I am taking care of mom part time and today was peaceful but I get so worn out listening to her talk about herself and her needs all day.. I was telling myself she doesn't love me. I felt like an object in the room. It's hard for me to separate the job of caregiving and the nature of someone having lots of needs/wants and having a mother who is self absorbed. She is always telling me she loves me but I don't believe her because I feel like I'm an audience to her and that's why she loves me, for what I do for her....does she really love me? I'm SO CONFUSED. At times she is an absolute terror and goes into rages where she accuses me of really mean things and I have to walk on eggshells afraid I'll say something she'll twist around to shame me with. I don't understand how these narcissists can be jeckyl hyde like this? Anyone get what I'm saying? I read of a technique where you don't react to the person with any emotion....detach emotionally.
AgingCare pages have described dementias--I think there's a page dealing with it, as a single subject. Have not searched it within AgingCare lately, but it must still be there, since so many have to deal with it.
It's pretty tricky, especially in earlier stages, for those closest to the elder in question.....it's kinda like a frog in a pot of water...start it out cool, the frog is fine...bringing it slowly boil, the frog gets cooked without realizing it's happening.
You can also Google "dementia signs and symptoms"
One site at the top of that list:
http://www.helpguide.org/elder/alzheimers_dementias_types.htm
Gives some comparatives between normal aging and dementia.
Even knowing the signs & symptoms, it's real tricky to figure when "normal aging" becomes "dementia"--even professionals miss it--sometimes even when the elder has progressed significantly
--perhaps related to an elder being very good at "show-timing", as many are, until signs and symptoms get really advanced.
If one has any reason to believe, from their elder's behaviors, that OTHER mental ills have been an issue during the elder's lifetime, it might be a good idea to get evaluations sooner than later...
Many elders [and non-elders!] manage to get through life hiding some fairly dysfunctional mental ills--families just think they are having "moods", or "bad days", or, "that's just how things are", etc.
Fears run high related to mental ills; treatments for them used to be pretty horrible, back when our elders were trying to get by; they often avoided diagnosis at all costs, to avoid those horrific treatments
CUE: they might have avoided seeing ANY doctor for anything, ever, unless it was pretty cut-and-dried, like a broken bone--fearing a Doc who saw them enough, might witness the mental instability and diagnose it--whole 'nuther bunch of things to fear!
Things are much better these days.
Some symptoms of some mental ills, alcoholism, etc., may resemble dementias:
if someone has not been properly, fully diagnosed, they could end up being inappropriately medicated or treated.
IF other mental ills or substance use are going on, treating those might decrease need for other meds that fail to work or cause adverse effects, since meds focused on dementias, may, or not, be proper for certain mental ills or substance use.
In any case, putting legal documents and finances together, in advance of need, is very good idea.
I LOVE your solution!
Sure wish I'd thot of something like that when Mom was under our roof!
As for not taking it personally?
Wish I could--it would have been easier, if my siblings had not suckered for Mom's lies....they all live at distance; Mom would call them and lie like a rug.
Got them believing her tripe.
She managed to cut me from her herd, entirely, as none of them will carry a sane conversation with me, going on for years now. But they all act like it's me choosing to not communicate--and that's what they tell people. Not one of them admits they are the ones refusing to communicate.
I almost hope she now does that to the one who moved her in with them--but I'd feel bad to have that done to anyone.
It near destroyed me; I wouldn't want Mom doing that to anyone further...yet, revenge might feel just a little sweet, if she does.
Kegdaughter--
PLEASE avoid feeling guilty about your Mom's condition---she got the dog, not you.
SHE chooses to only feed it and fail to do proper hygiene for it.
When someone exhibits narcissistic traits, there are usually other mental ills that go along with that, all of which largely have gone undiagnosed and untreated for years--or their whole lifetimes..
Do yourself a favor: avoid letting an elder who behaves that way live with you under your roof--those behaviors get far worse, and bad for your health!
You CAN call the health department about filth in the house
--or else, have officers do a "well-check" on her at her house: when you call 911 to request that, describe that you are "...unsafe living conditions...concerned house has filth that might cause disease or injury to the elder living there..."
Well-checks can be asked for, even weekly, if the elder might be in really bad conditions.
BTW--you would call 911 in the area your Mom lives in, not yours [unless it's the same].
Well-checks can help officials see when an elder needs more help than they can get staying home, and can help assess if they really need to be in a facility--and it removes that task from family members who may have been shunned or treated badly by the elder, or, in case the elder refuses help or counsel from family members.
It helps them get the help they need, sooner than later, and might prevent them becoming ill or injured from living in unsafe conditions that might not be able to be helped otherwise, by family members.
One day the Home Health Care nurse asked me to walk her to her car. In the driveway she told me that I needed to stop taking the junk my mother said so personally. She said the health care workers can tell when someone is being mistreated, and it was clear my mother wasn't. The house was cleaner than it had been in YEARS (they had been coming to the house a lot for about five years before we took over); my mother and father were clean, bathed, hair washed, clean clothes, etc. They were obviously getting enough to eat, getting their meds. The ambulance wasn't having to come to the house once or twice a week like it used to. She said that when old people - especially those with dementia - only sit around the house all day and have nothing to do but ruminate about themselves, they blow everything up out of proportion and look to have a pity party when any outsider comes to the house. She gave me a hug and said, "Don't take it personally!"
The next time a Home Health Care worker came by, my mother started in with the "poor me, I'm so abused..." nonsense. I walked back into the room and very calmly said, "Mom, if you think that your daughters are not providing an adequate level of care for you, then I will go out this afternoon and find a skilled nursing facility where you can get 24/7 care. We can probably have you moved there by the end of the week. Sounds to me like this is what you'd prefer. OK?" Then I just stood there and looked at her. (Sending the non-verbal message, "The ball is in your court, Mom!") She sat and stared at me and then looked down and said, "No, of course not. I wasn't talking about YOU!" So I calmly said, "Well, the next time we hear you accuse us of mistreating you, that is EXACTLY what we will do. Understand, young lady?"
Since then she's been pretty good, but I still use the threat when she starts getting out of line. And I think she knows I'd do it.
If you have not done so, see if you can have a geriatric psychiatrist (that was out for me because of his paranoia) or a neurologist with a psychiatric specialty, see him. I got him to the neurologist by telling him the neurologist could help lessen the pain (arthritis) in his spine (not a lie, part of the brain is part of the spine).
The other helpful thing I stumbled on when looking up quetiapine, was a site on behavior modification for dementia patients.
I can't find the site that had the specifics, for what to do, but they were things like avert eye contact, turn your head or back on them, walk out of the room if they persist, leave the house, try bribes with favorite eg cookies, try distracting them with another topic or activity, but here are some other sites that address behavior modification in dementia patients.
Dad left mom once, but she refused to give him a divorce, so he moved back in.
she was never there for me. I was beaten up in my own house by an ex boyfriend in my own bedroom. my mother was in the kitchen cooking. she didn't stop it, and when I asked her why she said "you must of deserved it". My brother used to beat me up, same answer. I have had numerous medical problems from this abuse for years.
I moved out of the house at 19 because i couldn't take it anymore.
Imagine you asking your mom for a ride to work, only to have her drive away and leave you to hitchhike to work. there are other things, but you get the picture here.
I was belittled in school because she never took the time to do my hair, or help with my clothes, nothing.
I got sick at twelve and she waited until I lost 40 pounds before she called the doctor. i had an acute appendicitus and had to have emergency surgery. My father made her call the doctor.
I got married and she never ever helped with my son (i always had to get a baby sitter) i handed her my son when we first came home from the hospital. That lasted 5 minutes and she handed him back.
Now would you say my mother really loves me? doesn't fit into her plan.
there were five of us kids. my brother died in an accident, and my two brothers moved out of state. my sister (who was the last child) is the only one who got any attention. she lives over an hour away from my parents. Guess who lives the closest? you guessed it, me.
For the last 15 years they both expect us (my sister and i) to come down and take care of the house, the yard, and them. I have helped them when ever I could. there was never a thank you, atta girl, nothing.
I have tried to get them into an assisted living place, and guess who won't go? yep, MOM.
I have been trying unsuccessfully to get both my parents out of the big house they don't need, or take care of, or clean, or repair. the smell and filth is enough to make you gag. They will not leave. So now after trying for so long, I have given up. I have cut them off completely. They both forgot my birthday and my sons (phone call would of been enough, but never happened) so I just stopped showing up.
I am sure the NEXT emergency i will get a phone call, I always do. My sister says it's too far to travel, and everyone else is too far away. So once again, I am the person who has to take care of them.
Mom has fallen way too many times. Dad has bladder control problems. Assisted living would be perfect, but they will not listen to me, or any of us kids. So they can stay there and when one gets hurt and ends up in a nursing home, they will expect me to take over. Not a chance, unless it is my father. Mom can sit there in her home that she had to stay in and rot. sorry if this sounds horrible to most people, but I am sure they really DO have a loving mother, not like mine.
Most of you must think I am a horrible person, I am not. I just let them do what they want and I have just distanced myself because the frustration was so bad it was making me sick.
I do have however a good story to tell here,
Ruth my Fiances mom, sold her house (she knew she could no longer take care of it, and she didn't want us to do it) and moved into an apartment. that was fine except the apartment owner was abusing all the older people (over charging them for normal repairs, elevator not working, ect) so I suggested that she move in with us (my fiance and I bought this rancher together, and my son was already living with us) she paid to have her apartment built, new heating cooling (to handle two different settings) and she is such a joy to have around (like the mother I never had) so you see there is a happy ending here. I have gained a real mom, and closed the door on the one who was making me sick. It may not be for everyone, but it works for me.
thanks for letting me get this out. I feel much better now
me: I have to drive to 2 hours each way to tend to your grandson who has a high fever.
mom: Is it warm enough to wear a dress to dancing instead of pants? Everyone says I look good in the good in the blue dress.
me: I'll be back in a few hours.
mom: How am I going to get to dancing?
What seemed to work for us was we'd commiserate for a bit, then get tired of it! So we'd find a way to redirect the conversation to another topic, sometimes a little abruptly. For example, "That must be really hard. Say, did you watch the baseball game last night?" Or "By the way, your garden is looking beautiful!" or "That sweater is a wonderful color for you." Whatever might be an interesting topic for her that could get her focus. This did two things: it focused her on something pleasant other than herself & her medical problems, and it helped us keep from getting really frustrated with her and making the situation worse by snarking at her. We knew that she did love us all, despite evidence showing she only cared about herself & her own concerns. We knew she had a very tough upbringing, and we were all so grateful for her being a wonderful stepmom to my mom and raising her after her mother left.
My grandmother developed Alzheimer's and was thankfully mostly unaware when she was painfully dying of pancreatic cancer. It may be strange for some to hear me say this, but her personality changed for the better with the onset of dementia (she no longer remembered to constantly complain), and we were able to have very nice conversations with her, for once. Even if she couldn't remember them later. Now we can look back, shake our heads and laugh about her foibles, and remember the good times: how she was an amazing cook, how she was a competitive card shark, how much she loved grandpa, and how much she loved us.
I just need to try NOT to talk about it with folks that don't understand narcissist personality & Dementia, or understand how sometimes personality traits are magnified magnified with the onset of Dementia.
Ordering this book TODAY on Amazon.
When she starts with her bad behavior towards me I go o my room and tell her I'm working. It's a "white lie" but I will wind up insane if I don't protect myself.
Google narcissistic mothers and you will know that you are not alone.
I am now realizing that her behavior had a huge impact on my growing up probably why I moved away to attend college to the coast. Unfortunately, after 30 years I had to return home (well not had to but she is my mother) to care for her. I literally never came home except once a hear for the holidays (which historically difficult for me due to her narcissistic ways I endured growing up in a dysfunctional home.
Her behavior is now more pronounced due to her Dementia and I often feel like I can't take it and want to just walk away from the situation.
The guilt trips she tries to lay on me.
Her manipulative behavior.
Her twisting things to get her friends and sister to "side" with her, making me look like I'm the bad one.
The list goes on and on.
I still care for her the best I can, just had to detach and not interact with her. I literally avoid conversations with her, because as caregivers, we HAVE to take care of ourselves. Our lives cannot stop because of our situation. This is something I am trying to do, but it is extremely difficult due to the complicated situation.
My mother thinks she's fine lived independently up until this past fall when she was hospitalized with an acute UTI and TIA that brought on the Dementia (that was already there I think, she was "masking/hiding" it or trying to. A common thing with some folks that suffer from Dementia who were highly independent.
Don't take your mother's remarks personally. It's not YOU.
My mother is a "my way is the right and only way" person also. Plus she's a retired teacher so she comes off as a "know it all" (comments my friends told me when meeting her).
I feel horrible at times because I just want this to be over. I am trying to find a balance between caregiving and having a life. She refuses to let anyone (home aid etc. ) come to assist because she thinks she's fine.
Her Dr's have told my brother and I that she cannot live alone. We have to escort her to the Dr's appointments etc. Once my brother dropped her off and went to get gas and the nurse called me on my cell phone asking why once of us were not with her.
She constantly calls her Dr to ask if she can start driving again (he says no and thank God her license expired when she was in the hospital).
Understanding their personality traits is certainly a good thing, and I too feel better after reading your post.
We certainly have tough jobs.
Take care
You are a wonderful person, performing an extremely difficult task and taking abuse for basically loving your parent enough to be there for them. Treat yourself to therapy, it is a blessing!