First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Hope everyone in the southern hot zones are staying cool -- I bet you guys were ready to be done with summer 3 months ago...
Wish me luck and good times 😁
- Sending hugs!
How sweet that Chuck was able to join you!
Oooooh, what a pleasant surprise for your daughter, you paying for her dress! So lovely of both of you.
So, what is the latest news with Chuck’s daughter, in reference to the granddaughter? Did he get to visit her?
Yeah, judging by you have told us, I think I would have passed on that outing and not want to hear about it either. Still, I am glad that Chuck got to see the baby.
Okay, it’s bouquet time! I’m sure it will be beautiful. The entire wedding will be beautiful and you being there will be the icing on the cake!
What joyous memories for you all!
Stella uses varied sized models! Go, Stella!
https://www.essensedesigns.com/stella-york/wedding-dresses/
I have to share this with you and our forum friends. A while ago, you posted the following:
"In the meantime, what helps me thru times of acute stress and anxiety is to ask myself a question: "What is wrong at this very moment?" And unless your arm is hanging off by a thread, there never IS anything wrong at any given moment. You are either
projecting the future which is Anxiety, or dwelling on the past which is Depression. But at this very moment, nothing is wrong. Asking yourself that question may talk you down off the ledge as it does me. Helps you focus on the Now and the present moment instead of the past or the future."
Yesterday was a **it show with mom. I could feel my BP rising, chest hurting and hearing my pulse in my ears (I know, not good). Your wise words came to me, helped me calm down and focus on what was directly in front of me. Thank you! The things you write may not seem like much to you, but have helped me tremendously♥️
Chucks 2 teenage grandsons were supposed to come over today to stay with us until Tuesday night. But when my insane stepdaughter heard they'd be with us a bit longer than her, she had one of the boys call Chuck this morning to tell him they're having SO MUCH FUN with Auntie, could he please pick them up tomorrow instead? God forbid someone get a tiny bit more of something, anything, than SHE gets. Oh no. Then all hell breaks loose. At 32 years old. I'm looking forward to the peace and quiet again once Chuck does something else to make her mad. It's only a matter of time.
I have another PET scan appointment for Oct 2nd. Once we see if the scan looks the same as the Aug one, Dr C said I'm likely a candidate for ablation or radiation of the lesions, which is good.
The IVIG on Thursday did nothing to improve my dizziness, as usual, and I'm still waiting to feel better. I want to pitch forward when I walk or stand up, which is bad. But I'm still mobile and walking around sans walker. Chuck helps me to the car now where before I couldn't walk on the driveway bc it's somewhat sloped. Progress in tiny bits 😁
And, that’s positive news about being able to zap what’s showing up. 😀
I’ve also used your advice about what’s happening right in this moment! Even passed it on to my dad!
You’re a treasure!
Glad that you’re making some progress. Good luck with upcoming appointments.
Prayers and hugs sent your way today and always.
I've been seriously dizzy the past couple days which is making me want to STOP these IVIGs for good. I want to try NOTHING moving forward and see how that works.
I hope you've all had a great Labor Day weekend. Tomorrow is our 14th wedding anniversary. The plan is to have lunch at a seafood restaurant. My first time in a restaurant since December. Fingers crossed.
Happy 14th anniversary I hope you and Chuck have a fantastic evening out.
Do you ever consider trying to sue the COVID vaccine makers for what they did to you?