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Dad is 85 with late stage dementia, probably multiple types, doesn’t fit any 1 type. First obvious signs were in 2012, diagnosed w/ MCI in 2016, progressed from there. His memory has been all over the place. He was holding on to some new & old things. Doesn’t go back in time much. Over the past year & 1/2 he’s lost his language skills & either says sentences that aren’t relevant, or the words don’t go together or a lot of the time they are not real words at all. Seems content, but not totally aware of where he is or what’s going on. He doesn’t use any of our names, but smiles when he sees us, like he knows we are his, which is lovely. His sentences usually are a couple words & then goes into singing. Some of the time, especially recently, he seems to understand part of what’s going on. All of a sudden now, he might respond appropriately to a conversation. Even have a few full normal sentences. Use an appropriate word to let us know what he wants, like “bed” or “ cup”. He now seems to understand he’s “sick”. Again, not all the time, but more than he’s done in over a year. He is pretty healthy except for the dementia, in a wheelchair & awake at least 1/2 the day, eats good. I know there are ups & downs with all dementia, we’ve seen our fair share. This just seems different. Any one else have experience with this? (This is not about end of life sudden awareness, I understand that too. This is different.

With my mom I spent some time playing 20 questions trying to understand where she was - have you ever been married? had children? what's your name? ... until I realized I was probably stressing her out and making myself depressed. Her responses were variable, I think of it as a Swiss cheese model because in among the parts that made sense there would be inexplicable holes and contradictions. And some days she was more cognizant than others, but I don't think those people who only saw her occasionally believed me when I said she had days when she was bang on right up until her last weeks.
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Reply to cwillie
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Ltracy, He may be an outlier and last 18-20 years. Mom was in the same pattern.
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Reply to brandee
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Spring is here and summer is coming and there is stronger light and more light.
Mom always had a 10-20% uptick in the summer.
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Reply to brandee
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Regardless of whatever kind of dementia your dad may have it's quite obvious that Alzheimer's is the predominant dementia going on here as Alzheimer's is the slowest progressing of all the dementias and can go on for 20+ years, so just enjoy these more "lucid" moments while they last.
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Reply to funkygrandma59
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If dad has been suffering from dementia since 2016, he likely has Alzheimer's disease. My mother was diagnosed in 2016 and passed in 2022. Most other dementias aside from AD have a pretty short lifespan.

Best of luck to you and dad.
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Reply to lealonnie1
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Ltracy 21 hours ago
We were pretty sure it was at least Alzheimers, but Dr.’s don’t believe that’s all. He also shows signs of frontotemporal as well. He’s been different from 2 of my grandparents & 2 of his sisters who all had Alzheimers. They had their differences in progression, but more similarities to each other. Dad is almost completely different.
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Even if others have similar experience with this, what is it that you'd like to compare or learn? If his is an already "different" trajectory than others (in your opinion) then you probably won't be able to prepare or predict what's ahead for him.
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Reply to Geaton777
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Ltracy 21 hours ago
More just for curiosity. Not to determine what’s next. I know you can’t predict that.
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