First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Chuck had to take the washing machine apart so it could be cleaned out after 20 years and I found a dime underneath It! That's the first one I've found since Jan in the ER. So I'm taking it as a good sign to come of my PET scan on Monday. Dr C will call me to discuss the results that afternoon.
We are asking this in the mighty name of Jesus and thanking Him in advance for making it so.
I just googled 87F (30C, yeah hot).
It's 24C here now (75F) looks very nice but the sun is already very intense & at burning flesh temp after 10:00am. A hot, fire-likely summer predicted.
Wishing you a cool day 😎
Tomorrow is my appointment with Dr C and Monday is my PET scan so that's keeping me on edge.
I hope everyone is doing well. We're enjoying 87 degree temps here the past few days but I'm ready for it to stay cooler.
I bought a pill organizer for Chuck here:
https://a.co/d/aZRt1LH
We would sit down at the kitchen table with all the pills and the lists of meds and fill the pill boxes, one at a time. It's scary at first, but soon you become a pro.
Feel free to pm me any time with questions or concerns.
:( Not looking forward to it. Not sure how hubby will do after it is done, that is if he gets cleared. Doctor painted a rough picture.. He may not make it on the transplant list in time.
It's going to be a long haul... I can't even keep track of the measly 5 pills he has to take at the moment, some one time a day, and others twice a day...
I have to figure out how to get organized.... My first hurtle to figure out.
I went back to the Opthamologist today & the Iritis inflammation in my eyes is still going on. He gave me 2 prescriptions, one for more steroid eye drops to use for 4 to 6 weeks this time and some antibiotic ointment for the troublesome lids. 😑
Geaton, you are right about the amethyst rocks and how crazy it is such beautiful things are hidden inside ugly exteriors. 😁
T
I love looking at polished rocks and gemstones, too. Amethyst geodes are so beautiful (and huge)... it's my birthstone so maybe I'm partial ;-) I never get tired of admiring them and pondering how such beautiful things are hidden inside ugly exteriors.
(((hug))) !
We saw my grandson on Sunday (2.5 yrs old) and that was fun. My son brought me some rocks and crystals from the Gem and Mineral show they went to, and that was nice. The amethyst sitting on my window ledge catches light so beautifully.
Congratulations on your culinary skills that have come back to you! Yipppeee!
And, the one-leg up thing! Soooo happy to read that!
My poker-straight hair even frizzes down here in FL! It’s crazypants! I am heading to Buffalo for 5 days in October. I. Cannot. Wait. I haven’t seen Autumn in 8 years!
Hugs to you!
If you peeled open a can, warmed it, set the table, etc — then you made dinner in my book! Glad that Chuck is on the mend and can resume cooking duty.
From The Red Green Show, about men: "If the women don't find you handsome they should at least find you handy."
I've been sick and lost 7 pounds. Sad that's the only way weight comes off easily.
Anyway, still always praying for you Lea!
Defrosting and heating up counts as cooking dinner! LOL 😆. Hey, as long as there is food on the table it counts.
My sweet MIL would tell me that I was killing myself working all day and cooking dinner every night. She taught me to cook once and freeze a meal for later on.
She also taught her sons how to cook. My husband is a good cook! She felt that husbands should spend time in the kitchen too. Her MIL spoiled her husband and son, so her husband couldn’t do a thing for himself. She said that it took her awhile to deprogram him!
My shower yesterday was not horrendous. I even put my leg up on the built in shower seat while holding onto my walker....a miracle!
I cancelled the next IVIG infusion for 9/29......I'm done battling extreme dizziness for 10 days post infusion intended to help me. I will still see Dr C that day though.
My eyes are still bothering me.....still itchy crusty and red, so I'll see the Opthamologist again next Weds. I have a feeling this Iritis will be chronic until and unless this toxic reaction clears up.
DD and her fiance made it 2010 miles driving to FL with their dingo dog in the backseat. 26 hours of driving, phew. Her hair is in a fro since it's 90 degrees and 60% humidity. Ha!
Chuck is all better from his cold, thankfully. He lost his entire stomach from a few days of light eating. 🙄 Men. Can't live with them, can't shoot them.
ITRR, I forgot to mention, Chuck is allowed to take NO supplements or vitamins of ANY KIND. His immune system is to stay in a compromised condition so there's less chance of the new liver rejecting.