First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I was just on a thread from someone whose wife doesn't believe in western medicine (but is now showing signs of dementia). I wonder if people who believe this also never go to an optomotrist or ophthalmologist for their vision. Do they never get an eye exam? Never had an eye injury? Never get cataract surgery? Isn't this "western medicine" too...?
The dizziness is a lot worse lately, too. Idk if the bad vision is a factor or what. But I'm back to using my cane in the house and not going out to sales. Which is depressing after being more mobile the past couple months.
Chuck's 2 year liver transplant anniversary is coming up next month, so there's a LOAD of tests ordered by the Mayo Clinic he has to undergo. He's doing fine, though, thank God.
My grandson turned 3 on March 4th and had a blast eating his birthday cake. His grandfather, my ex, gave him a cookie from his pocket for a gift! He's flat broke now after losing all his money investing in a pot farm. You can't make this chit up. He was feeling SO sorry for himself that he left the party mid way, after staring at me and then asking why my eyelashes are white? 🙄 It's mascara, bud, how do you like it?
I hope everyone is doing well. Sending you XOXOXOXO's
You have a lot going on in your life right now. Well, actually you have had a lot going on for quite a while but at times it seems to amp up quite a bit!
I’m really sorry that you’re dealing with all of this stuff.
What a blessing that Chuck is doing well. Your grandson sounds absolutely precious!
Wow! Your ex is going through his own tribulations right now, huh? Investing is always a gamble. You win some and lose some. He lost big time!
Will be thinking of you and hoping that all of these issues will be resolved soon. Enough of this, right?
I certainly can’t blame you for being frustrated and discouraged. I wish that I could say something to help but you know that I am not the Pollyanna type. You have every right to feel as you do.
It takes time to process everything and even more time to implement a plan. Hopefully, your doctor will figure out the best way to deal with these problems.
Sending much love, support and prayers your way today and always!
I hate that you've taken some steps backwards and I pray that that will only be temporary, as you deserve some positive news already.
I'm glad that you have your grandson to bring you joy. That is the gift of being a grandmother right?
It's hard to believe that it's been 2 years already since Chuck's transplant. I'm glad that he is doing well.
Now we just have to get you doing well. I'm continuing to pray for your complete healing.
Anything with vision scares me so much. I hope they find an answer to this one. Am relieved Dr C. will work with the eye-guy.
I can't help but think that the vision is making an enormous difference in the dizziness, don't you.
So sorry to hear you aren't able to get out to those sales you so love.
I can't believe that Chuck is s/p two years now.
I remember that journey so well.
I sense your frustration over being a “Guinea pig” but Kaiser is definitely investing its best people on you. (It’s not like we have had any attention more than telehealth and nurse practitioners on our plan lol.) I would personally give them a chance as the alternative is inevitably dim. Either the uvalitis is resolved or you eventually go blind from its effects coupled with the untreated cateract s and glaucoma.
I see the Opthamologist again next week and the PET scan is April 3. Praying the cancer is still undetectable.
Thanks to everyone for the kind words of support which I very much appreciate.
It’s quite tiresome to frequently visit doctors when dealing with issues.
Praying for you, and for EVERYTHING to just calm down!
Sending hugs to you!
So glad Chuck is doing so well. The less said about your ex the better.
We've got to get you back to doing estate sales! 🎇✨🌟
I will be praying for you.
Golden, the good news is I can see better up close! I'm back to estate sales and found a pair of 14k gold earrings for $3. Large round discs. Ka-ching.
Thanks for always being here Colleen.
Geaton, I'm grateful for LIFE, even in a compromised state. It's not like I'm paralyzed, which could've been the case. I'm tough. Just screw all this crap. I'll push thru it and live in the MOMENT, which is all any of us have anyway. The NOW. For now, all is well.
May God continue to bless and heal you.
I'm just returning to this forum since being off since November due to dealing with a care giving urgency ...I'm still a bit drained and just trying to settle back in my own life. Now catching up on this site and I love reading your latest words...very inspiring! Yes, you are tough - and I think living in the MOMENT is great advice for all of us!
Happy to hear about your latest findings at the estate sales...I hope you continue to find great treasures!!
Have you followed any of the treasure hunting from sunken ships?
I have watched programs and read articles about the divers that go after those treasures from shipwrecks.
It’s fascinating to see what they find. It’s a lot of work for the diving teams but it’s also a passion for them.
I once bought a pair of 18k gold Italian gemstone earrings from an APPRAISER for $5 which were valued at $985. Garage sales are notorious for selling treasures for trash prices. I ask no questions, just pay the asking price. Ever watch Antiques Roadshow? 😊
I'm actually waiting to see if we got tickets to the event coming to Littleton in May. Tickets are given out randomly.
I at the times made wind chimes out of wire, beach glass and beads. Had a whole fishing box full of beads. At the Estate Sale I found a long long strand of amber colored beads. All different sizes and shapes and quite lovely. Took it home and showed my mom the lovely "plastic beads" I found for next to nothing and she said "You just bought yourself the largest amber necklace I have ever seen. Sure enough we did the little burn test and smelled pine. I sold them at a collective my brother and I at that time sold pottery in. Can't remember what I got but it was very GOOD price.
That's the fun of the hunt.
In her book The Volcano Hunter, Susan Sontag gives one of the best descriptions of what "the hunt" is for us hunters, what the FIND is, what we feel in our bodies when we SEE THE PIECE. How we go about staying calm.
GG, shame about the missing Roseville. Many folks just do not realize the value of things, especially things they've had sitting around the house for decades! I once bought a Roseville piece myself at a yard sale for $1, but it has a chip on it. It sits on top of my secretary in my study. For a buck I couldn't resist 😊 Lol to "do you have anymore ugly vases?" 🤣😂