I need some advice! My mom has lived with my husband and myself for the last 2 1/2 years. We both agreed to have her come live with us since she was so unhappy in the nursing home. How to I tell her I don't want her to live with us anymore? It would mean a nursing home for her and that would probably just about kill her. She DID NOT adjust well the last time she was in a nursing home. Any suggestions would be appreciated.
You don't say anything about yourself - are YOU in danger of injury if you tried to pick up an adult who's fallen? Are YOU becoming ill due to stress because of this situation? Often caregivers suffer MORE stress than the patient/elder. You can't sacrifice your own health and mental stability to continue to care for an aging parent. You must approach this from a safety stand point - is there a danger to you or your parent? Does she need more help than you can provide? If the answer to ANY of these is yes, then moving her is justified. They begin to act like kids and will make you feel guilty because you want to move them; their intent is not malicious they just want to be "home".
My mother (88) lived with my brother - they were both fine with the arrangement - until my brother had a slight stroke a few months ago. I wanted to move mom for about 1 year since arthritis began getting bad and she needed help preparing meals. The stroke was the last straw...I acted quickly to move mom - and she protested long and hard, she's still protesting - BUT, my brother was getting older (63) and deserved his freedom as well.
It was tough but I approached it from the stand point of safety for mom and my brother - I wanted them BOTH to be safe. How can they argue? My brother has since realized a great sense of relief to be free to leave for a few hours and not rush home to ensure Mom's okay. Also - Mom is more alert and feeling better because she gets good food and her medications on a regular basis.
I feel lots of guilt because I don't have mom live with me and I hear her complaints about food, helpers, lack of company, bad view, anything.... I've shed a lot of tears but after she asks me the same thing for the 3rd time in the same conversation, I realize that she can't take care of herself. You've got to look for similar things - be realistic - and tell yourself over and over what her physical limitations are; it will help you remember that full time care is best.
Good luck
So the rallying cry BOUNDARIES is working. Last night she was actually civil to me and I stayed cool and she asked me why I was being so distant and quiet. I explained that I didn't like being yelled at and she swore she never yelled at me (insert eye rolling here). I didn't argue I let it go. I will blame it on the dementia that no one says she has but that I see everyday. I let her know that I was going out of town next weekend and I would not board the dog if she was uncomfortable with being there alone and she said yes please leave the dog
(100 lbs german shepherd) VICTORY is mine. She didn't yell scream or make me feel like I was imposing or mistreating her in any way. Unbeknowst to her there will be a STREAM of people checking on her and one friend's older grandchild will be staying the night. This church friend will convince her that this is all her idea of course. Thank GOD for her church friends who love her in spite of herself. Its funny now all the holy hell that was raised when I told her we were going out of town and she didn't have to stay to take care of the dog she could go to a friend's house ( I was following her instructions) Now its all like no big deal after I suffered for a week.
I am an only child, husband and I moved my parents in with us over a year ago. We've been killing ourselves ever since. I Finally decided to go away for the weekend (haven't had a day "off" in over 3 months) b/c I am on the verge of going over the edge.
Mom......the hypo all my life who now has some real life health issues. She has never been happy, and she treats me badly, is positively ungrateful. Both she and Dad have been in the hospital in the past 3 months and in rehab after.
Today, we went to the drs b/c of her "severe" pain (she fell again, two days ago) and her pt thought I should get her checked out. I know the MO, but will Not have them think I am neglecting anything. Oh yes:) I am also a nurse, but work only enough to keep my license. So away we went, and I even tried to get her admitted. No luck. Home health services will increase. She is happy being in bed and catered to. I won't...I bought frozen meals (she is PICKY, diabetic on loads of insulin)...fridge is full. She and Dad can manage.
Me, I think I won't come home. Husband will be here working on an outdoor project. He and I will go away in two weeks, God willing that Mom won't "get sick" as she often does. If she doesn't, she will go off on me at some point in the future, telling me how she does everything here she did at her house. Really? I cook, clean, drive, appts, shop, fill rx's........on it goes. I'm EXHAUSTED, was diagnosed with cancer in Dec. I had surgery, came home to have to clean floors etc.
I'm going to welcome this, will be back when I am not so exhasuted:) Bless each one of you!
I believe in Tough Love! I used it in the classroom and I practice it with mom. She really tries to manipulate me sometimes, but she just doesn't get anywhere. It really helps us to coexist much better. One thing I have learned; if mom can do it by herself, I stand back. It gives her a sense of accomplishment and it is one thing less that I have to do for her. I try to put myself in her shoes, but it doesn't always work. I do yell sometimes, but usually wait until I am out of her apartment so that she can't hear me! You are right. It is time to heal. Bless you.
Linda
God bless you!!! I know what you are going through. My MIL use to admit herself to the 6th floor of the local hospital ( psych ward) and thought she was the sane one! My poor sister in law put up with her for years. She is a saint and I think you are too. I am not as nice as you; I would have turned off my phone!!!!!!!!!!!!!!!! Good luck and we are thinking of you.
Linda
I think her hypochondriac ways accelerated shortly after my dad had his stroke (she was no longer the princess). She started coughing up "phlegm" quite frequently. At first it was a few office visits to verify no pneumonia, etc but as time passed, she got so bad, she started calling doctors, having friends bring her to specialists (without my knowing it) and she would call me and start clearing her throat on the phone, say it was just the weather, not to worry about her, etc. My response was always "Okay, I won't". She was floored.
Well about a year ago, she was so ticked off she wasn't getting my attention, she started clearing her throat (now years later) that it was actually sore. She called me one day on my cell phone screaming (now supposedly she said she couldn't breathe) and that I needed to leave work to come home to rush her to the hospital because she couldn't breathe. I was 20-30 minutes away. I said mom I'll call 911 they'll be right there. She started screaming at me again, while clearing her throat and demanding that she needed me there now.
What you also have to understand is that for YEARS, she's been manipulating, using my friends, etc to get me to quit my job for her - she's proven physically healthy. I told her I could not and if she couldn't breathe, 911 should be called. She got so pissed off at me she slammed down the phone. I called 911, gave them the info, and they rushed to the house.
The police called me to say that no one was answering the door and did they have my permission to enter the house and asked for a way in. I told them yes and explained how to enter. They said they would call me right back.
A minute later I get a call from the police that no one was in the home. I mean this is within a 5 minute period in talking to my mother to police being in the home. They said there were indications that she and my father had left the home. I was baffled.
I knew mom wanted to go to a certain hospital, so I ended up calling emergency. Get this.... she called dad's sister who lives 10 houses down from my parents. She hasn't talked to them in YEARS. Had them bring her to the emergency room. Now I didn't find this out until I located her at the ER. My uncle answers the phone and I told him not to let her know he was talking to me. He said something which my mom "heard" conveniently and she started screaming at the top of her lungs. I asked my uncle if things were okay, he was calm, explained. I asked if I needed to be there to get my dad (dad can't be left alone). He told me to take my time. Mom is still screaming in the background for me to get there NOW... and again, supposedly she can't breathe!
When I finally got to the hospital, mom started playing games. Her dear (con-artist friends) were there, etc.... and encouraging mom's behavior. There's a long story in between just at the hospital, but anyway, she complained about her throat and "phlegm" so much, the hospital tracked mom's medical history down (cried wolf for many years) and mom's complaints were still being heard by the staff so they ran tests on her.
Mom had been telling the hospital how she had lung or throat cancer from the pain, etc.... so they scoped her put her under anesthesia, ran esophagus tests, etc. They never found a bleeping thing! She didn't believe them.
Eventually some things happened that a psychiatrist came in and mom was admitted to geriatric psych. Not once but twice (once after she was admitted to AL, which 2nd time anti-psychotic meds started helping her).
Suffice to say, what I'm saying to each of those with a hypochondriac parent, be sure, eliminate any questions, after that... turn a deaf ear. Ask for God's help because you are going to need it. If you don't believe in God, then buy a damn good set of ear plugs!
The beautiful part to this story is my mother did this crying wolf a second time. Only now she was ripping into me when she called me demanding I get to the house. I did go, because I happened to be home. When I arrived at their house, I held open the front door and said, "Let's go, I'm here." She went screaming with her two bags of phlegm she collected and ran into the house that she wasn't going with me. She ended up yelling to my husband, "HOW CAN YOU LIVE WITH A WOMAN LIKE HER???" My husband was floored at this behavior. He had never seen it. My father started throwing me out and yelling at me because I was upsetting mom. I asked mom again, "I'm here if you want to go to the hospital now is the time." (I'd had a LOT of practice being calm by this time)
She yelled at me again and told me she was going to call my other aunt (91 years old, still driving), who was 20+ minutes away to come get her. I said, "Fine." I held open the door, did the Vanna White for her to walk out, she refused. I told my husband its time to go... she's acting like a lunatic in the house, and we leave.
I get a call later she's at the hospital. I'm like good for her. I only went to take care of dad (whole other story), and then again she was admitted to geriatric psych.
Pray, pray some more and then breathe while praying again for peace. There is no easy way. But you have to realize when you have done all you can. You have to define when a parent has cried wolf long enough. For those that are looking to figure out an answer... you can't. She is not declared incompetent. She had free will to choose. I was her POA so hospital would call me to verify info, and basically the rest was left to her. Her choice, her doing, her tantrum, her way, her admit to geriatric psych. I didn't have to do a thing other than deal with phone calls, paperwork (annoying tasks).
Do what you can.... we're here to listen. Add this story of being a hypochondriac on top of all mom's other issues you don't have time for, and you see where this is going. :)
Anymore she just waits till she walks by me and moans and groans so I know she's in pain, I am in pain to I use naproxen, night time pain OTC pills, pain relief creams and if it doesn't work I either don't get much sleep or I just keep on trucking. I find it very hard to know I came from that body. When my father was alive it was almost a contest to see who could hurt the worst. I used to tell them can ya find another game to play I'm tired of this one. LOL my father would laugh and say wait until you're my age I'd say I don't have to wait I'm already there thats what I get for working my ass off all my life while the rest of you stayed home and protected the possesions funny they didn't do a good job at that either. Later.
Just got home from a great day out with my best friend and her daughter. Sure mom will be upset some, but there is nothing that I can do about it. We seem to be in the same boat rowing in circles. "Stay strong and remember the boundaries!!". Maybe I will have that tattooed on my arm!!!!! Have a great day, and thanks for all your kind words and prayers.
Linda
I appreciate the concern. As my husband says to people, spend one week with her then come talk to us.
Mom is a pill seeker. All I will telll you mom has been chipper since my MILs death because she feels she's the center of everyone's universe again. She is on other anti-psychotics, they just removed this one, and I have no doubt they did it properly.
It is a shame that elderabuse is not given the recognition that it deserves. That goes for emotional, physical and financial. People who would never speak cruelly to a child think nothing of treating their elders with disrespect although many of them have less capacity than a child.
Narcissistic behavior takes so long to identify, but man, once its realized, there is such freedom in setting the boundaries and getting on with life guilt free! Good for you lovingdaughter!
I love the fact my mom wants this and wants that, then when I do things promptly, she gets herself so sick with anxiety because I take action too quickly for her she throws a temper tantrum to get my dad all upset. That's a recent stunt for her in the last few years. Gotta love the angles... so nasty behavior, I disappear. THANK GOD she still hasn't "remembered" my phone number. She's trying to piece things together to get answers, but I won't fill in the blanks :) She can make a list for when I'm there every week. She used to call me up to 10x a day prior to the assisted living.
I love my boundaries!! Sometimes challenging to enforce, but definitely worth the effort. :)
Linda
It is hard to realize that saying "no" is okay to do. It is difficult, many times to deal with the reactions that others have to us setting boundaries. Why? Because they are not used to us saying no. Again, it is okay.
Lisaanne, don't feel guilty for setting that boundary. She's sick because she's lived a life of getting what she wants. You put the responsibility of choice on her and she did not like that. She wanted someone to blame. She had none. Good for you!
Austin.... good for you! Blessings come in all forms and caller ID is that blessing for you! He's probably going to rage. He's not used to it, but all survive the word "no". My own mother doesn't like it, but she found out the other day that her own daughter (me) won't talk to her about my daily life. She found out I went out of town on vacation by my big-mouth aunt. I think she was surprised I didn't tell her. I didn't want the "dramatics" that go along with leaving out of town as we had in the past.
Find the little things to set the boundaries. Eventually the large boundaries will not seem so tough anymore. God bless you all!
Carol
thanks for all your support! I love this place!
Carol
Boundaries!!!!!!!! That seems to be my battle cry. Set them and stick to them. Don't be abused by the one you are caring for. It works for me. I just hired more help so that I have the summer to enjoy. If you don't honor yourself, no one else will! Good luck
linda
Carol
Carol