I, without a medical degree, feel he needs to be reevaluated in a respite situation. Maybe a start over with the meds. After 5+ years. How do I get the primary care doc to address this. What we are doing is not working - trying different dosages of the meds - taking weeks. Any ways to address this?
Bringing a short written list to the doctor can make the conversation easier because it gives clear examples of what is happening day to day.
Many caregivers also ask for a medication review during the appointment so the doctor can look at whether any medications may need adjusting or if combinations are causing problems.
IMO a PCP/GP should not be caring for a patient with Dementia. PCPs know a little about everything and a lot about nothing. Your parent needs a Neurologist. They would be much better in prescribing the correct medication for a specific Dementia.
Tell doctor the truth as you experience it. Do you think he’s in pain? Falling? Swallowing difficulties? Combative behavior? Not eating? Hallucinations? Whatever it is, tell the doctor. Ask if respite care is available and if med adjustment is in order or could help.
Ask specific questions too. Example: my dad took meds for high blood pressure for years. Then he started getting dizzy spells when standing up from sitting. They found he was having blood pressure drops. I asked “should he stay on the blood pressure meds?” And they said stop taking that one. I’m not sure this change would have happened if I hadn’t asked. The Dr who prescribed it originally was not the one who discovered the cause of the dizziness.