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I am uncertain how they are labeling my husbands medical conditions and if I am able to get any help with his care.

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On the “How” I noticed that medical professionals (and I use the term loosely) noticed the meds my DH aunt took and then they seem to decide she must have Alzheimer's. She was never diagnosed with Alzheimer’s. I just let it go as they seemed to think all dementia (an umbrella term) was Alzheimer’s. Truthfully so little was known and what is now still not universally accepted that it seemed more important to spend any face time discussing her symptoms.

I am assuming you are speaking of dementia because it’s listed under your post.

Mindy if you are still with us give a few more details.
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Reply to 97yroldmom
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Your husband's doctor(s) should be talking with you even if you don't have anything in writing like power of attorney or health care agent. If your husband is able to sign documents, that should be done as soon as possible to smooth access to his records - medical and other.

If it's a hospital, speak to a patient advocate about feeling left out of your husband's care. And all of this depends on your husband's disposition and condition - does he let you sit in on his appointments? does he let you ask questions in those appointments? how much does he understand about where he is, what's going on around him?

Help is available through various programs like Medicare's GUIDE program that supports keeping dementia patients at home. That provides a care navigator who can help locate needed resources. If he's homebound and a veteran, VA offers a few long-term care programs, and I think TRICARE does as well. And some insurance plans provide case managers for people with chronic conditions.

Getting these services depends on the cooperation of your husband's doctor(s) because the applications will ask for information from a medical professional. So the sooner you can get 'them' to talk to you, the better.

Best wishes.
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Reply to ravensdottir
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Who are "they"?

What are the medical conditions? What are his care needs with which you need help?

What have you done so far to try and find out?

More information would be helpful.
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Reply to Geaton777
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