I'm tired of cooking/preparing 3 meals a day. It's just the two of us but boy oh boy can that woman eat!! She stays slimish, I get fattish. It's bad enough I do everything here much less start making her one thing and me the other. At times I feel guilty when I buy her fast food cuz of the nutritional value....not to mention I eat it too.
My whine moment today is about my own intolerances or "ew" issues that I just can't tolerate, but have to, because I'm the only one caring for mom.
I have a serious issue touching other people's feet. Not little baby "I'm gonna num num num kiss kiss kiss those itty bitty piggies" feet. We're talking about adult feet - specifically MOM'S feet. Cutting her nails, putting her socks & shoes on, etc - it's enough to send me into a shuddering fit, and I have to wash my hands when I'm done, because her feet just gross me out. I know it's a little nuts, but I just can't deal with them.
Today, it's Mom's cricket-like habit of rubbing her feet and legs together when she's laying down and the sound of her feet/legs rubbing together that's getting to me. It's like nails on a chalkboard to me. I know when she hasn't taken her pills, because her legs are so restless that she can't lay still - which was the case today. She laid down before taking the pills, and I think she was trying to play a symphony on her feet/legs.
I work from home, and Mom refuses to sleep anywhere but the living room, which is where my desk is. If I try to work from another room, she gets upset and says she's lonely. I'm seriously considering moving my desk into the kitchen, at least, so I can have some semblance of a professional working environment -one without someone snoring, farting, and rubbing her legs together while I'm trying to work....(sigh).
The challenges we face...I tell ya.....
My sense of humor is a bit twisted but it has saved me from the demons that torture others.
The one thing that does bother me though is the lack of support for caregivers.For instance, an elderly person living with family is unable (in my state) to take advantage of home health care services.In order to have help with bathing or other they must be bedridden or living on their own.
If the elderly person is reasonably good health they will not be admitted to hospital even if they have the flu. (my mom is 94 and doc said he could not "justify" admitting her under the current law.
As she suffers from dementia and my hubby and I are in our 60's we were advised to look into placement for her.Her income is very low(factory worker all her life) no assets, but decent insurance.What is open to her are shared room accommodations in a setting that caters to a population with all disabilities.
I've worked in these settings and it's less than ideal (to say nothing of understaffing).
Many caregivers are struck.There is no way out.There is no cavalry coming to share the burden.Our parents and grandparents are forced to move in with us at a time of life when most are struggling with their own health issues, financial problems or lack of training available only through books or coarses that few can afford.
Most are physically and mentally unprepared for what they are facing.The worse of which is facing your own mortality.Seeing every day what you might become or face in the not so distant future. A truly frightening thought for a youth driven society.
Aging Care is one of the few sites that offers practical hands on experience advice and support.It's a least a place to feel you belong when all desert you.
Thank you all for being here for me, for us and for those that follow us.
Soooo..the neighbors hear screams then maniacal laughter.
In addition to this Mother keeps her room dark. As soon as I open the curtains, she closes them. All winter she has lived like a bat. She's fair skinned anyway and now extremely pale from lack of sun. Lately, she has decided to sit with our dog on the porch. Great!! I thought... but....she goes into her own world, doesn't move for an hour and looks dead. It suddenly occurred to me that my neighbors may think I've done the old girl in and prop her up from time to time in order to collect her check(again maniacal laughter).
Last whine: Mother thinks she can still clean herself after toileting.Sometimes her efforts are good, other times not so much.A few days ago the stink that followed her drove my dog into the "I didn't do it" position.When I mentioned it to mom she became very indignant and despite the fact that my hubby was within a few feet of her,she dropped her pants and protective underwear to prove she was clean.Again I laughed.I couldn't stop, it made the situation worse.
When she dropped her drawers not only was she covered with poop skids but bits of toilet paper from crack to thighs..AND...she had a long piece of toilet paper hanging from her bottom like a tail. It wasn't funny but I couldn't stop laughing.Hubby running from the room didn't help either. Then to prove she had problems she made me show her in a mirror. It was hand mirror and not easily positioned to give her a look. As she moved the paper tail swayed from side to side. I am sure I'm going to h*ll for falling back onto her bed laughing uncontrollably. Sometimes I think of these episodes in bed before passing out and start giggling. My hubby looks at me funny too lately. Maybe I'm just paranoid or losing it completely? Maybe I lost my mind and didn't know it?
It can happen. It happened to poor old mother didn't it? Oh well, nite, nite fellow
inmates.
So....Mom's birthday is tomorrow which is also Mother's Day. I've been putting together this semi big deal as this is probably the last she'll recognize. Bought her a lovely outfit, did her hair, some make-up....she looks damn good for 79 BUT it's been non-stop complain complain complain about everything....I'm so tired right now I don't even want to go out....but I've 16 other people who have been great...wait, make that 12 other people as my siblings and their spouses don't count!! Grrr!!
Now she's threatening to stay home because she doesn't like all the wrinkles on her face. Sigh.... I cannot fix that, but I damn sure when all is said and done gonna try and fix all the wrinkles she's giving me!!!
Please please please mom, just go and have FUN and stop complaining already
Also the parent/child reversal role. I AM the parent here. My brothers are "Disney Dad's". I'm no fun. She just came home from a 1 night 2 day stay with one of my brothers. She's been up since 4:00 asking if I'm awake already. Fussing... I guess I don't move fast enough nor entertain her as much as "Disney Dad". She's been mumbling how she wished she'd stayed there and she want's to go back and stay with "what's his name". She hadn't seen him in a month so of course he's more fun than I am. Oh, he bought her one of those giant hanging baskets as an early Mother's Day present ( I told him what she wanted).... he hung it at his house so she can see it there.... uhm, it will be dead by the next time she visits him. Really?
So....barely after 10:00 A.M. and already whoooooooooosh.... I'm the enemy already. Maybe I need to try a different tactic, like, No Mom, you are going to leave the house, you are going to go run errands and have some d*mn fun with ME without the complaints. She does it for them she can do it for me. Sigh...
Jessie, my theory ---they are at their happiest being the center of attention and the more you sacrifice the better they feel because they actually feel pretty uncomfortable, miserable lost and alone. Just a theory, who knows.
So I hear many of you saying "Good luck with that my Mom has not cared about me my entire life" true I absolutely agree but there are moms out there who really care about their children. I don't think we see many on this site because they are not so drained and frustrated even if they too are tired. I hope the Dr was able to help you. Blessings
You *need* a glass of wine for that whine! It sounds like you had such a rough day with Mom. Sounds like her dementia is getting worse...is she due for a doctor visit soon to discuss that, or can you make one?
I hope you can do something fun with her on Sunday. I'm taking Mom out for our normal Sunday breakfast, then coming home to work for a bit, then maybe taking her for a ride or something...maybe to one of the big lakes, since she loves them so much.
Early wine...wait, whine today. Rough morning already...she started at 5:00 a.m. scared and lost, kept waking me up, kept reassuring her and walking the 10 steps back to her room. 5 times later I decided to just stay up. She's been off more than usual since.... following my every move, so much so I turned around abruptly and almost knocked her flat! Finally got her soaking in the tub... 3 days ago it was no problem, today she forgot how to sit down. Water is too hot, too cold.... it feels like my once finally productive day was shot down. Doesn't matter what I start doing there is something wrong so in order to keep her calm and my calm, I have to do basically nothing.
Her 79th birthday is May 11th which is also mother's day :)) I want to do something fun and nice for her. A friend suggested we do something here at this house....uh NO! It would be way to much work for me. When we celebrated her mom's birthday we all went out...mom had a couple of wines and danced with some elderly men. She had a blast! Not going to work myself cooking, cleaning and hostessing... I suggested we all go bowling, at least it would give the adults something to do while the others sat, chatted, ate, drank and be merry... I don't want to be unappreciative to my friend and her suggestion as she's the ONLY friend I have here.... but....she didn't like my bowling idea, said her 83 year old mom on 100 % oxygen would not find that fun.... she spent her birthday pulling on the slot machine and blew through 100.00 bucks. Sigh.
Wine over....gonna try this all over again
My whine today is just about home care. My mother receives home care, which often seems unreliable! It's very frustrating when you seek some extra help that actually induces extra stress!! I have to train many people who come in to this house how to properly get my mother out of bed, washed, etc... the terrified look on some of these home care worker's faces!! My mother must have assistance with most daily living and some of these people seem shocked! We have had various caregiver this month... still looking to find a dependable one who can take on the responsibility. I find it very hard to separate my life from my mother's, seeing as she lives with me and I take care of her.. it's hard to find your own time!! glad to get that out!
I'd rather be outside puttering than inside cleaning ... I'd rather be doing most anything than cleaning inside for that matter!! Unless.... people are stopping by then it's WHIRLWIND CITY! haha.... mom has become accustomed to that mode of action. Even if no one is stopping by and that rare clean bug hit's me, she asks every other second "is someone coming over"? LOL! I feel a skosh embarrassed that my Alzheimer's mother is able to recognize my lack of cleaning unless folks are popping by!! oh well...
My excuse is that I have outdoor work that I would rather do and it is more important - yeah, that's the ticket - it's more important to cut the grass, etc.. After over 70 years of dusting, cleaning, cooking, etc., it gets boring and the feeling of power behind the wheel of a big green and yellow John Deere just invigorates me and gets me out of that cluttered house!! (trouble is I have to go through the cluttered garage to get out to the 'barn' for the Deere one..) and back again. But then I am just too tired to give a dern and settle down with my latest mystery after settling hubby into bed..
-1 air freshener that needs to be plugged in somewhere (bought and set on desk, and that's as far as it went)
-1 jar of Vicks Vapo-Rub that I just smeared on the outside of the front storm door in an attempt to keep the stray male cat from spraying it (ICK!) - also sat on desk and didn't put away yet
-MANY piles of various papers, magazines that came in the mail that I haven't read, estimate for tree removal from last week's storm that has to go to ins. company, paid bills to be filed away, notes notes NOTES all over the place...
-my cell phone, my life, my constant companion. LOL
-coffee cup - only 1...no wait...2...because I haven't taken them to the kitchen yet.
-crayons and coloring book I bought for grandson yesterday (no, I'm not losing my mind and taking to coloring)
-dustrag - for what? I can't see the dang desk to dust it!
-landline phone
-3 tv remotes
-wallet & keys
-meds (mine, not Mom's) + Aleve, allergy pills, and Vitamin B12 liquid
-batteries
-freebies and samples that came in the mail this week but haven't been put away
-flea/tick treatment for dog & cat that I have yet to put on said dog & cat.
-mini first-aid kit that is supposed to be in my purse...but isn't.
-scented candle (not lit, or I'd have an inferno on my hands, with all this paper)
-canned air to clean keyboard
-computer monitor & printer/scanner/copier.
...and a partridge in a pear tree.
I'm such a neatnik...I despise clutter and disorder....but here I sit, wallowing in it. (sigh) I guess working 60+ hours a week plus taking care of the house and finances AND Mom....something's gotta give, and it's usually the neatness and order. At least on my desk, it seems.
I did I did I did!!!.... Me time is needed!! Glad my oldest brother understood this time that it had nothing to do with him or his elusive wife. Pfffttt.... 2 hours was a Godsend...but....I did feel bad for mom, she was so concerned that I wasn't there.... ahhhhhhhhhhhh...........
sticky notes? I have a full binder and it still doesn't help :D
Thanks! I'm so tickled to finally get the pension issue settled AND the new wheels for Mom on top of it. Next on the list is talking to a local attorney about a Lady Bird Deed for the house and a few other legal matters to keep the house out of the hands of the state when Mom passes. They've already sent letters about trying to take the house to pay for Dad's medical bills (he was on Medicaid when he passed, with over $300,000 in bills) - but they can't touch it because Mom still lives here.
One thing at a time...will be happy when it's all taken care of! I'll definitely sleep better and there will be fewer sticky notes on my desk...