First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Hugs from here on Thursday!
We picked up the jewelry I won on a local online auction and there were a few good pieces mixed in with the schlock in the large zip loc baggie. Including a West German necklace, a rock crystal faceted antique necklace that weighs a ton, a sterling bracelet and a few other things. The garnet beaded necklace is beautiful too. A steal for $10 for all of it 😁
Getting ready to attempt a shower now 🙄 so wish me luck.
Funny! My DH says that it is only a sale if you really need the item!
Your hubby and mine would get along!
It’s always fun to get a great deal!
I love my husband’s expression about a price range being too high.
I heard him tell a car salesman that was trying to raise the price, “Talk to you later. That’s my threshold of pain!” LOL 😆
DH is a great negotiator! The salesman called him back and told him that he would sell him the car for the price that he was willing to pay and not a penny more.
I'll pray for wisdom on the steroids right now. What a difficult choice!
Hugs from here!
I hope you will feel better soon. 🤗 Sending hugs, love and prayers to you today and always.
Lea, I hope you can do without the steroids especially after weaning yourself off of it.
And congratulations on your new bling.
I'm supposed to start 10mgs of prednisone tomorrow but I just can't bring myself to do it. I'm going to wait another week to see if there's any improvement.
Its 60 degrees here today after 3 weeks of mid 90s. I love it.
I bid on and won 2 online auctions last night for a strand of garnet beads and matching earrings and a box of assorted jewelry, pins, necklaces etc. Each lot was $5.00. We're going to pick them up later today, it's very close by to my house. Just what I need.....more bling to wear around THE HOUSE 😑. But $11 is better than the Limoges boxes I was in a bidding war with someone on the other day and finally backed out at $165. Ha!
What kind of boxed cereal do you suggest buying?
Lea, so sorry about your eyes. I hope they feel better soon.
What an awful thing to experience with your eyes. I am glad that you are feeling some relief.
Hugs sent your way today and always!
Gershun,
So sorry about your kitty. Our animals truly are part of our family. I know that you miss him.
Glad you are seeking out a new doctor. It’s important to feel comfortable with our doctors and to be able to trust that they are qualified to care for us.
Hugs from Fl.!
I'm so glad you're getting a new doc! Yay! Too bad you have to wait so long. Boo!
PeggySue, Neosporin on the eyelids would not help me with an inner eyeball inflammation.
This morning my eyes are more open for the first time in months. They've been slits. I haven't been able to see much of anything for blurry vision, even with 4x magnification glasses. Nothing from a distance like the clock. I can already see a bit better after 4 installments of the rx eye drops, thank God. DD reminded me that Dr C said side effects can keep coming around for a year or more after an immunotherapy treatment and this Iritis is no doubt one of them since it's in both eyes. The Opthamologist felt it was definitely systemic in nature and since my central nervous system is already inflamed, there you go. I have an email out to Dr C too.
I'm on a waiting list for a new doctor. I can't stand my present doctor. I find I forego seeing him even if I'm ill cause I don't like him or trust his judgement. It's a year waiting period though so unfortunately I'll need to probably see him again.
Next time I buy boxed cereal I'll look for a license to practice medicine inside cause I think that's where a lot of doctors are getting theirs these days.