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My mom is 61 and has advanced Dementia. She was also diagnosed with having dementia related schizophrenia. She sits around and talks to herself all day, then tells me she can’t do stuff because certain ppl who don’t exist, tell her not to.


The new new thing is bathroom issues. She “can’t” use the bathroom because she can only use a new toilet. She can't use it behind me, or a man (husband) or my children. She can’t squat over the toilet because it will break her hands. If she uses my toilet she will die. If I walk her into the bathroom and tell her to pee, she will refuse and Pee on the floor. She pees through the depends. She says she doesn’t have to listen me and Pee in the toilet because it’s really me peeing on myself...If I try to resolve whatever excuse she is making of why she can’t use the toilet, she immediately finds another reason. She pees in the bed, and on the carpet, she sometimes takes the depends off and put it in the trash, other times on my daughters dollhouse. Once she told me, I don’t have to use the toilet, I can just pee in the depends. She is already on anti-psychotic meds... what to do???


As an aside, I am pregnant... with a 1yo, 4yo and 6yo. I trying to help her and keep her at home, but she won’t listen to anything I say.

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Your mom is severely mentally ill. Thinking “maybe we just need meds to calm the voices” is not the answer. You are way beyond this point.

How do you know she won’t become violent towards you or your kids?

As your kids get older they’ll have the stress and bad memories of grandma acting crazy and peeing on the floor. Do you want that for them? You’re used to Moms problems, but they are not. Yes it would be difficult to bring all four kids to visit her in a facility... it will be way more difficult for your kids to undo the mental damage living with her will cause. And you will feel terrible knowing this damage could have been prevented.

I get the sense that you have probably been Mom’s caretaker (and thinking something, or some medication, can help her) since you were a kid yourself. The roles got reversed a long time ago. Now you have your own kids that HAVE to come first. You likely have bad memories growing up with her... do you want your kids to have the same bad memories?

Mom won’t get better. No med is going to fix this. Alzheimer’s is bad enough; Alzheimer’s and schizophrenia is a recipe for true disaster.

The question isn’t “how to convince her to use the toilet?”... it’s “How can I get Mom in a safe place so my own kids will be safe, and how quickly can it be done?”.
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Dbullock Jun 2020
I appreciate this response as I truly am considering placement although it’s not my desire. So, last year my mom was in a psych ward for 3 months. They put her on anti-psych meds and she came home functional and not delusional at all. I will admit, she was a bit sleepy/ zombie like... but she was able to focus on tasks, enjoy our company and even help out... At some point around Feb of this year, things just started going back downhill to her pre-hospital state. It might have been the UTI, but she really just never got right. I know you say more meds won’t work and that I am beyond that... but from the experimenting with drugs that they did in the psych ward to find something for her, I can tell you. THEY WORK. They, for sure can quiet the crazy... but it’s like they quiet her too! Like a loss of personality/ robotic... which I NEVER wanted for her.

As for the kids, she watched and cared for the 4 and 6 year olds a lot when they were little. They saw her everyday and they were best friends. She bought them everything and turned her whole house into a play place (I’m sure the irrationality of that was partially the dementia)... anyway, they are fiercely protective of her and were sad when she was away at the hospital for those months. They know that granny’s brain is broken, but tend to ignore her. They are also learning about humility, that people aren’t perfect and that we take care for the people that we care about. They learn it’s okay to be frustrated sometime, to forgive and to start each day fresh. Hopefully those things stick.

Anyway, thank you for the comment and I will consider what you have said.
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Have you talked to her doctor about this sudden change? I'm wondering if perhaps she might have a urinary tract infection. Sometimes these cause a change in mental status.

I agree with CM. It's going to be very hard to manage 4 very young children and keep your mother and them safe.
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Dbullock Jun 2020
I feel like with 4 babies, it will be harder to get to a nursing home or assisted living often enough to check on her. Can you imagine trying to go there many times a week with a 0,1,4, and 6 year old? Can you imagine me finding childcare for them to go many times a week? ... she has to work with me. It’s the only way. I see the ladies on YouTube coming up with elaborate schemes to try to get their family member to comply... but I really don’t have time. On YouTube, it’s like if your loved one won’t take a bath, set up the bathroom as a spa and invite her for a spa experience... meanwhile, I haven’t bathed in 2 days. I’m think more meds to calm the mental voices and defiance might be best.
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Your mother can't hear you. Her brain is broken by dementia, and crowded with much louder voices.

I don't see how you can keep both her and your family safe and well in the same house. Have you been offered alternatives and don't like the look of them, or have you not got that far yet?

Such a young age for your poor mother to be suffering so dreadfully, I'm so sorry for what you're all going through.
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