Hello All:
My Mom went into a hospice facility yesterday, under Active Care, for congestive heart failure and dementia. I had called her doc the day before to let him know of her current health challenges and me feeling like I'm going to collapse taking care of her. (She has lived with my husband and me for 13 years. She developed the dementia with hallucinations a year ago.)
She is now begging me to get her out of there. I know I no longer have the energy and stamina to wait on her all day and not sleep when the hallucinations start at night.
Am I wrong to reconsider and bring her back home again and ask the memory doc to sedate her enough to be more manageable. It's the guilt setting back in because she doesn't like the food, the bed is hard, etc. I am finding it difficult to leave her in hospice while I try to get healthy and well again. What's better for her, being a zombie on meds and coming back to me or torturing her with an environment that is making her so unhappy?
I do feel I need to have a healthy life again but I am struggling with making it at her expense. She is 92 1/2. I am 64.
Since mom is in a Hospice In Patient Unit for "symptom management" she might be able to remain there for her Respite time. And they may even add the Respite to the current stay. Please talk to the Social Worker or the Nurse at Hospice about doing that.
If she can not remain there for her Respite ask that she be placed in a facility for Respite. And if possible remain in the facility. Often a facility will have room/ a bed for a Hospice patient that they might not normally have available for a longer term resident.
You can ask the Hospice nurse about adding medication that will decrease anxiety and that might make things a bit easier for you BUT if you are burned out you need a break. You need to take care of yourself and your husband. You both need a break. And there is nothing wrong with admitting that you are burned out emotionally and physically.
I'm so sorry you're going through this. I know it's a very difficult time for both of you. Hospice should have a social worker for you to speak with. I wouldn't have made it through my father's hospice care without the social worker. Please please be gentle with yourself. You are a good daughter. Hugs to you.
You are entitled to live your life. Now it’s YOUR time.
My mom was in a NH for the last 14 months of her life. She had to go after she was found to be constipated and had a fecal impaction. No one knew. It was no one’s fault either.
She did not like it at all. Prior to her admission she had wandered outside in the middle of the night, left on an Oil Fryer and the oil started smoking and she almost burned her place down.
You have to steel yourself to the complaints and negativity. What’s worse is as a caring daughter/son, her complaints probably make you be able to make everything alright.
But you cannot.
Go to your car after the visits and cry. I did- many times. Take it day by day but don’t bring her back home. At our age (I am 62) physically it’s impossible to do it all.
Go see her, care conferences, etc. Assure her needs are being met and be her advocate while there. All of the above is being a good daughter, which you have been. But it’s time for you now.
Best of luck to stay strong !
I had to learn to say "sorry, I can't possibly do that" over and over until it became second nature.
The only time my parents had backed off was when I fell and broke my arm. Wearing a sling was a great visual prop :) So is walking with a cane. I remember one time my parents and I going into the doctor's office, all three of use with canes [for me it was pinched nerve in my back].
Now, here is one thing that will make one stand up at attention.... up to 40% of caregivers taking care of a love will die leaving behind the love one they were caring. Then what? If there are no other relatives to help out, the love one would be placed in senior living.
You are not making this decision 'at your mother's expense.' You are making a decision based on the reality of the situation which calls for more care than you can provide her.
My mother is 93 and living in a Memory Care ALF (in care since 2014) and lately, she keeps mentioning how she has 'her bags packed' and how she's 'ready to leave' because there's 'nothing wrong with her' and the same goes for her friend Carolyn. They 'don't belong' there. Well, mother, I cannot even GET YOU up the stairs INTO my house since you are wheelchair bound, plus you have entirely too many issues for me to handle at home; I simply am not qualified. That is what I tell her every time she brings the subject up.
And lately, I find myself cutting down the time I spend with her on the phone due to the guilt trip she feels the need to lay on me. I don't deserve it. I will be 63 next month and have enough health issues of my OWN to deal with, never mind taking HER in! Not. Gonna. Happen.
You've done enough, my friend. Let your mother adjust to her new environment and pick ONE time each day to check in with her by phone. That's plenty.
Good luck!