... did, knew, said, understood about caring for elders.
Personally, I'd love to see a roundtable discussion with MedPros on one side and family/full-time caregivers on the other. Short of that (since I don't see that happening any time soon), I'll start with a few items on my list ...
- Don't assume all elders act/respond the same
- Assume the caregivers probably know more than you do about THIS patient
Brandywine I have noticed that I am always called out of the waiting room by my first name but this is because of the privacy laws. Since HIPPA patient's names are no longer on the doors of their hospital rooms. When I have been admitted to the hospital I have been asked how I wish to be addressed .
That was fun.
I've been taking a bit of a respite .. long overdue, especially considering the stress of the last couple of months .. not to mention holidays. Now I have all kinds of stuff swirling around in my head in response to all the posts. So, if it comes off as a ramble .. eh .. it is. LOL Bear with me?
I have several pet peeves:
- Our scheduled appointment is at 1:15. We're expected to arrive 15 minutes early .. so that we can be seen 15 minutes AFTER the scheduled time. Really? Like our time isn't as valuable as the medPro? *grumbles*
- I'm not a fan of western medicine to begin with, but one of my greatest complaints is the seeming need to pigeon-hole the client (I will *not* call them a patient .. it implies we're just sitting there, patiently waiting for god's call .. pfft .. we are paying the medPro: they're working for US, dang it) into nice tidy categories. "Oh, it just comes with the aging process." or "That's what happens with dementia." (Well .. in this case, no, it was the meds, but I digress.) Why isn't there a more determined approach to *healing* the issues? It just seems like an 'easy out' to me.
- We seem to treat symptoms, rather than the patient, as a whole. When you have a client with multiple conditions, I really wish for a more holistic approach, rather than treating individual symptoms and NOT seeking a remedy - for the problem(s), as a whole. More often than not, one issue leads to the another.
- I'm tired of the assumption that just because Medicare won't cover a solution or treatment, alternatives are never considered or voiced.
Now .. for the hard topic swimming around in my head:
DrK .. you are, of course, welcome to this site, as is anyone involved with treating loved ones or the elderly. I met your arrival with some trepidation wondering if your reasons for being here were self-aggrandizing. Most of us are here to help ourselves, for sure, so I kind of stuffed that negative reaction and allowed a mental twist in my head to make room for whatever might come. Most of us come here to find help, one way or the other in dealing with the issues we face, daily. Most of us stay to offer each other support. Your mention of funding raises a flag for me, as if the only reason you'd remain and contribute would be in the role as the "professional" for which you'd be compensated. I truly hope I'm wrong about that.
We NEED the medPros to be on the team. The team. We need the entire medical field to hear and understand the daily, hourly, struggles we endure for the sake of our elderly. I wish every doctor and aide and nurse would spend a few hours a week reading the forums. I know there's supposed to be a measure of separation. I get that, to a degree, I really do. But we NEED some of you to care enough about the plight of the elderly and their caregivers, that financial compensation doesn't enter the picture.
I hope you find it in your heart to stay and learn and contribute, we need you, as much as we need everyone else, here.
LadeeC
(not to be confused with LadeeM)
What do you mean by "there is supposed to be a level of separation" There needs to be confidentiality between the patient and those in whom he/she confides but they should be told up front that if it is something the entire team needs to know they should be prepared to share for the good of their overall treatment.. The whole team can not work as a unit if they don't have the whole picture but of course there are exceptions. The person that delivers meals to a patient on infectious precautions only needs to know how to use those precautions not the nature of the disease. However that is another soapbox because I do not think ancillary staff should come in contact with patients under those circumstances All members of a patient's care team should be bound by the same level of confidentiality and share all relevant information.
It is interesting that you object to the use of patient, I object to the use of client. I feel a client is someone who uses the services of a professional other than a medical professional but while they are being cared for in any circumstances by anyone medical and dependent on that person for care they are a patient. if the caregiver is family or not being paid they can be loved one' friend or Mom etc
But that's another soap box and not really relevant to your comments.
We are freely sharing amongst ourselves information we have learned from training and experience. We are not picking each others brains so some day we can go off and write a book, text book or novel about the information gleaned here. As soon as some one mentions they can not visit very often because their time is not being paid for (funded) we wonder just why they are here. People come and go as we all will. Some just ask a question and move on others stay and become friends. Some have been through such a horrendous caregiving experience that once it is over they have PTSD and this site reminds them so much of what they went through it is healthier for them not to visit. Do you see what we were getting at.
That is why Agingcare has a policy of not allowing members to direct traffic to personal web sites where they may be conducting money making activities. There are ads on this site as there has to be income generated to pay the moderators and experts and maintain the site itself but I bet no one is getting rich.
This is rather wonky, but this RAND white paper by Joanne Lynn describes some practical reforms for the nation to consider.
"A reliable care system that helps the chronically ill elderly live well at the end of life would make seven promises: correct medical treatment, reliable symptom relief, no gaps in care, no surprises in the course of care, customized care, consideration for family situation, and help as needed to make the best of every day. "
http://www.medicaring.org/whitepaper/
Good stuff but of course it's always hard to make change in healthcare :(
Just because a medPro has more education and experience in the field (debatable considering my years, but, meh), doesn't exclude them from being a welcome part of the community .. but preferably on the same level as everyone else.
Well, what can I say. As I mentioned when I first posted some comments here, I’m visiting and here to learn. Also as I mentioned, I wish I could participate indefinitely in such a forum, but probably can’t, and didn’t want to give you the impression that I could.
I’m a bit sad to realize that I’ve accidentally made some people uncomfortable. I do greatly admire the work all caregivers do, and appreciate having had this opportunity to learn from this community. Take care and thank you!