First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
So glad to know you were actually able to do something you love doing finally.
Welling up with some Happy Tears! 😭
Amazing news! 💃💃
Thank you, Heavenly Father, for this blessing for our friend! 🩷
Thank you all for your kind words. And NHWM, what you said to me brings me to ugly tears. Thank you, my friend 😍
Glad you had a good time at the Estate sales .
Allow me to tell you once again how astonished I am with how you have handled this difficult cancer journey. Not to mention the other things that have been going on in your life besides cancer.
First of all, you’re allowed to feel however you do but I have seen you repeatedly reach out to others on this forum during their time of need. Unless you mention your history with cancer or Chuck’s medical history, one would never know what you are dealing with.
You’re caring and compassionate despite what you are dealing with. It’s apparent that you treat others the way you would like to be treated.
Plus, you know fully well what it’s like to be mistreated and refuse to continue a negative cycle. I admire you so very much for that. Not everyone has that much class. Sadly, they prefer to pass along their misery to anyone who comes near them.
I think that I can speak for all of us on this forum. We love you, Lea! When you rejoice with happy news we are all smiling along with you.
Chuck and your family are blessed to have you as a wife, mother and grandmother!
I hope that if I am ever in your shoes I could follow your example. I’m afraid that I would completely fall apart.
Yay! Just 😃 Yay, Yay, Yay!!!
Okay, I might as well throw in a Hell, Yes!!! 👏
Your good news has made my day!
I feel good today and my back isn't hurting as badly as usual, either. If I can go to sales, I can go to restaurants too. My exile is over, praise God!
Naturally, I'm now wondering if the IVIG is actually HELPING me after a few ugly days? Arrrrgh. 😁🤣😂😗😃
Anyway, GOOD NEWS to finally report! 😁
I am so sorry that November started off so crappy for you.
I certainly don’t blame you for not wanting to continue being miserable.
Maybe these symptoms will pass before the estate sale. I surely hope that they do.
Sending love and support your way.
I thought October was a "bad month" until I was shown what "bad" really feels like! 😑 I guess I forgot.
There is an estate sale Friday and Saturday on my street. We'd very much like to try going since I haven't been out to a sale since early January. I sincerely hope these symptoms ease up some so I can go with Chuck. I would really enjoy that.
Watching the 6" of snow we had over the weekend melt in the mile high bright sunshine as I recline.
Sending love, hugs and prayers your way.