First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I am reminded of the classic tune, Stand By Me, performed by Ben E King. (1961)
When the night has come
And the land is dark
And the moon is the only light that we’ll see
No, I won’t be afraid
Oh, I won’t be afraid
Just as long as you stand by me
So, darlin’, darlin’, stand by me
Oh, stand by me
Oh, stand
Stand by me, stand by me
If the sky that we look upon
Should tumble and fall
Or the mountain should crumble to the sea
I won’t cry, I won’t cry
No, I won’t shed a tear
Just as long as you stand
Stand by me
And darlin’, darlin’ stand by me
Stand by me
Oh, stand now
Stand by me, stand by me
And darlin’, darlin’ stand by me
Stand by me
Oh, stand now
Stand by me, stand by me
Whenever you’re in trouble won’t you stand by me
Oh, stand by me
Won’t you stand by me
Is your dizziness easing up? Are you able to walk a little better? Have you done more laps around your house?
Wishing you Godspeed Lea!
Nhwm, my dizziness IS easing up some. I was able to walk to the car at the Kaiser facility w Chuck holding my hand, and again at home, from the car to the door w/o help! Albeit a bit rickety, but w/o help or a walker! This is progress thank GOD.
The PET scan results will be here on Monday.
The liver donors father sent Chuck an email yesterday with photos of his family and his Facebook page with a tribute/obituary to his 14 yo son. A beautiful read, and eloquent. His son was hit by a car while mountain biking in Arizona and that's how he lost his life, on the same day Chuck was transplanted, April 29th. Such a sad and uplifting story at the same time.
No walker!!! 😁 Yay!
What a sweet thing for Chuck’s donor to do! 😭
I am sooo glad to read about your big trip with no walker! Thank you, Lord, for small mercies! 🎉🎉💃🏻💃🏻
I did get the PET scan results this morning via email and they do not look too good. I sent Dr C an email asking him to compare the scan photos from May and Friday and let me know bc I don't get to see photos, just read text. I think he's usually off on Mondays so we'll see 😑 I'm eager to hear what he thinks is going on. Please send prayers and good vibes my way.
The waiting game continues.
Waiting for test results is awful 😣. I wish you didn’t have to go through this unnerving experience. Will continue to pray with everyone else.
Hebrews 11:1 - Now faith is the substance of things hoped for, the evidence of things not seen.
HE is faithful when we place our faith in HIM and do not waiver from believing that EVERY promise is ours, every chapter, every verse, every line. HE desires to touch you and make you whole.
Believe that HE is still working on you and it is ONLY HIS hand that can truly heal you. Medical science does not deserve our trust but HE does.
What a testimony, doctors gave up and here I am by the grace, mercy and faithfulness of my Lord and Savior. HE is able and willing, we only have to ask, trust, believe and claim it. Whatever it is.
May The Lord increase your faith and lift you to higher places in Christ Jesus! Prayers, hugs and love to and for you.
You got this!
(((Hugs)))