notrydoyoda Posted January 2012
The Caregiver & Dysfunctional Families: How are you doing?
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- My sole mate is sole care taker of both parents. Where do I find help dealing with this?
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"If you don't make the time
to work on creating the life you want,
you're eventually going to be forced
to spend a lot of time dealing with a life you don't want."
There are two major reasons why you should avoid toxic/dysfunctional people: health and happiness.
🌟❄️🌟❄️🌟
”If you don’t make time for your wellness, you will be forced to make time for your illness. Read that again.”
Needing to protect myself financially.
It's kinda personal and embarrassing for me to even speak up.
"Life's as kind as
the people you fill it with."
Lylii1 - you sure have a lot to deal with., Your autistic kids may not be able to help. Glad your husband can help, but sorry his health is not good. I don't know if it is dysfunctional or not but it sure is hard. Can you get any outside help for your mom? Does she have any money to hire them? It would help if you could fill out your prifile and give more details about your situation - is your mom living with you? what health conditions does she have, how much support does she need? do your kids live at home? and so on. Wishing you well. I know this is really tough.
“The scars you can’t see are worse than those you can. Heal them, and you’ll heal yourself.”
🌟🌟🌟🍀🍀🍀🌟🌟🌟
“This is how you love yourself. Instead of begging for the pain to go away, you choose to hear what your pain is begging of you.”
🙂
today’s words of wisdom:
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“I'm not sure what's tighter: my jeans from high school or my grip on the past.”
“No one is coming to apologize for the years you lost.
You either build from here. Or spend the rest of your life bleeding over old wounds.”
I am shocked how many symptoms can be explained.
There is no cure.
I realize there is so much more to learn....
i just saw this funny quote, and it kind of fits with “words of wisdom”:
”I have decided I no longer want to improve myself.
I am a beautiful disaster.
And I accept myself as such.
So bless this mess.”
🙂🌈
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“No one is coming to apologize for the years you lost.
You either build from here. Or spend the rest of your life bleeding over old wounds.”
bundle -thx for the wisdom and laughs. You are so right. We have to build our lives despite what we have lost. No one will or can do it for you.
send - new treatments for FM??? -
Yesterdayanurse- welcome. Ding-a-lings could be dysfunctional, as could volatility and drama seeking. Certainly sounds draining,.Can you detach a bit for your own sake?
May 20 was my mother's birthday. Brought back some memories - not good ones. I am so glad that is over. It's more than 7 years since she passed so I can get rid of some documents and will. Had news from my nephew that my sister has had a hip replacement and is doing well. That's great. I still don't want any contact. My life is betetr without it. Have a good one, everyone. 😊
I was scrolling, asked Ai and FB offers up reels.
My memory has retained nothing, and my new fibro specialist did not want to see what I downloaded.
Suffering now from information dump. Not yet conversant on the topic.
I usually follow your advice and healthy lifestyle.
Had a mini crash the afternoon after a too strenuous walk the other day. Took a few extra pills, went to bed and slept, slept extra the next morning and am OK now - I think. I'll try another walk in a few days.
I used to walk and walk and walk...I miss that.
sheepherder -I'm sorry for your troubles. I understand. My sister was of no help and caused trouble when I was doing what I could for mother. But then, that was nothing new. She did it all our lives. Mother has gone, and I have cut contavt.
I wanted to share with you all and invite feedback: I recently "broke up" with my behavioral health clinic after 9 years. It's felt very much like a bad breakup with a toxic partner, where I was saying/complaining about the same issues over and over, and was being gaslit with sentiments along the lines of "You aren't feeling that way; you're actually feeling this way. But if you *are* feeling that way, it's because you're xyz, and your perspective/feelings aren't credible and we know better than you do." <- Seriously! This is how I perceive what they kept doing over and over!!
I've been so angry the past few weeks as I absorb this situation. I presented to this clinic in July 2017 (fresh out of 7 years of caregiving and still very much dealing with everything that went along with that time -- like me being sick and run down a lot, plus in 2017 I was houseless, jobless, and SO scared) with a few chief complaints: I have too much anxiety all the time, it's significantly impacting my quality of life, it runs me down, I need to get improvement so I can get to work on my life (heck, just getting to the grocery store without wanting to cry woud've been a win back then), I can't sleep well, brain fog, etc. These were the same "cluster symptoms," as I called them, that I'd had the whole time during caregiving.
Nine years later, I have the same complaints -- minus the daily pressure headaches, body pain, and sick stomach. I'm not as desperate for help now as I was back then, but I'm still scared/desperate (I'm wondering, can I perform in my new job role? Time will tell) and still have the same chief issues. And now I'm angry, too, which I think is actually good right now. Anger can motivate us to put our foot down and demand change, and I hope that's how I can channel mine.
Over the 9 years: Two documented misdiagnoses (that they corrected on their own without notifying me, because they recognized I didn't have the *whatever* label), countless meds tried where it seemed I always had atypical and sometimes SEVERE side effects, I've been told "don't Google your symptoms" as if the only reason I'm experiencing side effects is because I learned, after experiencing them, that, yes, this med can cause them in some people... Ugh!
And I come away with the same complaint as always: I have an anxiety problem. Maybe I always had it to some degree, maybe I'm hyper sensitive/sensory and also had a sh!tty childhood that gave me foundational anxiety issues, *BUT* it kicked into overdrive in 2012-13 when I had a massive toxic mold exposure, and it's never gone back to baseline since.
I have more I want to share and get input on, and this forum/thread was one of the best sources for feedback I could think of, as you've "known me" during caregiving and now 9 years later.
I'll stop there for now and end on a positive note:
I have a sensory integration therapist now. I didn't know there was such a thing, but I was looking specifically for behavioral health options that address sensory issues and found this provider; I had my 2nd weekly session with her earlier. I think this is going to be a great help! We are already talking about specific things I'd like to improve—like how difficult it is for me to read and write. She has experience working with others who have the same complaints! It seems that I'm finally in the right place to get help for some of these longstanding issues, or, at the very least, to gain better understanding and validation—which is incredibly valuable, regardless!
I have an appointment with a sleep specialist in 5 days. Idk if they can help me, but it's worth a shot. My new Fitbit is tracking my sleep, and the data might help put a name to this problem...
I have an appointment in late September to start with a university-connected neurology/psychiatry/psychology department that specializes in women's behavioral health. And again, I didn't know such things existed until very recently—a women's behavioral health specialty, attached to a neurology dept/component? How cool! They consider things like menopause, history of abuse, and other factors that seem helpful in getting better care.
And if I can't get significant improvement from these resources, I'll pay the $3,500 cost of an in-depth neuropsychological assessment from a regional clinical psychologist who specializes in differential neurological diagnoses. I *will* sort out what flavor my issues are, and worry about the recipe that created them later. Any future medication needs to be guided by an accurate diagnosis; I'm not doing this "throw it at the wall, see what sticks" approach anymore. It's literally cost me so, SO much more than $3500 to do it that way.
I suspect there's an AuDHD diagnosis at the end of this journey. That's ok. And it would make sense for many reasons, going back to issues/symptoms I was experiencing even in very young childhood. And if you throw a bunch of trauma and years of mismedication on top of that, well... it's been confusing for me. But I also think the neurotype symptoms on their own are mild; the other things/experiences/medications exacerbated them.
I'll just have to sort it out. But I think I'm on a much better path to get there after the recent breakup with my old clinic.
Thanks for "listening." I know I rambled and I'm not going to edit due to time constraints right now. But I'll come back soon!
I really hope everyone's doing ok. And that you have the strength to fight your battles, and you're winning sometimes, hah. 😘
One thought I had reading through your post is that maybe there is no "cure" for what ails you and you may be better off learning strategies to cope with that instead of looking for a fix. And I don't pretend to know anything about therapy buy it's always been my understanding that it shouldn't stretch on for almost a decade, I think that's a sure sigh it's not right for you.
You are not wrong about your perspective!
This is true:
"It's felt very much like a bad breakup with a toxic partner, where I was saying/complaining about the same issues over and over, and was being gaslit with sentiments along the lines of "You aren't feeling that way; you're actually feeling this way. But if you *are* feeling that way, it's because you're xyz, and your perspective/feelings aren't credible and we know better than you do." <- Seriously! This is how I perceive what they kept doing over and over!!"
Spnutrition Magnesium Bisglycinate Gummies
Helps sleep. The response is almost immediate. Slept through the night, with no 3:00 a.m. wake-up. Lasted for one week.
I had to stop because the fake sweetener was causing jumpiness during the day.
But will find a tablet/capsule of Magnesium Bisglycinate, no gummies for me.
Metabolae Ceylon Cinnamon 7200 mg. -going to be trying that. Panic/anxiety can be a response to changing blood sugar levels, like low blood sugar if you don't eat often enough.