We recently put my MIL with Alzheimer’s in a nursing home. I have to say I am not happy with them right now. When she was at home she wasn’t eating or drinking like she should. She was losing weight, not cleaning herself up like she should, and ended up with a UTI. She was dehydrated when she went to the hospital before she went to the nursing home. So we thought it best to have her in a long term care facility so trained personnel could help her with bathing, see to it that she ate, etc.
Since she has been there, she’s fallen and fractured a bone. She caught COVID even though they are not allowing visitors except through a window where they can talk on the phone. Now she has pneumonia as a result of the COVID. This is her third trip to the hospital since going to the home. Her blood pressure is way down and heart rate is way up. I suspect she’s dehydrated. I used to have to remind her to drink water on a regular basis.
Aren’t they supposed to supervise them better than that? I don’t mean like be in the room with them every minute but check on them every hour or so to remind them to eat and drink? I am asking because I honestly do not know. She was sent there because she lived alone and we felt like she was no longer safe at home. Living with us or other family wasn’t and isn’t an option. She isn’t living alone now since she’s in the nursing home but that seems to be the only thing that is different from being in her own home. Are they all like this or should we consider moving her? They took great care of her when she went there for rehab but I am not impressed with their long term care.
But they do record what she eats and how much. At the quarterly meetings they could tell me her weight and any change, and how much food she was intaking. When my MIL had covid last May there was a span of time when she barely ate or drank. Because of her DNR they would not give her IV fluids. She thankfully recovered, but it has been very eye-opening to learn the many rules and regulations the hard way. If her facility is in the throes of a covid outbreak, I guarantee the admin and staff are running around like their hair is on fire Ithat's how it was my MIL's places). As the staff get covid they are understaffed and there are no subs available. You will have to be patient with this situation until they can get it under control.
Your situation is an example of why people need to fill out their Living Will with their physician's guidance: because a non-customized form may not do what you think it will. FYI most doctors think the standard advance care directives are NOT helpful in providing guidance and carrying out the wishes of the signer. I wish you much peace in your heart as you work through the care challenges. And do not pay any attention to trolls on this forum who try to shame you for your decisions.
Get the hospital social worker involved and either move her to another facility or get more help at home.
Who are you to judge people like that?
Not everyone is afforded the luxury of the resources to be able to bring their parents home and quit their jobs to care for them.
I thought this forum was to help others, not to judge and make people feel horrible about their decisions.
Please try to help instead of judging. There is only one who can judge and even he doesn't.
Staff can also be assaulted by patients, and not all CNAs report this to the charge nurse. When the patients assault staff they need to be put in a psychiatric facility and medicated to control behavior. Patients hitting, kicking, spitting at staff is yet another source of stress for CNAs.
But taking care of someone with Alzheimer's at home will completely consume your life and you will not be able to work; it is very hard and very very stressful, and EXTREMELY expensive. Many people do not have a choice but to put them in a SNF. I took care of my mom at home for 15 years, and it nearly destroyed me emotionally when she died. She made it to age 90, which was nothing short of a miracle considering she had insulin-dependent diabetes (I had to give her injections three times a day, but I kept her sugar levels absolutely stellar), high cholesterol which I could NOT treat due to her liver disease, and years and years and years of kidney disease as a complication of diabetes. Mom's medical management was highly complex, and in the end I had to put a feeding tube in her so she would not die of dehydration--she did great with it and I though she would last another ten years! Ironically she died NOT from Alzheimer's but kidney and liver failure which means even if she were a self-caring walkie-talkie the same would have happened to her...and her skin did not have one single mark. That feeding tube alone was a LOT of work because you have to check residuals, keep it patient, and assess the tube site and keep it clean. Mom never bothered it. It was a last resort, and she was pretty much no longer responding to the environment. I bought "tube tops" from Amazon to keep the covered which was comfortable for mom. But mom consumed my life and the moment I woke up to the point I went to bed it was around-the-clock care. So when mom died it nearly destroyed me emotionally but I had to recover, which I did, and I'm gainfully employed and working toward my Master's degree.
Just call me a recovered caregiver. I miss my mom. God I miss her..but people do die and it's a part of life. Mom is forever free from Alzheimer's and her litany of chronic illnesses. The feeding tube made mum comfortable in the end as her needs were met but her other diseases of kidney and liver is what got her. Mom was on hospice for 2 years and she was only bed ridden for 2-1/2 months because I worked hard to keep her going and walking. Even then I used a hoyer lift to put her in her favorite chair in the living room a few times a day. I thought it cruel to keep in her in bedroom all day. Besides I Had to change her diapers very frequently and keep her clean. Oh and her bowel schedule. Thank God for lactulose and her feeding tube. She moved her bowels every Tuesdays, Thursdays and Sundays like clockwork. To prevent impaction.
Did you know NOT ONCE did hospice ever have to use the "emergency pack". Not once did I have to give her any narcotics or psychotropics. Hospice nurse came daily when mum was dying (when symptoms appeared of liver failure she died within days), and they were surprised how comfortable she was with no drugs, and her death was the most peaceful one could ever hope for.
They should monitor what they bring in for her to eat and what's left
Make sure you are raising your concerns to the administrator , daily if you have to
Our elderly parents need us to be their advocates.
Please have the POA for MIL discuss with her doctors now whether it is time for palliative care, comfort care, and possibly hospice. You have not given your MILs age.
Certainly you can explore other facilities that might be willing to accept your MIL but I would wait until Covid-19 vaccinations have happened in your area for ease of visiting to assessing. Good luck.
CHF has been mentioned before; the cardiologist pushed for her to drink plenty of water. We thought that maybe she was forgetting to eat and drink and having supervision would help. I’d bring her dinner but she was still capable of using the microwave to fix herself something during the day. She was good about it too until maybe a couple of months before she went into care. Part of the decline I guess. She really didn’t need to be by herself anymore. I hated that she had to go into care at a time like this. It felt like a catch 22. She needed more care than we could give but we also worried about exactly what has happened now. Add to that, her doctors were no help as far as getting her into care so that’s why we couldn’t get her in before.
Afib was mentioned last night too. It was never diagnosed before so I’m thinking this is new. She is still in the hospital so hopefully they can pinpoint exactly why this happened. Her blood pressure bounced back at the hospital.
Another family member was with her. They know somebody at the hospital and told them that she needed someone there to speak for her due to dementia. The family member gave her something to eat and drink while there. No one has POA.