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My mother is 95 and has dementia. She is in the hospital and her stools are black and her hemoglobin is low. They say she has upper GI bleeding. Has anyone's senior loved one who has dementia had an upper GI endoscopy? How did it go? At this time I am not going to consent to it as I am concerned her dementia will get worse from the anesthesia. They say it's "light" anesthesia but still I am concerned. Also I dont want her to have any physical issues from the procedure. She is getting Protonix at the moment.

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I chose hospice care for my mother with dementia at that age rather than invasive tests that would lead to more pain and suffering.

Best of luck.
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Reply to lealonnie1
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There is a whole lot of testing they can do that isn't this invasive.
For instance her stools can be tested for H Pylori which is the common cause of ulcers which is the common cause of blood in the stool (dark blood means upper GI bleeding). OR they can give a course of cipro and hope for the best. It rids the system of any H Pylori caused ulcerations. It is less liked now as it can cause some tendon complications, but still a good antibiotic.

Now if you are looking at say a stomach cancer they would be able to ID that and you would be able to say "Hospice and Palliative care now please", but you would at least KNOW.
The medication is indeed light and almost always safe. However, as a nurse I saw a young woman die of the procedure when the vagus nerve was hit and she went into a dysrhytmia of the heart. She happened to be the daughter of a fellow RN. The procedure is quick and often very easily done.

So you have a few options here, but I would say one is NOT to allow the bleeding to continue if it can easily be stopped.
I think that I would ask for a course of Cipro if they would give.
Then if the black stools continued I would want to know what is happening in order to make further decisions.
But with a 95 year old with dementia I can well see a reason to say no interventions at all, and if the stools continue dark and the HH continues downward, get in hospice and allow mom to go of whatever illness is currently on board. With this decision being yours I can easily make a case for going EITHER way you are most comfortable with.

Ultimately I can see a very good case for saying "Let's go with a course of cipro. If that's not the answer we don't even need to know the question. We would need hospice, the good drugs, and a peaceful exit."

Sorry. It's all on you as so often happens. I as an RN would have a hard time MYSELF with deciding this one even for myself. Were I well and happy I would go with this USUALLY very easy and uncomplicated procedure. Were I in the throes of dementia, I would want to go of whatever I could get to take me. My brother had early Lewy's and he felt the same and was GLAD to have sepsis on the scene to take help him out.
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Reply to AlvaDeer
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It's very hard to know there is something wrong yet choose to do nothing about it. At your mother's age and with dementia she already has what is essentially a terminal diagnosis, I would only consider medical intervention if it would alleviate pain and suffering during her final days. Hospice seems the appropriate choice now ((hugs)).
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Reply to cwillie
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I don’t have any direct experience but I think you are right to be concerned. I believe there comes a time when invasive procedures are not indicated and frankly, I think it’s inappropriate to recommend an endoscopy for a 95-year-old with dementia. I suppose they have to cover themselves, but I hope they are not pushing it. I would recommend palliative or hospice care to keep your mom comfortable when she comes home. Please keep us posted.
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Reply to MidwestOT
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