First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
You continue to be in my prayers daily.
May all go well with your infusion, tomorrow. 😀
I scheduled another IVIG infusion for myself on Monday. I took October off bc I didn't feel like the infusions were doing anything beneficial for me. But I've had a bad month, dizziness wise, so I'll have another IVIG. That's it for plans next week.
Yesterday I had to have blood drawn at a different office than I usually go to. The lab was way in the back of the large building. I went in in a wheelchair, as usual, but decided to try walking out myself, just holding onto Chucks arm. I did it........all the way out to the car! The walk was probably 1/4 mile and I was ok afterward!
I remember not that long ago I tried holding on to Chuck's hands to try walking in the house w/o my walker and could not do it. So I'm definitely getting better 😁
Thanks for asking.
This past year has been very stressful for me as well for a number of reasons. I too have been struggling to stay above the stress and anxiety. You are right! Anxiety makes everything so much harder. In fact I find myself at times having anxiety about getting anxiety. It's a vicious circle.
I read on another forum where someone said to not anticipate stress and learn to accept it cause by so doing you make it not so scary and it starts to go away. I've been trying that and it kind of works.
Still praying...............(for you)
And, I am glad to hear that the dizziness has backed off a bit!
May God lead and guide you with the new situation you’re dealing with.
You got that right! Life is a roller coaster of emotions, especially in times of uncertainty.
I’m so sorry that you have had to endure so much. You started this post back in February. It’s been a horrendous journey. I’m glad that you have a good support system. You are loved.
There have been some joyful and meaningful moments along the way too. I sense that you don’t take many things for granted these days.
For what it’s worth, I have seen your strength throughout this entire process.
Many others have crumbled when they have been faced with difficult challenges in their lives. Some like you, are able to face just about anything that life has thrown their way.
You have stood your ground and thoroughly researched everything while being proactive throughout this ordeal. I don’t know that I could have handled a situation like yours as well as you have.
Nothing can prepare us for going through something like this. It’s funny how we always think of these things happening to others. We tend to avoid thinking that it will happen to us.
I imagine that it would take me quite awhile just to wrap my head around it in order to accept it, let alone make sense of it and move forward.
You are plugging along and doing the best that you can. I admire so much about your way of thinking and I hope that if I found myself in your shoes one day that I would be inspired by your spirit.
Take care, Lea.
Also, even though I know you don't have BPPV, stress definitely ramps mine up and for the life of me I can't figure out the connection since it's supposedly an equilibrium thing.
May you receive "calm seas" in your body and peace in your heart. xoxo ((hugs))
Has your daughter picked her colors yet? It’s fun to hear the wedding news! 👰🏻♀️
I hope that you start to feel better soon. It is so unsettling to hear shocking or disturbing news. Very few people can shake it off easily. Give yourself a bit of time to sort through your thoughts.
Sending hugs and love your way.
(((Hugs))).
Haven't been out of the house all week. DD came by and said she's chosen her wedding party but yet to choose her venue. Her fiance bought a new car, a 2019 Subaru something-or-other so Chuck did get his car back. In one piece. Thank God. 😂🤣
I'm glad that you were able to take a walk outside with Chuck the other day.
May The Dizzies CALM DOWN already! I hate that for you!