
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Happy Monday to all of you!
This weekend I attended a funeral for my sister's boyfriends mom-deceased.
It was blazing hot where we live and the burial was held midday.
So after the service which was held in a chapel all attendees drove to the burial site. I rode down to the burial site w/my sister, mom and the caregiver.
Now I have mentioned how mom has a difficult time walking, has pain in her lower back from previous falls. We arrive at the burial site. The cemetery is primarily situated on slopes, so one has to walk uphill. We got out of the car, and the caregiver and me started to assist mom for a walk on the street, then up the grass.
Mom is 91, and walks very slowly. By the time we were now walking in the grassy area, I could tell mom was having a hard time. No where in the picture did I see anyone having taken a bottle of water. I turned to my sister and told her, something like whether it was necessary for mom to walk more all the way to the burial site, as that was still some more distance. My sister then says something like, "Maybe I should go get the wheel chair." She had a portable wheelchair in the trunk of the car. I thought, GEE, interesting how mom already had walked more than half the distance in this heat, and if I don't say something, my sister then even has to ask me whether she should do this! Honestly, where does some kind of ***m common sense kick in? I was so annoyed! There was a bench, a distance away from where the deceased's family was gathered, so told the caregiver, I thought it best mom just go sit there, besides it was by a wall providing some shade. We sat mom there, and she was fine. But when we sat her down, mom admitted to me that she was glad there was that bench, because the walk had tired her out!
These are the kinds of scenarios that I have w/my sister. Mom's fragility really increased in the last two years, especially last year. Her sister who was living there w/her, was home bound. This meant that mom didn't want to leave the house much either and on account of this, it really has worked against mom's mobility!
But my aunt died in Jan., of this yr. After that my sister started to tell me how she was taking mom here and there, of course all of this had to do w/probably more walking than mom had been doing the last few years. Another factor in all of this is the fact that mom has been stubborn about using her walker! Again here I feel that if she'd use it all the time, she'd at least have it to lean her body weight against, possibly even in her weakened condition provide a bit of the resistance from a physical work out level. But no! My sister doesn't seem to think about that! Anyway, it wasn't a good experience to say the least on this level. Margeaux
Good for you that you're taking this approach w/your mom. This is the emotional detachment! Isn't this strange thinking by parents that you'd be considered the irresponsible one???? But no matter what, I know you've mentioned your mom having the personality disorder, I still however think that from what I've read about narcissism it sounds as if your sister feeds that supply they talk about. Your sister for whatever reason, is that person in your family for your mother. Your sister is the victim, your mom feels sorry, and I guess needed etc.
On trying to protect anyone, e.g. your sister from your mom, well it's noble of you on the one hand to think this, but that is for your sister to decide. I too last year when I had daily calls from my sister about our narcissistic aunt. But, I too once lived there and had been at the other end of my aunt's abuse, while our mother
who was her sister's enabler, never stood up to the sister to let her know she had crossed some big boundaries. I had to separate out at some point that my sister for whatever reason it was couldn't realize that my aunt was one crazy, abusive individual. My suggestions to my sister that she try not to internalize, take things personally, etc., fell on deaf ears. I previously wrote about how I'd suggested to see whether my aunt could be diagnosed mentally. Somehow I thought if this would occur, my sister might change her attitude as to how she dealt w/my aunt. At this point, I decided well truth be told, then I know my sister is feeding her need also to be the controller. I wasn't going to participate in any of that! This is when I decided to take some of my sister's phone calls, but not so much as to preoccupy my time and energy. People like these have their own lessons to learn, and we can't become some kind of monitors of their attitudes.
I do remember that story about the toilet cover. Now that really is bizarre thinking.
My sister too would tell me countless stories of how my aunt was going to report the caregivers, her, change the POA. But after awhile when one adds up these kinds of stories initiated by the same person, well what conclusion can be made?
Anyway, congratulations that you've made the necessary adjustment with regards to the new attitude! If we are to grow, these are the steps we could take.
You're in my thoughts! Plenty of Love & LIght to You! Margeaux
Yes my sister is behaving narcissistically.
Remember I had written a post about the fact that I've noticed in the behavior by her also, is the fact that if my sister feels that you can be of some kind of service to her, say like my cousin or myself, this is usually when her venom starts coming out. In the moment that my cousin couldn't come and relieve her, to watch mom recently, then she tried implying to me that my cousin wasn't willing to do this for free. It's always about defamation of character too!
Yes, my cousin is going to help out when needed, and my sister is going to pay her. This is only going to be every now and then when needed on weekends.
I know my cousin is only doing this, this way because she needs the money.
My cousin also lives a drive from mom's house, so the least that it could help out is for gas. My cousin admitted to me, that she doesn't like being in that position w/my sister either, so she knows what's happening.
This is one of the reasons that I don't go there more often also to relieve.
I feel that not only do I end up going over there and give of my energy, but then when I do I step into the den of cobwebs. This is where I really have to be on my guard w/my sister w/her need to control.
Oh, my dad's story! Yes, it was always confusing to me. My dad tried his best when he revealed this to us to encourage us to like the first family. I felt jealous at first, I remember, but tried to get over it. But then because of the lack of a real relationship between the first children and dad, when we did see them I really felt the resentment from several of them. So there were too many mixed messages going on here. This family also had such a narcissist for a mother! She really poisoned all of those kids into thinking my dad was terrible. She even made them think my dad was a womanizer. That's the last thing my dad was!!
How are you doing Emjo? How is your mother these days?
I hope things are calm for you. Much Love, Margeaux
So how are you doing, Emjo, how is your mom?
I hope all is well! Much Love, Margeaux
sharyn – how is the detaching going? – love the sunshiny day song. I can see that you don’t want to contact APS unless absolutely necessary. Hope you are working thing out with your sis – not always easy I know. When is your mum taking the test?
margeaux – you had quite an adventure and a good meetings with your cousins. I know a couple of people who have used the free trial with ancestry.com and they got a lot out of it. I see your sis continues in her narcissistic ways. Did your cousin decide to do some caregiving for your mum? That’s quite a story about your dad and his first marriage.
cmag – good to see you here again – glad you have the tax business out of the way
u565425 – I can see why you are upset seeing your dad like that. I am not aware of any way you can get permission to get info about him and his treatment
mom29 – the games these people play! – lose-lose – How frustrating! Yes deep breath and keep laughing is good, as is stepping back. She sounds narcissistic – everyone else’s fault! Glad you are standing your ground. I know about wanting support and not getting it though being expected to give it unconditionally – doesn’t feel good. Yes, it is hard for you too. Vent away!
needanswers – how did you dad do with the driving test? Sounds like he shouldn’t be driving, I know it is hard for some to give it up.
JLR – sibling problems are painful – you need some support from them . I am sorry that your friends have bailed out too.- Glad you mum appreciates what you are doing for her.
Ladee – the only thing that came to me was “sisters”
QuechuaCare67 – there are a few threads about narcissistic parents -seems like quite a few of us have them – and narcissistic sibs too. It is very frustrating.
MIssSassy – how are things going – I think I read that you were trying to get your kid’s father placed. Hope some changes happen soon, so your life is improved.
CG1963 – hi again – sorry you were feeling kicked in the stomach. You certainly are doing what is needed – at least - but I know a narcissist will want you to give up every moment of your life. Glad you are maintaining your boundaries and keeping some time for yourself – it is necessary. Families do get burnt out caring for their seniors. I have felt devalued and underappreciated for years, - by my mum – for years –probably all my life. But I have learned to parent myself and value and appreciate myself. I know I will never get it from her – she is not capable of that. If you could detach more it would help you. ((((((hugs))))))
Sadinthepacific – I hear you how your immediate family suffers from the demands on your husband – hopefully it will improve once they pass –cold comfort, I know. Did you feel taken for granted before the caregiving started, or is this new? Would counselling help? Couple counselling would be ideal, but even to go yourself would help. I hate feeling taken for granted and tend to give some heavy –even loud - feedback when that happens. My sig other tends to want a happy home to come home too as well, but without putting that much into it, until I really point out what I am needing, in very definite terms. It can be hard work, but worth it. You are not his servant, you are his helpmate, and a person with feelings and needs too. Being that he is so occupied with his parents, and sister, which as we know is a hard job, is there any way you can get some of those needs met another way. However, I know that nothing can replace the feelings of closeness that you two should be having as husband and wife. There is a good Christian book called “Love Busters” – things that negatively affect marriages and there is a workbook to use with it. Another book is called “Hold me Tight”. I think you would recognise yourself in them.
Austin- you might be interested in these books too. I wish I had seen them at the beginning of our relationship. We are loking at them now, but some bad habits have crept in. I tend to not speak up about my needs until I have built up anger - he tends to be too independent. We all have areas we need to work on. When people have been hurt, they do guard their hearts. I agree that actions speak louder than words. Glad you got over a bump last week. You are a cookie monster are you? lol rain here which is welcome, but the cooler weather isn't. Winter is too long in this part of the world.
Love (((((((((((((((hugs)))))))))))))) and prayers for all.
Joan
Life is full of compromises - and decisions. Just listening to a lady preacher who says decide when you get up to be happy today.There is something in that.
Hope you have a good one. Coffee with a girlfriend sounds good, and stick up for yourself with that guy - don't let the bad habits creep in.:)
((((((((((((((((((hugs)))))))))
I wish I was into those internet games. Then, I'd hook up with you and we can play against each other. But, I'm not into games - whether it's chess, checkers, etc...Although I do love to play SORRY! with the kids.
I wish I'm into instant messaging and we can "chat" that way but...I've tried that. I'm so uncomfortable talking to people on the phone (even with sis). I feel the same way with "chatting online." I prefer to talk to people by email, this site or in person.
Although I hate crying, why don't you first cry yourself out. Other than waiting for your friend to call, what do you love to do? Any hobby? Any "wish list" that you've always wanted to do but never did?
Before I became a caregiver for mom, as a teen, I've always wanted to volunteer for the hospital. Needless to say, I have absolutely No Desire to do that! But I still love reading. Anything you can think of?
I don't think doing yard work and house work on a holiday is productive for you. If I remember, tomorrow, I can Google for ideas. I just love surfing the web....I say tomorrow because it's about 11:15pm here. If you're having a bad time with this holiday, how will you be in Thanksgiving and Xmas!!! Maybe someone on this site who does celebrate holidays and have experiences can give you some tips.
Sometimes, I wish I live in the states. Then, I can just hop on a plane and meet with those who just needs some quality time with friends. Not family but friends. Wouldn't it be nice?
I wish I can brainstorm or tell you a funny story to cheer you up but I think my brain is getting foggy. I had an exhausting day and I still need to clean mom's trache. Would you like for me to tell you a true "scary" story? Oh, maybe not. I don't know if that's good since you live alone. I have LOTS of true "scary" stories. Forget that....I'm sorry Austin. The computer is now wobbling. I'd better quickly stop and clean mom's trache. My body is shutting down whether I want to stay awake or not...
You take care, okay. We do care for you a lot Austin. You have given us a lot of very helpful advice. I scrolled thru my AC Words of Empowerment file and I see your name on it. You hang in there. Maybe also post on How are YOU thread too? Have to go....HUGS!!!!
Having sis move in in December should help too. Wlll the paid caregiver come soon? I hope so. Looks like there is a little light on the horizon, or in the tunnel. ((((hugs))))
Decision: Oldest sis is moving in in December. If I can just last long enough for her to move in. Next argument in December, I can pack up for the weekend and spend it with sis or at a hotel using local rates. I won't worry about finding someone to cover since Oldest sis will be here.
I will also take my sis' offer to pay for a caregiver for Sundays.
I can't believe I was actually looking forward to caregiving parents after a hectic week at work!!!! Be careful what you wish for....
I seriously think you need a break. What would happen if you just walked away and stayed away for a while? Let your family know that you cannot do this alone anymore, and that you are going away for e.g two weeks. and you expect them to take responsibility for your parents while you are gone, and if they are not looked after, it will be their doing, not yours., So far they hardly help at all. The electrical problem should be fixed by your brother, and quickly. I have found for people who do not listen, or seem to care, that at times I have to create a crisis to make an impression on them, because all the reasonable asking and explaining hasn't worked. I don't mean you have to "throw a scene" though if that works for you fine, but simply tell them that you are going away for a while and it is up to them to take over from you. They can figure out among themselves who will do it. There certainly are enough of them, and they are taking advantage of you, and that should stop. Maybe this makes no sense to you and that is OK. I am concerned about you, and hate to see you get to this point. I am so thankful that you are not suicidal any more. You said that your thinking used to be that killing yourself was the only way to get away. It isn't the only way. You can walk away. The result to your parent's care is the same. Someone else has to do it. If you were hit by a bus tomorrow, someone else would have to care for your parents,
What I see from what you wrote is that your sil and sis are concerned for you - so that you will go back and keep doing the caregiving - not that they are concerned for your parents, or someone would have changed diapers. That is appalling to me and the biggest kind of "using". Is there no social services where you are? I think you have answered that before, Would the church help? Anyway, bw, you need to help yourself as this is too much for anyone to bear alone, (((((((((((((((((((((((((hugs))))))))))))))) and prayers - Joan
I'm home now. I came back at 3pm and SIL and daughter did not change father's pampers since lastnight. I walked in and the livingroom was stinking of his overnight urine smell. I didn't care. I sat down while sis came too for support. I finally changed them at 5pm. He was really soaking wet. And I had no feelings at all for him. He tried to talk nicely to me. But, his words this morning was so vicious that at the moment, I'm still numb. I'm really really sad right now. I think it's the depression trying to pull me back down that tunnel. I AM NOT SUICIDAL! I just feel so, so, sad.
Sis felt so bad. She tried all day to cheer me up. Went shopping but I was so quiet. Tried to get me to eat lunch but I just wasn't hungry. Still not hungry. He keeps trying to talk to me, I just can't talk to him. I just make the TV louder to drown him out.
Just venting. Actually, I wasn't go to comment until I read your post CG.
Sadinthepacific, I hate to say this to you while you're feeling at a loss on where you fit in the scheme with the inlaws. But, Please Just be Grateful that your husband has not invited them to live with you! Or even worse, to decide that you all move in with his parents! Count your blessings. Trust me, I've read enough on this site about those situations..... I believe that by the time your husband comes home, he's too tired to spend time with you and your son? I'm not a parent and it's kind of difficult for me to give you advice. But the only thing that keeps popping into my head is: can you and him put aside - even if it's once a week - time just for you and your son? May it be eating out - like MacD or Dennys, etc...? Or go to a movie? Or rent out a video that you all can enjoy (or pretend to enjoy since most males like violent shooting movies.) Maybe find a 30min TV show that the whole family can watch,laugh, etc??