First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Praying still, for peace in this storm.
The PET scan report said new areas of lesions were showing up in my liver which appear to be suspicious for new early metastasized cancer. The wording was confusing.
Dr C said he saw no new masses in my liver and nothing overly concerning that he would treat w immunotherapy even if I could have it. He'll show me the scans on the 31st when I see him for an IVIG. He said we'll keep an eye on things w future scans, but no immediate cause for concern, in his opinion.
This cancer WILL come back at some point to where clinical trials will be my only option, IF I choose that route. For now, there are no decisions to make and for that I am grateful.
You have prayers going up on your behalf from all over this country and even the world, and we're all so grateful that God's gotten you this far and we know that He's not done with you yet.
May God continue to bless you and keep you.
We’re all breathing a bit easier, hearing this news!
Big hugs to you!
I’m glad that you heard back from Dr. C.
It really is stressful to continually monitor your health.
I admire your realistic approach in dealing with your challenging situation.
I don’t think that I have ever seen you in denial about the reality of your specific type of cancer. Your wise insight during this long journey has helped carry you through to this point.
I know that you will do what is best for you with each bridge that you have to cross.
The hardest part emotionally is the ‘wait and see’ what happens because no matter how much a person has strategically planned and invested in cancer treatments, certain things remain a mystery.
As always, Lea, I send my love to you today.
Either there are leisons showing up or there arent. Seems like they both should have the same interpretation.
Dr C hasnt always been on the ball so to speak. Remember your spine and how damaged that was? Not a word from Dr C on that. I believe another doctor diagnosed that.
Cancer can multiply quickly so his wait and see approach could mean you cant try another treatment or trial for remission because things have progressed too quickly.
Just my 2 cents. Take it for what it is my opinion only.
I’m glad that you are comfortable with how Dr. C is handling your case.
It’s so important to have a good relationship with your doctor, someone that you can trust to make the best assessments and plan accordingly.
Medicine has come such a long way! It’s mind boggling. People who dealt with cancer in the past certainly didn’t have the options that are available today.
Research is critical for advancements in understanding and treating cancer and many other health conditions.
My mother initially went to LSU medical center for treatment regarding her Parkinson’s disease. She often told me that she felt like a guinea pig.
We can only hope that there will be better ways to treat and cure cancer and other illnesses one day.
On another note, DD asked if I'd go wedding dress shopping w her if she got a wheelchair for me. I said I'd go w my walker and no wheelchair! 😁
That’s so exciting! My friend’s daughter is a wedding planner. She has such passion for her work. She travels to New York twice a year to look at all of the beautiful wedding dresses.
Your daughter will be a beautiful bride. She will be so happy and proud to have you help her select her wedding dress.
Are you going to look at dresses for yourself too? You will be a gorgeous mother of the bride. Chuck will be so handsome as the father of the bride.
I bet neither one of you will be able to hold back your tears at the wedding.
I still remember my father tearing up when I got married.
I am sure that all of you will have wonderful memories of your daughter’s wedding day.
I can’t wait to hear all about your daughter’s wedding plans and of course the big day when it happens!
Your daughter needs something borrowed and something blue. I borrowed pearls from my sweet MIL that she wore on her wedding day.
Oh gosh, my MIL took them out of her jewelry box to hand to me.
The string was old and when I took them, the necklace broke and the pearls went flying all over her dining room. I was mortified!
My MIL showed such grace and calmly said, “It’s okay, dear. We will find every pearl and I will have them restrung in time for you to wear them at your wedding.”
Have a fun time wedding dress shopping with your DD.
Nhwm, no I will not be looking for a dress when DD and I go shopping. I can barely get dressed as it is, nevermind trying clothing on in a dressing room. I'm entirely too unbalanced to do that. My intent is to use my walker to get into the shop, then sit in a chair for the rest of the time. I will consider that a big accomplishment if I'm able to do it......😁
It will be a big accomplishment and a very special day!
Has your daughter thought about her cake yet? Oh my gosh, so much planning, fun but stressful at times!
My youngest daughter says, “Mom, if I ever get married I want a small, intimate wedding, an incredible honeymoon, or maybe I will put a down payment on a house!” LOL 😆 (Business degree, yet still a diva!)
I remember absolutely panicking five minutes before my wedding! My best friend was getting nervous because I told her, ‘I am not sure that I want to get married!’
As soon as I looked into my husband’s eyes, I was fine but for a few minutes I had extremely cold feet!
My son and grandson are coming over on Sunday which I am looking forward to. Chuck is going to see his new granddaughter tomorrow which means I have some alone time to watch Bargain Block. What a great show, anyone watch it on HGTV? This guy couple renovate small dilapidated homes in a certain area of Detroit and sell them furnished w thrift store and curbside finds. All for under $100k, some as low as $69k. These 2 are single-handedly bringing Detroit back to life!
I hope you all have a great Friday
I hope your dizziness and allergy symptoms ease up soon. I take Claritin, Flonase and Mucinex. My husband says that we should own stock in Kleenex! 😝
Enjoy spending time with your grandson!
I haven’t seen that show. It sounds fun. I love to see how creative some of these designers are with ‘found’ objects from thrift shops.
Even though I know you don't have BPP vertigo, mine always seems to ramp up when I'm very stressed, like recently just prior to my knee replacement surgery. I can't figure out the connection. Not spinny, but more spacey and imbalanced. I didn't think I was anxious (mentally) but must have been emotionally and physically because it went away right after the surgery. Maybe it's not related to my vertigo, who knows. Just putting it out there for you as you await (or deal with) the results of your PET scan which would be incomprehensibly stressful. (((hug du jour))) and prayers!
When I had my first PET scan in May, my dizziness was thru the roof. This one in August, I was ok. Stress helps nothing, normally.
I am not awaiting results of my PET scan, or how to deal with it......there is nothing going on that requires treatment. And when the day comes that treatment is required, clinical trials are all that's available to me which I'm not sure I'd participate in anyway. I'm having an IVIG and seeing Dr C on Thursday and he's going to show me the scan which looks basically no different than it did in May.
Chuck is off in Colo Springs visiting his granddaughter and I'm home w Honey enjoying the peace and quiet. No loud coughing or sneezing to startle me blind.......whohooooo 😂🤣😁
I want another dog but I can’t bring myself to go through the heartache of losing another one.
My last two dogs lived to be 13. They absolutely stole my heart. It was so hard to say goodbye to them.