness, none of that.
I don’t believe in grudges. I do forgive. I don’t think we ever forget the pain though.
Did you tell the doctor how those meds made you feel?
My doctor had me try Lexapro. I took one pill and I felt like it was erasing my whole mind, my whole thinking. I felt like I didn’t have my brain anymore. I went off it and haven’t taken anything since.
I call it selective memory, just like some people have selected hearing too!
It's so sad that you have that memory instead of something pleasant!
I'm so sorry that what should have been a happy memory, has turned out to be something you look back on with disdain!
It shouldn't have been that way for us! Yet for myself, I feel it's made me stronger! Except when it comes to my Mother.
Oh the irony!
Of course when she would retell the story she said she was appalled that dads father yelled at her because he never yelled at anyone!!! Well duh!!! She started it!!!! She leaves that part out.
One thanksgiving we were going to my aunt and uncles house and she forgot to bring some pictures with her. OMG!!! She ranted and raved the whole time that my father had RUSHED her out of the house!!!
Another time both of my parents were going out to dinner with both of HER brothers and their wives. 2 hours before it’s time to go she decides she’s not going. So my father went by himself to see HER family!!!!
It's always someone else's fault!
Right??
If a narcissist feels cornered, the only recourse is to run!
After causing a huge stink of course! Lol
Yes, my NM has VaD dementia! However, I still push back and keep boundaries, which is why my life is h3ll!! If she doesn't like my boundary or I do or say something she doesn't like then it is "Hello Ms Nasty" comes out. She will take something of mine, say something nasty, move things around on me, and she has even tighten the collar on my cat and it almost choked him "twice"!
The more I push her away and set boundaries the more crap she does!!
However, I suspect that her pancreatic cancer is back and probably has been for a few yrs. Of course, she has stop seeing her Dr. She has refused palliative care and no longer take meds, so there is no way to know for sure. She is showing many of the symptoms of pancreatic carcinoma including she smells foul even after a shower. She had a Whipple done in 2012 when she was Dx with pancreatic carcinoma, but refused chemo and radiation!
Maybe this is awful to say or write, but it brings me great peace to think she might just be out of my life forever! I just want her to go to a Hospic facility and be done with her!! If that makes me a bad person then so be it, God knows all I hear from her is how awful I am. How I am a bad person. How I am mean and evil I am!!! Yup, that's me...been taking care of her since I was 9 and cleaning up her messes. Took her to rehab when I was 15 yrs old for her alcoholism and again when I was 38 yrs for her drug use. Gave her thousands of dollars over my life time. Saved her house and health insurance in 2018. Countless times of seeing her through surgery, heart attacks, and illnesses and much much more, but I am the bad person! Never got a thank you or a hug just countless of all forms of abuse! She was never there for me when I needed advice, or help...NOPE!! Instead she dragged my name through the mud and made everyone believe that I was the problem!!!
I too am envy of those who got their NM into a MC or something, and like you, not in a bad way, just that one last stop! At least not living under the same roof!
Hellebore,
Like you, I knew something was off, but never could put my finger on it either!!
I couldn't get through this without all of you. It is comforting to know I am not alone, nor is this all in my head (not crazy), and that not only is this a real thing, but it has a name!! Thank you from the bottom of my heart! 💞💕💜
I remember one thanksgiving years ago my moms refused to go to my aunt and uncles house. They were HER family members. The rest of us went anyway and she just called up yelling and screaming and ranting and raving about my father.
My Aunt finally had to take the phone off the hook so we could eat in peace.
I have been watching a Netflix documentary on Jeffrey Epstein.
The forensic psychologist determined he was a narcissist.
I watched as the prosecutor intentionally provoked him. The result was Jeffrey attempting to get up and walk out of a deposition!!
How many of you have had your NM get up walk out of a family gathering after being confronted?
Watching this totally resonated with me!! I can't even count the number of times my NM has left a gathering in a huff!