Two years ago, my day had liver and kidney failure suddenly. I was with him for the last 3 days when he came home under hospice and I sat with him for the last 3 hours until his death. At the end I saw his skin mottle and go grey, his breathing speeding up and then he suddenly breathed his last breath. It was a terrible awful 3 days. The last 3 hours were horrible. I can see you all have been through much worse, but it really affected me. After that I felt so detached for a long time. It was like the world was foreign to me...like I wasn't connected to it anymore. It took me a long time to get over this.
Then this past weekend I was visiting my mom (who is 84) who hasn't been doing well. As I was sitting across from her I saw the skin on her left hand suddenly change color in the same way I saw my dad's skin change just before he died. That lasted for awhile and then lightened a bit. I had an immediate panic attack. I had to go into the bathroom and calm myself down. Then when I came home I am experiencing all that detachment and upsetness all over again. I thought I got over this...evidently not.
My aunt is living with me and will probably die here at some point...maybe in front of me.
I am not cut out for all these elderly people dying in front of me thing. I am so stressed out with all this. I am such a wreck since last weekend when I saw that sudden skin mottling in my mom. I know people get old and die but this is too much for me to have them die in front of me over and over.
I can't do this anymore. How do you get over this? Everyday I am waiting for the call from the place where my mom is saying she has died or maybe going downstairs and finding my aunt dead. I feel like my life has turned into death row.
I just have to overcome my terrible insomnia. Last night, I thought I would try to cut the dosage of the Ativan in half to just 0.5 mg, but this made me sleep for only two and a half hours, even less than the Ambien. My GABA receptors must be fried already. When I awoke, I was still groggy and I had forgotten that I had even taken the half pill! I had waited an hour to see if I could fall asleep on my own. When I couldn't, I took the Ativan. Luckily, I had put the pill in a special container and when I saw it was missing I knew I had taken it, though I had no memory of it! This frightened me, so I got restless and decided to get up and research more about tapering off Ativan. Apparently, you're supposed to taper off of it very slowly for weeks at a time before lowering the dose, but I am too scared of benzos now -- I don't want to take them for weeks.
During my brief sleep, I had a dream about my father. I don't recall the details, but I remember calling out for him and finally he appeared and I was so happy and relieved to see him alive! I want to cry but I only get tears not sobs which would bring me release -- I'm too wound up. I can't recall our conversation, but it was good to see him for those few moments, even if only in a dream.
I'm very sorry you lost your dad at an early age. When my mother's aunt passed away from cancer at 87, her only son was devastated and died four months later. He had just retired. My father and I were so close, that I wonder if I will survive my grief. If I weren't a naturally cheerful person, I'd really be in trouble. I have to remind myself that my father was only going to decline more if he had lived longer. But I know he didn't want to leave me-- we were looking forward to spring when we could work in the garden together. I told him I would be ok, but quickly changed it to -- "Everything's ok at home, Dad.". I didn't want him to worry about me, but at the same time I didn't want him to think I was ok with the thought of him dying. It was so difficult to find the right words. I didn't want him to suffer for my sake, but I also didn't want him to lose all hope.
The idea of getting a boarder scares me, because my neighbor got one bad tenant after another. She ultimately got fed up, sold her house and moved to Taiwan. My other neighbor took pity on a homeless family, charged them very low rent and then they turned around and sued her for not fixing something. One visiting nurse told me he had a lonely elderly patient who let a man move in with her and now she can't get rid of him, and he moved his friend in, too.
I will carefully consider my options.
How great that you are learning to play the piano. My father and I used to play the piano together by ear. I had bought him a new keyboard as an early Christmas present. Sadly, he only got to play it once. I don't know if I'll ever be able to play the piano again without missing him terribly. We used to play old songs that most people have never even heard before. We also used to quote obscure old movies back and forth to each other. We were in a world that was uniquely our own. Just thinking about it gives me anxiety in the pit of my stomach, but I don't want to take the Xanax the doctor prescribed for me. The therapist suggested Remeron because it's not as addicting but practically all these kinds of meds have nasty withdrawal symptoms.
I'm so glad to hear that you are making the most of your life, and I wish you continued success, but you have to admit it helps to have a partner/boyfriend to double your happiness and divide your grief.
My therapist today told me to do three things just for myself, because I need to learn to take care of myself instead of my father. She suggested buying myself something special, take a walk on the beach, go to a book store, get my nails done..... The trouble is I've already got enough "stuff" -- I need to declutter my life, yet parting with my dad's things is going to be painful.
I love the sea but going to the beach by myself makes me feel unsafe since I don't own a car. I can get people to go to a restaurant with me but the local beach is too boring for them.
I have too many books. I'm not into fancy nails. I really can't think of a single thing I want to do by myself for myself right now. I've always wanted to go bowling, but that's more of a social activity. I normally love movies and music, but now they remind me too much of my dad. Last night I turned on the radio my dad used to listen to. It was tuned to his favorite station (classical). I had to shut it off, because it made me too sad. Even if he is still here with me, I haven't been able to feel his presence, only his absence.
As I was walking down the street after my therapy appointment, I saw a phrase stencilled onto the sidewalk. It read, "I want you to miss me."
I am not saying these things to scare....I understand where you are at. But right now you need a make some decisions because the steps we take when we feel depressed, scared, lonely and in mourning can end up either making our lives worse or better. Right now everything you do --you need to say..is this going to help me long term or hurt me.
When things got bad at home I was cooking with wine...I had a glass...I am not a big drinker......but wow...it was easier coping with mom's illness...the next night...hhmm had another glass of wine.............you know what..the third night I threw out the liquor in the house.
I did not want to create a new problem. I was going to have go through all the pain, the scariness and sorrow......and there was no way around it....except to find postive ways to help myself.
It is great eating with friends and socializing....
but now it is YOUR time....so write down what you want to achieve...and go make the steps to do it...
My mom and I were super close -----she was blind and not too well and she lived with me for years...........
but now I have more freedom...so I am excercising, taking piano lessons online, trying to grow my business, learn how to save money for retirement, have fun with friends, plan a trip with my boyfriend.
I am doing what my mom would want me to do--LIVE...that is what we are here for....do not let the sadness get you down...Yes cry...I still do and get depressed...but then I think....my mom is in heaven happy....and I am here miserable?? NO not what she would want.....I owe her way toooooo much to let her down.
Don't mean to sound preachy...just been there and know you can get past this and start living...........do not waste any time...we both know it is too precious...Hugs!
Since I can't find a support group near to me, these weekly dinners have become like mini-support groups, which are therapeutic for some of my guests as well. One cousin started crying because he regretted not telling his mother he loved her before she died, because he didn't want to say good-bye. He was just a kid when she passed away in 1966.
I need super tasty food to stimulate my poor appetite and the Pisco Sours to dull my pain. The wait staff is friendly. Since talk is therapy, and therapy is expensive, I'd rather pay $150 to $200 to talk to people I know in a pleasant atmosphere, rather than pay the same amount to a therapist. I don't have health insurance right now. I'm still going to see my therapist tomorrow for my second session, but she's so young, She wouldn't know what it's like to face a lonely middle age. I read that loneliness is more deadly than cigarettes.
I don't think I can get up the nerve to try the marijuana, because chronic use can paradoxically cause anxiety. My niece has a Medical marijuana card for Celiac disease, but I can't say it has helped her mood. Maybe it relaxes her while she's smoking it, but the effect doesn't seem to last. It has given her a stubborn case of bronchitis.
Last night I was so desperate to fall asleep, I tried 1 mg of Ativan. I managed to get about six hours of sleep which has helped me feel a little better. While I waited for it to kick in, I didn't feel any euphoria or anything pleasant but it eventually put me to sleep, maybe in about twenty minutes. I still thought about my father's passing but forced myself to think of something happier like cute kittens. It took some effort to say my prayers because I wasn't thinking as clearly. I worried about waking up in a stupor, but thankfully, I didn't. I was also anxious about taking it, because of all the stories on YouTube about how hard withdrawal from Ativan and other benzos is. I woke up feeling drowsy but not as lethargic as Seroquel. Ativan seems to be stimulating my appetite, as Seroquel is known to do. I don't know what I'm going to do tonight. I don't want to take the Ativan long term, because it's harder to withdraw from than Ambien and it's easy to build up a tolerance.
If you enjoy the house, and enjoy working on it and don't HAVE to move, don't, do what makes you happy. Sometimes change is good, I myself move ALL THE TIME lol, every 2-3 years I gotta go! I love interior design and changing stuff around...I even like moving (I have issues) haha. Sometimes a fresh perspective really helps, all we can change is how we we perceive things and how we let it make us feel. I just saw you're in San fransico, OMG, EVERYONE around you will know about marajuna. Maybe someone can get you the vape thingie, it doesn't smell. I'm in california too, so I know you've got dispenceries around, you don't even have to rely on anyone, go get the card, they will give it to you for anxiety and depression, and go into one of the stores and ask them, they are very knowledgable. I had my friend with PSTD ask for my SIL a few years ago. Whatever you do, get out and about, living alone it's too easy to hole-up and get trapped in grief. You loved your dad, you did your very best by him, and I'm sure he'd tell you it's time to live for YOU, think of what you'd like to do for YOU. I went back to school, I'm currently a student @ 43 and I love it. Do whatever feels good for you now.
When my dad died, I was in the process of gradually trying to fix up the old house for both of us, and that adds to my regret that he didn't live to see the projects completed. In fact, we had so much frustration with contractors that I had to fire the last one for breach of contract. I'm glad that we had peace and quiet during my dad's last month. I will have to take it on faith that he will enjoy seeing the improvements when they're all done. He loved this place -- we both grew up here. Now people are telling me I should sell the family home and move someplace else, but I think I need to take one upheaval at a time.
That is a good idea about not chasing sleep. It's true that induced sleep is not satisfying but sleep deprivation feels worse. Normally I take two 5 mg Ambien to get six hours of sleep, but this time I didn't take the second pill. It's not easy, but I will try to wean myself off the sleeping pills. I only have one Ambien left anyway and probably won't be able to get it refilled. I've tried alcohol before, but it doesn't put me to sleep. I like how the Pisco Sours at a local Peruvian restaurant make me feel but I don't drink alone. I have a liquor cabinet filled with booze, but thank goodness it doesn't tempt me. Someone suggested marijuana. I'vr never tried it, but I don't like the smell of it. I also worry about it being laced with something. Some studies have linked marijuana with anxiety and panic attacks. Even hydrocodone keeps me awake.
I had a 45 minute therapy session with a social worker last week, and have another one on Wednesday. Maybe I should try a psychologist, but not sure if even Sigmund Freud himself could help me. Somehow I will try to find my way out of the depths.
Another experience my cousin shared with me occurred about ten years ago when she suffered an internal hemorrhage. She lost a lot of blood and the doctor said it was a miracle that she hadn't died. After her surgery she was in the recovery room when she had a dream or vision of a beautiful little girl who was asking her to come with her. She didn't know who she was but she felt peace and happiness wherever it was that she was at She was about to go with the girl when she heard the voice of her father who had died fifty years ago when my cousin was only 13. After all those years, she clearly recognized his voice. He told her, "Do not go with the girl." So she stopped and then she woke up in the hospital. A woman was looking closely at her with her face way up to hers. She asked the woman, "Who are you?" and "Where am I?" And she answered, "I'm your nurse, Susan." My cousin said she felt as cold as death itself, and the nurse brought her some warm blankets. She drifted back to sleep and when she awoke again, her husband and her mother were there in the hospital room (they are still living).
Her story reminded me of a story another cousin told me at my dad's funeral reception about her father seeing a vision of a beautiful little girl before he died. She asked him do you mean your granddaughter (who is very beautiful). He said, no even more beautiful than my granddaughter, which was saying a lot because he doted on her. Perhaps it was the Angel of Death.
Yet another cousin mentioned that the day before his mother died, she experienced a vision on the wall of her bedroom of a heavenly light. She tried to waken her husband, so he could see it, but she couldn't wake him up. He usually was a light sleeper so the vision was probably intended only for her eyes.
I will try my best to believe that my father is still my guardian angel.
Carol
The hardest thing is missing my dad, because our lives were so interwoven. Almost everything that ever gave me happiness is associated with him. I can't even enjoy watching tv anymore, because he's not there to watch it with me. I know it takes time, but it's hard because I don't have any friends close by and I don't drive. My neighbors have been kind but we don't have much in common. The friends my father and I used to have either died or moved away, and some fake friends abandoned us once my father started to decline. For the first time in my life I am lonely and it's hard to handle on top of the grief and anxiety. If I can get through this, I know I will be a stronger person, but I worry that I will never be as happy as I was when my father was alive. People tell me I'm strong, because I was a caregiver all those years, but I was with people I loved and enjoyed being with. They tell me my father would want me to be happy, but more than anything he wanted me to be "safe". How can I be safe with no one to protect me? I used to be able to walk the streets alone at night fearlessly, because I could call my dad on the cell phone. Even though he could no longer physically protect me anymore, I still felt safe because he was always there for me. I would have taken a bullet for him and he for me. He was my hero, my guardian angel. He used to be a boxer in the army during the Korean War. He was tough but the kindest man I've ever known. Now I don't have any backup and it's scary. I recovered after the deaths of my other relatives, because my father was there to give me moral support. Now I am alone. I could die in my bed and no one would know for days. I go out to dinner with friends and relatives occasionally, but I come home to an empty house filled with memories. I have a sadistic friend who says if I get a boarder they will kill me in my bed. She lives alone but she's used to it -- I grew up around my wonderful grandmother, great aunts and great uncles. They don't make people like that anymore. Most of the people in the city where I live are too "out there" for my taste. I feel like a stranger in a strange land, even though I've lived here all of my life (San Francisco). I've always loved my hometown but It has changed a lot. It's tough being a woman alone. Even contractors charge a single female more than males. So far the nicest people I've met are the cab drivers.
If I could only sleep better then I think I would cope better. I'm already dependent on Ambien, but it only lets me sleep three hours at a time. A cousin told me it's probably causing my anxiety. She got me a natural remedy with herbs and melatonin but it doesn't work for me. A doctor at a drop-in clinic prescribed Seroquel and it relaxed me, but it didn't put me to sleep at all. That's a powerful antipsychotic and it didn't put me to sleep! Just made me lethargic and bloated.
I read that it causes weight gain and damages the heart. Another doctor just prescribed Xanax and Ativan for me, but I read that benzodiazepines can cause brain damage. I haven't filled the prescription yet. The doctor said I may have to go some nights without sleep for a few days until my brain adjusts to not having the Ambien. Maybe that would be better than getting hooked on benzos. Sorry if some of this stuff is off topic, but I feel comfortable sharing with other caregivers. God bless you all!
But - more important than any other thing - your being there changed everything that really mattered to your Dad.