First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Have you made a wedding bouquet before? Your daughter will be so beautiful walking down the aisle on her wedding day!
My youngest daughter was telling me that a couple can have a self officiated wedding in Colorado if they choose or that you can even have your dog be a witness at your wedding! LOL 😆
How wonderful for you all! 💗
Looking forward to hearing about the wedding plans! 💒
When something is not covered by insurance:
If you have a Homeowner's Umbrella Policy, call them back and speak to the insurance agent's manager or secretary.
Sendhelp......my insurance agent told me personally I'm not covered under my policy for my issues w the hot water heater or any other appliance type equipment, or the outside pipe that's on my property. I also have a retaining wall that's 5 feet high and very long in my back yard that needed to be rebuilt to the tune of $9500 in 2018. That wasn't covered either, but my roof replacement due to hail damage WAS. And that was $27,500.00 in 2013. As far as pretending not to know about the proposal, "I've had the champagne and flutes here for a while now since we all knew she picked out a ring 2 months ago."
That’s so cool that Chuck is officiating a wedding.
A bouquet will be a fun project! I’m sure that you will create something beautiful.
I continue to lift you up daily in prayer and am still believing for your total and complete healing from this whole mess.
He sounds very sweet and romantic! I’m so happy for your daughter and your family. You and Chuck will be wonderful in-laws and he is going to be a great son in law.
Friday is my PET scan. Praying for a clean one like last time in May.
Praying along with you. Keep us posted.
BTW, I found a dime yesterday!
Of course I thought of you.
🤗😎😇🥰
Oh well. At least I wasn't a basket case this morning which makes me SUPER dizzy and feeling horrible from stress. I'll leave it in God's hands and pray for the best.
I can’t imagine how unnerving that would be, to continue to wait for test results over and over again for something so serious.
You’re absolutely right that it is in God’s hands.
As always, I will pray along with you for the best outcome.
Sending many hugs your way today!