Follow
Share
Read More
Find Care & Housing
Just looking to see if you’ve updated today.

Praying still, for peace in this storm.
(2)
Report

Bookmark
(0)
Report

So I got a call from Dr C earlier.

The PET scan report said new areas of lesions were showing up in my liver which appear to be suspicious for new early metastasized cancer. The wording was confusing.

Dr C said he saw no new masses in my liver and nothing overly concerning that he would treat w immunotherapy even if I could have it. He'll show me the scans on the 31st when I see him for an IVIG. He said we'll keep an eye on things w future scans, but no immediate cause for concern, in his opinion.

This cancer WILL come back at some point to where clinical trials will be my only option, IF I choose that route. For now, there are no decisions to make and for that I am grateful.
(13)
Report

Though Dr. C's wording may have been "confusing," it still sounds like a positive report for now. And for that we all say a collective Thank You Jesus!!!
You have prayers going up on your behalf from all over this country and even the world, and we're all so grateful that God's gotten you this far and we know that He's not done with you yet.
May God continue to bless you and keep you.
(3)
Report

Ty FG. Dr Cs words were not confusing; the words on the PET scan report by the radiologist were confusing to both Dr C and to me.
(4)
Report

Good news, LL! ((((hugs)))))
(4)
Report

Hopefully some positive news until you learn more or also hopefully the news is positive. Just couldn't help being repetitive with my words.
(4)
Report

Phew! Thank you, Lord!

We’re all breathing a bit easier, hearing this news!

Big hugs to you!
(4)
Report

Lea,

I’m glad that you heard back from Dr. C.

It really is stressful to continually monitor your health.

I admire your realistic approach in dealing with your challenging situation.

I don’t think that I have ever seen you in denial about the reality of your specific type of cancer. Your wise insight during this long journey has helped carry you through to this point.

I know that you will do what is best for you with each bridge that you have to cross.

The hardest part emotionally is the ‘wait and see’ what happens because no matter how much a person has strategically planned and invested in cancer treatments, certain things remain a mystery.

As always, Lea, I send my love to you today.
(1)
Report

I would get a second opinion. How can one person say there are new lesions showing up on the scan but Dr. C says there arent any.

Either there are leisons showing up or there arent. Seems like they both should have the same interpretation.

Dr C hasnt always been on the ball so to speak. Remember your spine and how damaged that was? Not a word from Dr C on that. I believe another doctor diagnosed that.

Cancer can multiply quickly so his wait and see approach could mean you cant try another treatment or trial for remission because things have progressed too quickly.

Just my 2 cents. Take it for what it is my opinion only.
(2)
Report

Its nothing major, or that he'd treat right now, is what Dr C said sp. The radiologist used words like "appear" to be new lesions which are suspicious for metastasized cancer. If the questionable area worsens, then it'll need to be treated. And I'm not too convinced I'd go be a guinea pig for clinical trials ANYWAY, to be truthful. So yes, there is an area of slight change from May to August scans, but nothing of big concern. Plus my liver numbers are all excellent in my blood tests, still. So I'm good for now. I'll see the scans myself in 9 days and see what Chuck and I think. You are correct though in that Dr C has not been 100% on the ball. 😑
(6)
Report

Lea,

I’m glad that you are comfortable with how Dr. C is handling your case.

It’s so important to have a good relationship with your doctor, someone that you can trust to make the best assessments and plan accordingly.

Medicine has come such a long way! It’s mind boggling. People who dealt with cancer in the past certainly didn’t have the options that are available today.

Research is critical for advancements in understanding and treating cancer and many other health conditions.

My mother initially went to LSU medical center for treatment regarding her Parkinson’s disease. She often told me that she felt like a guinea pig.

We can only hope that there will be better ways to treat and cure cancer and other illnesses one day.
(2)
Report

Nhwm, I do think Dr C has my best interests at heart, in spite of it all. I'll never forget how truly excited he was to tell me my May pet scan was clean.

On another note, DD asked if I'd go wedding dress shopping w her if she got a wheelchair for me. I said I'd go w my walker and no wheelchair! 😁
(11)
Report

Lea,

That’s so exciting! My friend’s daughter is a wedding planner. She has such passion for her work. She travels to New York twice a year to look at all of the beautiful wedding dresses.

Your daughter will be a beautiful bride. She will be so happy and proud to have you help her select her wedding dress.

Are you going to look at dresses for yourself too? You will be a gorgeous mother of the bride. Chuck will be so handsome as the father of the bride.

I bet neither one of you will be able to hold back your tears at the wedding.

I still remember my father tearing up when I got married.

I am sure that all of you will have wonderful memories of your daughter’s wedding day.

I can’t wait to hear all about your daughter’s wedding plans and of course the big day when it happens!

Your daughter needs something borrowed and something blue. I borrowed pearls from my sweet MIL that she wore on her wedding day.

Oh gosh, my MIL took them out of her jewelry box to hand to me.

The string was old and when I took them, the necklace broke and the pearls went flying all over her dining room. I was mortified!

My MIL showed such grace and calmly said, “It’s okay, dear. We will find every pearl and I will have them restrung in time for you to wear them at your wedding.”
(5)
Report

Lea: Praise God for no areas of concern on the PET scan.

Have a fun time wedding dress shopping with your DD.
(2)
Report

LL, sipping coffee, feeling relief and a little happy/fizzy reading about your PET scan outcome. (((hug du jour)))
(2)
Report

Glad to hear that Dr. C is not overly concerned with PET scan. Now go enjoy some wedding dress shopping with your daughter! Sounds like FUN!!!
(2)
Report

Thanks everyone! 😁

Nhwm, no I will not be looking for a dress when DD and I go shopping. I can barely get dressed as it is, nevermind trying clothing on in a dressing room. I'm entirely too unbalanced to do that. My intent is to use my walker to get into the shop, then sit in a chair for the rest of the time. I will consider that a big accomplishment if I'm able to do it......😁
(10)
Report

Lea.

It will be a big accomplishment and a very special day!
(1)
Report

Ooooo! Can't wait to hear about dress shopping with your daughter!
(3)
Report

Lea, that is all my sister did. She said she was the audience for her daughter's show, and everyone else handled dressing and undressing her in the various gowns. My sister just waited till she came out "on stage" to model each gown. It was actually a very memorable way to do this, keepsake video and all.
(5)
Report

Lea,

Has your daughter thought about her cake yet? Oh my gosh, so much planning, fun but stressful at times!

My youngest daughter says, “Mom, if I ever get married I want a small, intimate wedding, an incredible honeymoon, or maybe I will put a down payment on a house!” LOL 😆 (Business degree, yet still a diva!)

I remember absolutely panicking five minutes before my wedding! My best friend was getting nervous because I told her, ‘I am not sure that I want to get married!’

As soon as I looked into my husband’s eyes, I was fine but for a few minutes I had extremely cold feet!
(3)
Report

LL, thinking of you and Chuck! (((hug du jour)))
(2)
Report

Hi all. I've been feeling quite dizzy the past few days 😐 and my allergies are acting up something fierce, as they typically do with fall approaching. Allergy pills knock me out so long naps have been happening also.

My son and grandson are coming over on Sunday which I am looking forward to. Chuck is going to see his new granddaughter tomorrow which means I have some alone time to watch Bargain Block. What a great show, anyone watch it on HGTV? This guy couple renovate small dilapidated homes in a certain area of Detroit and sell them furnished w thrift store and curbside finds. All for under $100k, some as low as $69k. These 2 are single-handedly bringing Detroit back to life!

I hope you all have a great Friday
(14)
Report

Lea.

I hope your dizziness and allergy symptoms ease up soon. I take Claritin, Flonase and Mucinex. My husband says that we should own stock in Kleenex! 😝

Enjoy spending time with your grandson!

I haven’t seen that show. It sounds fun. I love to see how creative some of these designers are with ‘found’ objects from thrift shops.
(1)
Report

Checking on you! I bet you would be great at doing the same thing, with your eye for antiques!
(2)
Report

Lea: Prayers for your dizziness to ease up. I haven't seen that show, but there is one that I like done by a forner NFL player and his wife, who renovate homes in five days.
(3)
Report

LL, yes I've watched that show. I love shows that focus on "transformations" and I'm always amazed at peoples' creativity.

Even though I know you don't have BPP vertigo, mine always seems to ramp up when I'm very stressed, like recently just prior to my knee replacement surgery. I can't figure out the connection. Not spinny, but more spacey and imbalanced. I didn't think I was anxious (mentally) but must have been emotionally and physically because it went away right after the surgery. Maybe it's not related to my vertigo, who knows. Just putting it out there for you as you await (or deal with) the results of your PET scan which would be incomprehensibly stressful. (((hug du jour))) and prayers!
(2)
Report

Geaton, how are you recovering from your knee replacement?

When I had my first PET scan in May, my dizziness was thru the roof. This one in August, I was ok. Stress helps nothing, normally.

I am not awaiting results of my PET scan, or how to deal with it......there is nothing going on that requires treatment. And when the day comes that treatment is required, clinical trials are all that's available to me which I'm not sure I'd participate in anyway. I'm having an IVIG and seeing Dr C on Thursday and he's going to show me the scan which looks basically no different than it did in May.

Chuck is off in Colo Springs visiting his granddaughter and I'm home w Honey enjoying the peace and quiet. No loud coughing or sneezing to startle me blind.......whohooooo 😂🤣😁
(12)
Report

Honey sounds like a sweet companion! Our pets become members of the family, don’t they?

I want another dog but I can’t bring myself to go through the heartache of losing another one.

My last two dogs lived to be 13. They absolutely stole my heart. It was so hard to say goodbye to them.
(4)
Report

Start a Discussion
Subscribe to
Our Newsletter