Hi All,
I'm glad I found this site!!! I've read some of the postings and (WOW)you start to wonder if things will ever get better. My mom is driving me crazy. I find I spend less and less time trying to have a conversation with her...it's too much work! And then I think to myself when she's gone that chance will be gone forever, so I try, it's very hard but I'm trying. I finally joined a local support group in my area...it's the best thing I've ever done. I have four siblings but I'm carrying the full load. I'm her primary caregiver, which I say she treats me one step above a slave...I don't even smile around her anymore, just taking one order after another. I find myself telling her the kitchen's closed! This isn't the Ritz! I will go to my second caregiver meeting on Tuesday...I can't wait! I need to breath, I need to be around other people. I seem to dream about just having one day to myself, one day to do absolutely nothing!
Thank yall so much. Granny sleeps in the chair. Her legs and ankles are so swollen everyone tries to tell her to get in the bed, but she refuses. she says all of her stuff is in the living room, even her potty (we use plastic bags with pinesol water) i just don't know which way to turn, she is scared of the bed and every chair has a problem too low too high too puffy she comes up with all kinds of problems she has 8 different chairs in her suite. we tried the straight chair with the foot stool she hated that. Any other advice please somebody help me.
Dear Dare, my heart goes out to you. Hang in there, I pray it gets easier for you, and that God comforts you in the meantimes. Blessings to you.
And blessings to all. You ladies are heroes!
Carol
Your mom is depressed, and part of that is that she is alive and living a life without much quality, when she thought it would be all over with. This may sound strange to some, but it's entirely understandable. You understand it. You are magnificient.
Please keep trying to take care of yourself first, then deal with all of these issue the best you can, knowing it won't be perfect. Get outside help in any way that you can. And keep writing. At least you have an audience that understands.
Carol
So anyway, I emailed sister back, kind of annoyed, and said WHEN is she ever going do decide that she feels good enough to JUST talk about it? When hell freezes over?. Sister (who is kind of emotionally sensitive like me and doesn't deal well with being yelled at any more than I do) immediately shot back a snippy email about how I'm never happy about ANYTHING and NOTHING will ever please me, and that she thinks I'm depressed). Well, that set me off. I sent back an email saying OF COURSE I'M EFFING DEPRESSED. YOU WOULD BE TOO IF IT HAD BEEN YOU HERE FOR THE LAST TWO YEARS. Then I went on to say that she and other sister are ignoring the bigger elephant than MY depression (which I have been working on and keeping under control) is that MOM is depressed and nobody is admitting it or dealing with it. Mom is also in denial. She thought she was going to die a few years ago (two rounds of cancer then COPD) and now she finds herself still alive but unable to do much. OF COURSE SHE'S DEPRESSED. She just sits around doing crossword puzzles and waiting for spring so that she can poke around in the garden a bit (I do all the real work now, she mostly just deadheads some flowers and brings home more stuff for me to plant). Anyway, I went on to rant at my sister, HOW DARE you make this about ME when what's going on is that nobody is admitting that mom is putting off this whole travel thing because she just can't face anything anymore and won't get any help to deal with it, and the sisters just tiptoe around it and buy into here 'when I'm feeling better" routine. I yelled (email style) that mom is refusing to admit that she may NOT feel much better than she is now, because her disease has progressed too far. Yes, spring will perk her up a bit like it always does, but it will also give her more warm days to go outside and smoke a cigarette and put herself back into her vicious cycle that will result in respiratory arrest. I said that if anything might actually REALLY make mom feel better, it might be a change of scene away from sitting on her ass doing crossword puzzles and occasionally going out with a friend for an hour. And it is her last chance to see her last two sisters and her two other daughters before she really CAN'T travel anymore. Then I blocked my email and put in a vacation response and started crying over the whole thing. Hubby tried to calm me down but then I got all upset about HIS father, because my in-laws are moving up here soon and my father in law is losing his memory and it is making me really really sad because he is the father my father never was and I don't want to lose him and don't want him to lose his mind.
MOM,
Thank you so much for taking the time to keep us updated. Thank you for being such a strong , selfless person through this. You are truly appreciated and respected for all of the things you do in this difficult process. You always go above and beyond to keep everyone updated and informed on all the important things that happen with our family.
You are strong independent woman, and highly respected. You have always put grandpa and others needs before your own. I know that we don't know even HALF of the things you do for this family. Most of it probably goes un-noticed by most and only appreciated by some, and regardless- you continue to press on and continue doing what needs to be done. Without praise. A huge task was entrusted to you and you handled it with grace, tolerance, maturity and understanding. I just wanted to let you and everyone else know that You're AMAZING!
I sincerely hope that this event with grandpa is a wake up call for all of us and that everyone in the family will step up and do the right thing and what's best for grandpa. I know everyone loves him - and now- it's time to put him first. He has been an ever-present being in all of our lives and none of us would be who we are with out him. His health and well-being is a all of our responsibilities and we all should pitch in and help and be an active part of his life.
I love you, and thank you for being you.
Keep coming here for support, anyway. We understand, even if we can't change your life.
Carol
Even had plans to go out of town next week... beginning to wonder if all of this is being played up by dad cause I am doing more for myself this year... really beginning to hate my family and my life... which is not me... and it scares me that i am disliking everyone and everything... no where to turn but here... thank God for this support site...
Wednesday, February 11
Ocean Liner
A man's heart plans his way, but the Lord directs his steps.
Proverbs 16:9
Recommended Reading
James 4:13-15
Someone once described the sovereignty of God as being like an ocean liner bound for port. While it is resolutely moving toward that destination, there are passengers aboard who are free to move about as they will. They are not in chains. In fact, they eat, sleep, play games, read, and talk as they please. All the while, the liner is still headed toward its predetermined port. It is a picture of both freedom and sovereignty harmoniously taking place at the same time.
As children of God, each of us has the Sovereign God as ruler in our hearts. This means that no matter what happens in life and whatever decisions we make, God resides in our hearts, steering us toward an ever-fixed mark. This is a comforting truth because as humans, we don't know what's best for our lives; and though we try to make good decisions, sometimes we just make the wrong ones. It's wonderful to know that while we're busy living and learning, God is at the helm of our life working all things together for good (Romans 8:28).
In the total expanse of human life, there is not a single square inch of which the Christ, who alone is sovereign, does not declare, "That is mine!"
Abraham Kuyper
Read-Thru-the-Bible
Numbers 6:1 - 7:59
He leads me in the paths of righteousness
For His name’s sake.
Psalm 23; 3
All I Really Can Say Is Thank You
Daily we choose and daily we have a choice. No matter what is neither that which causes us to choose nor why we choose to perform in the way we do. Truth still reveals that this was my choice. Now the funny thing about the way we choose to act in any particular matter will also reveal the deepest part of our inner soul. This truth we can not run away from, only at best can we ignore it.
We may feel bitter; we may feel cold, angry or even justified. If our choice or intentions were of that motivated of love, then we may receive that warm feeling regardless of its cost. But regardless, no soul should go without restorations if thy would humble yourself and call on Christ.
You see, to restore anything, you are proclaiming that you not only have the power to mend that which is broken, but as well make it new once more. And not only that, but you are willing and able to take that which is now mended and lead it in the pathway of surety, care and joy. As a matter of fact, you are willing to put your name on the line. (FOR HIS NAME SAKE)
Seeing that you can not do anything but only to believe to receive this promise, all you really can say is thank you
Be Encouraged
KB
Arrgggghhh!!! My son gets so mad and he only 15 . One day he asked me are you going to be like her and throw me out of the house.I told him I get that way just put me in a home at leastI know I be half way taken care and you don't have to worry about me being crazy to you. I really felt hurt he had to see that side of my mother when she kicked us both out or threaten to get out of her house all together. Control freak. When I left I told her she owuldn't hear from me anymore and she hasn't in almost three weeks. A person can only take so much abuse and
I have had enough in my life time already been given up twice and I am not going to let it happen again.
Here is some inspiration to think about . This from a friend in Haiti Mission. It hits on control and funny it came to me Tuesday. God moves in mysterious ways.
He restores my soul
My mother made some bad decisions in her life. She let their "best friends" idea become a reality when she chose to take their advice. The advice: just tell your husband when to stop and when to turn on the road. That way you can still get out of the house and do your errands.
Now mind you, mom has never driven and dad was told he could not by the doctors after his stroke. I was able to intervene do to a divine God-cidence and I stopped that mess. But you cannot force a person to do or take care of themselves. If you do not have the legal say so, all you can do is notify the doctor's of your concerns and pray for the best.
I used to think of ways to take away my dad's keys, but mom would have no part of that so I ended up having to pray asking God, "If they are going to go out on the road Lord, please do not let them hurt anyone. They can wrap themselves around a tree, but please Lord don't let them hurt a person."
Don't make yourself sick trying to control a situation. Sometimes watching things happen can be worse, but at least you know that you've done all you can possibly do. The rest is up to them.
Carol