I am an only child. My parents moved me across the USA when I was 3, away from all family. I grew up isolated from family. My parents never had much to do with their aging family members except ending up with my mom's mom living with them part-time when she was in her 80s. My parents hated & resented every minute of that, and ended up refusing to allow her to return to their home.
Around the time my parents turned 70, they just threw-in-the-towel, said they were old, they were done. I was in my early 40s. And, guess what...the expectation has been that I will be there for all of their needs, dramas, fights (there were a lot of those), etc.
I am now 55, dad has passed, mom is just now 80. I am constantly responsible for the logistics, the sadness, absorbing the loss of it all. Being mom's one & only family member. If she lives as long as her mother did, I will be 70 myself when she dies.
I look around at people my age and (mostly) observe: 1) parent or parents are somewhere between 75 & 90 and mystically still living independently, or 2) parent/parents passed away with little to no fanfare, little obligation on the part of their children, and now the child (age 45-65) just steps in, sells the house, settles up, and walks away to spend the money left behind, free to live their own life in the positive present.
I feel that this has become my life story and that it will not end until I am too old to pursue my own goals & dreams. I just don't think life was supposed to be this way. I am so glad I did not have children of my own - there will never be a risk that I will do this to someone.
It seems that once you move in with parent or visa versa, it is much more painful for everyone to change that decision. So I would urge all kids who are not the caretaker type to resettle parent in appropriate facility/assisted living as soon as parent begins needing any kind of help - if they can't maintain yard and house any longer, it's time to move to place with no yard/no house maintenance. Do it while they are still clear headed enough to see that current living situation will get harder and harder...unless they have unlimited funds to see them through to end of life.
What you may think at the moment to be a better situation (kids don't get involved, parents are doing well, and end the end you just split the pot of assets and move on) is really dependent on 'what you can live with'. I know that I would not have been able to live my own life, guilt free, knowing I didn't help and just waiting to split the pot of gold. Everyone is different in what they can live with.
If mom has any income or savings at all, figure out what kind of respite it can buy you. Maybe 3-4 days a month away from the home to reconnect with friends or to do something you enjoy --- even getting a motel room to enjoy nothing but quiet time at a nearby town that has shopping or something that you enjoy. Perhaps even a week every 3 months that you can look forward to. Perhaps you have just gotten into a rut of doing nothing all the time (easy to do) and youll have to force yourself to find some 'me' time.
I have no advice (besides getting off social media). Just want to say I hear you with all my soul. And that you deserve better.
Please consider therapy. It’s hard to change, but much harder to give up on life at your young age. Ultimately, we all need to relearn how to view our destiny.
I don't understand this though: "I am so glad I did not have children of my own - there will never be a risk that I will do this to someone."
Just be thankful you live in a warm climate and don't have to put up with all the "Snowflakes."
P.S. Grand children are the best part of life.
In the end, the most important thing is not what you do with your life but how much you love others (especially your family). You don’t realize it now but you will be repaid generously (by God) for all that you are doing for your family. Please don’t give up. Remember, our main purpose in life is to help others. But please try to get help if you can. It’s not good to try and do everything, even though I did. But in the end you will not regret helping your mother. For me, it has brought peace. Be strong. God bless you!
What has 30 some years done for me - well, like many of you - I have no friends, I have no 'support' system - because like who - if you have no family or friends and 'strangers' aren't allowed. And now, at 67, I am no longer able to do many physical things I used to or would like to - all those years took a toll on my body. Heck, the last vacation I took that was more than 2 days was back in 1992 (every time I tried, 'something' would happen and mother would end up at the ER, or she would convince her doctor she needed a procedure that 'HAD' to be done the same dates of my going away...and I didn't have the $$ to do a vacation only to have to book another flight back to deal with an emergency)
SO yes, when someone said I was 'lucky' to have her around - I would just smile and not say a word. And yes, I was envious of all those other out there who were appreciative of their kids' help, of those who were the glass half full, those who smiled. Or those who accepted that the time was now to move into AL. Or who didn't alienate all the neighbors with their no filters conversations. Or who could figure out how to deal with every little 'problem' on their own (the tv remote doesn't work, the next door neighbor isn't nice to me, the bus shuttle isn't going to the grocery store this week, my doctor wants me to have a blood draw.......... to the perceived big problems like the Big Earthquake happening any moment, how and what to prepare for the apocalypse that should be happening any time, what to do when a foreign country takes over ours, how to reinforce the 3rd floor balcony so noone can break into her place..............)
With my hindsight now, I should have done differently. So, If you do not set firm concrete boundaries now, and start putting yourself first - you will be too old to pursue your goals/dreams let alone be physically able to - like me. And be angry and bitter about it because it just might be too late. Because between the aging and the high stress that our parents put us through, not to mention dealing with our own stressful lives in a different world - it will age you faster than you realize. And your mother might pass away this year, next year, 5 years, or 10 and you would still have another 20 to go for sure - and I think you would like to be able to 'live' those remaining years, not just exist in them.
Hugs!
Being a caregiver really is difficult.
It might be helpful to join the Alzheimer's Dementia Caregiver's FB Support Group. You can vent there without judgment.
You do not have to come up with the $8,000 a month for your mother to be in a care facility.
Your mother can go into a nursing home (these days they refer to dementia care as memory care). The facility will take her monthly income and whatever assets she may own will have to be sold to pay for her care. The care facility will also complete the application to get her on Medicaid to cover the rest of the expense for her care. So you don't have to keep her at home with you and sacrifice the last good years of your life taking care of her.
You have to ask yourself this question and answer and be totally honest with yourself about it.
Do you really not want to share a home with your mother and be her caregiver?
If you answer "yes" start looking at care facilities to place her in. It's okay for you to not be her hands-on caregiver. You can oversee her care in a facility and be her advocate to make sure she's being properly cared for. You do not have to be the one who literally does the day-to-day caregiving. There's a downside to this too though. Any money or assets your mother may own will go towards her care bill.
This is a price many adult kids pay for putting mom and dad in a care facility.
Put your mother into facility care and resume your own life.
If she can drive (or thinks she can) she's got to be able to put gasoline in her car. Independent living facilities take residents, by bus, to grocery shop...but they have to be able to get around the store with a cart (motorized or not). Independent residents are expected to manage their own medications (maybe they depend on family to obtain them, maybe not). Independent residents have more recreational opportunities, which they can take advantage of IF able. This means they need to be able to board and leave a bus or van with minimal assistance.
It sounds like your Mom wants the freedom of "independent living" but isn't quite able to handle the tasks required. She will not be independent. You will be expected to assist her. And it sounds like she will expect YOU to do a lot.
If you are unwilling or unable, for any reason, you need to inform the facility. Her therapists may be optimistic and proud of the gains she has made, but that does not mean she can manage unaided. Don't feel you must "justify" the demands of your own life to the therapists, doctors or nurses. If you can't do what mom requires, tell them so. How you explain this to your mother is up to you.
By the way, "Independent Living" is less expensive than "Assisted Living". Maybe you can hire a part-time care giver to help her with what she needs in her new environment. It may be easier, from an emotional standpoint at least, to set limits with a hired assistant than it is with mom! And your visits can be more at your convenience.
Obviously they are clairvoyant!
The average length of life is longer now than ever before. That's because we've learned to prevent / treat / delay so many conditions that previously led to a rapidly impending death. It's debatable whether that's good or bad.
I hope this doesn't sound too trite or at all dismissive. I really do feel your pain, frustration, disappointment, and fear.
In addition, when you become ill or incapable of caring for her, the time will come where she will still need care. Prepare for that time now.
I have found my Mom to be more needy and negative when she doesn't have enough "stuff" to occupy her mind. I have found that I can deal with these times better, when I have a plan for her future.
So I asked myself back in 2019 why did my mom fall, suffer a spinal cord injury, and became a quadriplegic? What am I supposed to get from this? The answer is healing! My mom was emotionally unstable when I was a child and my late father was emotionally unavailable. He was a great provider and businessman and mom loved us as best as she knew how, but my dad rarely talked to me and my brother about life and with my mom, we never knew which personality would show up each day. As a result, I had a failed marriage and many failed relationships. It’s taken my mom's fall for me to get the help I need with a therapist. I no longer have those intense bouts of anger and I am finding peace with being 50. And, I don’t miss social media.
As for others who have independent senior parents, I figured that everyone will have their cross to bear someday. I look forward to living a good life when this season ends.
I live about a mile from my parents and my only other sibling lives in another state and barely ever visits. I have no children and a full time professional job and yet I have become the go to person for all my parent's needs.
This is resulting in constant fighting between my husband and I. He seems to think I can just ignore them but they literally only live a few blocks away so you tell me how I can just turn my back on them. We are an immigrant family with no other family members in this country so I don't see how I have a choice.
I totally understand and feel your pain.
“There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.”
― Albert Einstein
Anyway, I can't go anywhere without her calling me and asking when I am coming home. This is even when my husband and son- her grandson- are right there with her! She has always tried to live my life for me and that has not changed. I have been looking after her for many years, and more so after my Dad passed- it will be 16 years this year. It has only gotten worse, not better.
I look around and see family and friends completely carefree and I have an 82 year old baby at home. The differences here are there is no joy involved like with raising a child, and I can't just pick up and go and take her with me. My family and friends who have been caregivers either didn't have to provide any hands-on care, or if they did, it wasn't very long at all. So, they really don't know what I have been going through, no matter how much they say they understand.
I hear you 110%.