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Lea,

Any better today? We would all love to hear that you are improving day by day.

I know that you are sick and tired of being sick and tired. Anyone who is suffering like you are would feel the same way.

I really don’t know how some people feel that there is value in suffering. Sometimes, I wonder if the people who make this claim, have suffered like you have during their lifetime.

It is so easy to say all sorts of nonsense when a person hasn’t experienced these things for themselves. Honestly, all they are doing is speculating because they have not experienced what you have.

My heart, prayers and love are with you today and always.

Wishing the very best for you, Lea! You have paid your dues. You have continued on when others would have given up.

You are much stronger than you probably think you are. I truly hope that this discomfort doesn’t last for an entire year or more.

We can get through just about anything as long as we know that is is temporary. It’s when it seems like it is never going to end, that it becomes so difficult to bear.
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Nhwm, I feel the same today, unfortunately. I truly believe my condition is permanent. The toxic reaction I experienced in February from the immunotherapy treatment, that is. The steroids did nothing major to help it, and when I stopped taking them, my body went back to the original condition it was in before the steroids. What'll take a year to clear up, potentially, is the eye issues, the moon face, and other side effects from the prednisone. That's my belief anyway. Nobody will be able to confirm or deny it, either, as the doctors are clueless. As the neurologist told me, this audiovestibular toxicity reaction could be permanent or it could clear up, he didn't know.

There is no value in suffering, let's face it. Certainly not for 7 months since this whole ordeal began in mid January. Today I'm getting in the shower no matter what. God help me 🙄

Thanks to everyone for your kind words, I really appreciate them. I'd so love to post that I'm fine and doing well, believe me.
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I’m so sorry, Lea. I will continue to pray.

Please be careful in the shower. Is Chuck home to help you?
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Sending hugs out there to you, Lea. We will keep storming heaven on your behalf.

Does the dizziness keep you in bed, or are you able to sit up ever? Just want a glimpse into how you have to spend your days.
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Lea: Please be careful in the shower. I hope that Chuck can be home when you venture into the shower. I realize that six hours have gone by so I hope that it was accomplished. Hugs.
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Hi Lea - I was so sorry to read that you weren't feeling well and I really hope things shift for the better. I don't have experience in the medical field, so I usually back off from giving advice, but I just thought I'd ask this - do you happen to know if you have low Vitamin B levels?

Reason being, low vitamin B levels can cause dizziness and deficiencies in this may lead to a number of neurological problems of one feeling off-balance. I know that your situation is caused by different factors, but I wonder if it would be worth asking your doctor if getting Vitamin B shots would be beneficial for you in any way.

I used to go to my primary doctor for Vi B shots when I was working mega hours and I needed to replenish - it actually helped my energy, focus, mood, concentration. And at the very least, maybe it would help to feel a little better and to recharge. I also attached a link below from WebMD discussing the Vi 12 benefits for dizziness, vertigo and the immune system.
- Sending love and prayers for healing XO

https://www.google.com/url?esrc=s&q=&rct=j&sa=U&url=https://www.everydayhealth.com/news/10-surprising-facts-about-dizziness-vertigo/&ved=2ahUKEwivrbKW9rOAAxVbpokEHZVCDfUQFnoECAsQBg&usg=AOvVaw1I6LVJAziw2WB8bBCaqNzk
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.....HI Lea - I just wanted to add this important link below - it's from Southwest Integrative Medicine titled "Can Vi 12 Deficiency Cause Balance Problems" by Dr Robin Terranella. There's also a really interesting video included in the article with Dr Terranella - he discusses how nerves, the central nervous system, spinal cord/brain functions are interrelated to Vitamin 12. I think it's really worth watching the video.

https://www.google.com/url?esrc=s&q=&rct=j&sa=U&url=https://www.swintegrativemedicine.com/blog/can-b12-deficiency-cause-balance-problems&ved=2ahUKEwiqspqXgrSAAxV5pIkEHfroCOQQFnoECAAQAg&usg=AOvVaw2ofRHpEpNQ2MB7ZHcaMT6l
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HI Hope, I've been taking B12 for many months as University of Colo hospital recommended. What's caused my vestibular issue is a toxic reaction to the immunotherapy infusion I had on Feb 23. The double infusions of Yervoy and Opdivo are notorious for causing all types of horrible reactions including death. All of my bloodwork is normal in terms of vitamins, anemia etc.

Llama, Chuck is always home when I take a shower. I bring my walker in and he is close by. It was rough yesterday and knocked me out so I had to lie down afterward for the rest of the day. For some reason, the dizziness gets worse after a shower.

Cxmoody, when I wake up, I go into the family room and spend as long as I can in my recliner sitting up. Some days I make it till 3 pm, other days 4. Then I have to go lie down in bed. I try to walk the hallway if possible. I always get dressed, too. I go to the kitchen table for meals as well. No meals in bed or in the family room, even during my first cancer treatment when I had 102 fevers 24/7 and was bedridden with all sorts of horrible side effects. I'd hobble out to the kitchen for meals that Chuck prepared.
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Bm
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Lea,

I hope that in time you will see some improvement in your ability to function normally.

I know that you don’t expect dramatic changes overnight. It’s going to take time to adjust.

Your body has gone through so many phases during your treatments. This type of situation takes such a toll on people who endure this trial and error approach.

I can’t imagine how much this affects you, physically and emotionally. You have worked diligently towards achieving your goals and then you are faced with more challenges to deal with.

I’m sure that you have your days where you feel as if it will never end.

On another thread, we are joking about what we would like to have written on our t-shirts. One of my favorites that was suggested was ‘DONE!’

I know that you so want to be ‘DONE!’ with feeling crappy and to be able to be independent again.

As always, sending my love to you.
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NHWM - what beautiful comments you have just written. It's so true that the body takes it's time in healing.

Lea, oh, I was so excited when I read the Vi B12 link and hoping it was something new - hopefully you'll be soon reaping the benefits of all that you're doing.

- wishing you a peaceful weekend XO
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Hope,

Thanks.

Don’t we all wish that we could hit a ‘fast forward’ button to speed things up for Lea? 😊

Then, she could proceed with life, experiencing a normal daily routine instead of struggling to do everyday tasks that most of us take for granted.

Wouldn’t that be nice?
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Hi NHWM - I agree - hitting a "fast forward" button would be really wonderful! I've had to learn the hard way thru my own life set-backs that "slow and steady" sometimes is the only option - although I, too, have had to accept "patient endurance" - I was listening to a Sunday morning sermon on TV with Joel Olstein two weeks ago, and he discussed this. The concept of having patience combined with endurance. It was really interesting and inspirational for me. I'm constantly having to remind my own self with that.
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Hope,

Yeah, ‘slow and steady’ is certainly a more realistic approach to life.

I must admit that I am a dreamer at times 😊. I dream about how wonderful things could be! You know, I find myself saying, ‘If only this or that…’

I certainly had to learn how to be patient many times in my life. It can be tough for us when our patience starts to run short.

Thanks for this reminder! All of us need inspiration every now and then.
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You're very welcome, NHWM! I feel like I have no choice but to be patient for myself right now - while still trying to have endurance, but it's not always easy - and I'm not always good at it either ....I certainly have my off days when I need reassurance!
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Lea: I am glad that Chuck is home when you shower. I am sorry that it knocked you out, but it does take effort and sometimes it tires me out.
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Lea,
Thanks for sharing your day. It helps to be able to picture you while I pray.

We won’t give up on you, girl. Thanks also for checking in here. I know it can be a slog to come without different news, but seeing you pop up gives me a bit of relief. I’m guessing it does for your other friends here, as well.

Hugs from Fl on Saturday night!
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My son and grandson came by for a visit with my DIL earlier today, which is always a pleasure. Their giant dog I can do w/o. Now my stepson is here and I'm lying down with a hot beanbag on my head. These splitting headaches are epic 😑 and so are the body aches.

Chuck made my lentil soup recipe for dinner last night. It looked totally different but tasted great. My DD came over so we had a nice visit.

I hope you all have a great Sunday ladies 😗😍
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Lea,

So sorry that your headaches are on going.

Glad that you had a nice visit with your family.

How does your little dog get along with the bigger dog?
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I find cold/ice better than heat. I just think that would help blood vessels dilate less.
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Lea: Glad that you had nice visits with your family. The lentil soup sounds yummy. I have a compression head wrap for migraines. It is stored in the freezer, but still is effective after the cold dissipates. Maybe one would help you.
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Hey, girl. I’m glad you had a nice visit. It’s amazing how a grandchild can cheer us up. Such a gift! 🩵

Mmmm. Lentil soup! Do your temps go down to cool in the evenings? I miss that, living in the tropics, now. 🤪

Hope you have a good evening. Praying for your headache to pass! 💨
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LL, Glad to hear you were able to enjoy the family visit and the lentil soup. Food always tastes better when you didn't have to make it yourself ;-) I'm interested to learn if the heat helps your migraines and if you've tried cold. Thanks for the update. Praying this week brings some relief.
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I use hot or cold on my forehead for headaches, they both provide relief.

Our temps are much cooler in the mornings and evenings, yes.

Honey pretty much ignores my son's large dog Gadget. She only likes small dogs.

My dizziness is as bad today as it's been, no changes. 😑
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Well, THAT just stinks.

Please, Lord, please.

You are treasured, here.
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😼
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Lea, I so wish you were feeling better. I find myself trying to put myself in your situation and I know I'd be handling it a lot worse than you.

I have a tendency to wallow in my bad situations. When my foot was at it's worst I had some pretty low days and it was nothing compared to what you have been dealing with.

I have faith in God and I know you do too. In yesterday's Bible reading and the Daily Bread reading it talked about God freeing the Israelites and how they eventually got the freedom they wanted -but in God's way and timing. It then said that God plays a long game, teaching us about his character and preparing us for something greater.

I can't wait for the day that you have your freedom from all this Lea and I hope God's long game isn't too much longer for you.

(((Lea)))
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Lea, I see so many people offering suggestions of meds and vitamins and herbs, I'm sure it gets old because you've heard it all and tried it all. And yet, here I am about to make a suggestion for your headaches.

My husband's rheumatologist told him to rub aspercreme (or similar product) on his head for his headaches! Now, I know you have hair, unlike my husband, so that makes it harder. After mentioning this (what I considered crazy) idea to a friend, she said her husband uses something like that on the soles of his feet and it seems to lessen the headaches -- they don't go away but they do become tolerable.

I hope today is a good day for you.
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Grammie,

That’s interesting. Hey, whatever works!
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Bm
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