Follow
Share

I and my grandmother live in California and she has late stage dementia for last 5 years. Besides that she’s very healthy physically, but I can’t handle it. The physical and emotional toll it has taken on me I can’t handle it anymore. I can’t afford memory care and we have no other family or anybody willing to help. I’m at my ends and I need a solution quick. The only issue is that My grandmother is not Eligible for Medical because of immigration status and only has emergency medical. She has turned violent sometimes, throws stuff at the walls or at me, breaks things, yells and cries and then forgets it. I feel trapped in my own home because I’m scared she will hurt herself. I find human waste from her in places where I rest. Clogs the bathrooms, hides my things, locks herself in so now I have to have a screwdriver in every room. I can’t go outside or she will scream on top of her lungs because she doesn’t want to be alone. I can’t handle it no more. What do I do?

Recall the case of WearyJean or WearyNow. They had brought their mother over from India. Her dementia worsened to the point where she was holding her feces and it took three family to clean it up, The whole family pitched in to pay for hospice. There was no other alternative but family.

Op needs to reach out urgently to her parents as well as the tios and tias and cousins. Everyone deserves to know what the stakes are with abulita.
Helpful Answer (0)
Reply to PeggySue2020
Report

If she owns no property, hasn't worked in years, and has no Social Security she has to become a Ward of the State. Unless you are her legal POA or conservator, you are not responsible to provide care or a home to her. Basically, you have two choices:

1) Drop her off at one of her grown childrens' homes and walk away.

2) Bring her to a hospital ER, ask for a 'Social Admit' and tell them her whole story and that you cannot and will not take care of her. Make sure the hospital has all the contact information of her grown children and any other family members she has living her or in her own country. Then let the chips fall where they may. You have to provide for and look after yourself before you can help anyone else, so you have to come first in your life.
Helpful Answer (1)
Reply to BurntCaregiver
Report
PeggySue2020 2 hours ago
State guardianship isn’t immediate, nor is there a requisite on states to file for it. SF is filled with individuals roaming the streets nude who have no idea who the president is or what planet they’re on. And that’s true even of people who do qualify for federal help like ssdi.

Standard er dumping rules don’t apply. Grandma is out of status to receive either state or federal help beyond emergent medical care. Once she is not emergent, hospitals don’t have to keep her. As no rehabs or ltcs can be paid, without family, the discharge option becomes any transitional housing option wiling to take her. The family member will of course be notified whenever she’s kicked out.

OP Is a safety net in ways citizen children will never have to be. If there is no way to keep gramma then perhaps the focus should be getting her home to her own government with its own nursing homes.OP did mention gran was healthy outside the dementia so perhaps with sedation the trip could be managed. One thing I don’t see op doing though is allowing gran to go to a homeless shelter.
(1)
Report
If I were op I would focus on contacting hospices like mission hospice in Redwood City. Non profit. Community focused. Importantly with a palliative care component, meaning they can serve patients not formally expected to die within six months. If youre not in the area, I would still call them up and ask them for references where you are.

As op did say gramma was healthy outside of dementia, there may be a longer term in which returning to the home country might be explored. If it’s Mexico, they have elder healthcare just as America does. Yes, you won’t be able to visit often but she will be taken care of by a home. Not one individual with no formal help.
Helpful Answer (2)
Reply to PeggySue2020
Report

You can't afford a care facility for her, and she likely can't go back to her home country - or can she?
Perhaps you can afford medications that will subdue her. Talk to her doctor if she has one. At this point there's really nothing much you can do. She planned for this stage of her life very badly. But if you can keep her sedated to make your life easier, I would give that a try.

You can make some calls to Hospice providers. They might have some cost options for those who can not afford services and are ineligible for Government Medicare or Medicaid (MediCal in California). Even if you have to find a way to pay for services, Hospice would provide strong medication which might keep your grandmother knocked out.

I'm so sorry your grandmother has made this your problem.
Helpful Answer (3)
Reply to CaringWifeAZ
Report
PeggySue2020 19 hours ago
I Suggested hospices too, especially the community based nonprofit ones that may have scholarships for these services. I would talk to immigration groups in her native language for references.

It doesn’t sound like komboucha can work and now things are getting violent with the alternative to keeping her being homelessness as opposed to…a home. The latter here will not be possible and frankly i would be surprised if granny’s homelessness was yet a serious option. It seems like the best of all bad choices might be for grandma to remain where she is, but sedated.
(1)
Report
Komboucha, is there no more bio family whatsoever? Or is it more like there are but they don’t want to get involved? Where is your parent that is her child? Where are the tios and tias? Your cousins? Call them up and remind them that if the family doesn’t help, abulita could be homeless especially now that she’s gotten violent. Undocumented used to use the phrase “nada para ti” decades ago when referring to benefits they weren’t eligible for. The retirement plan was more than just you. Where are your parents?
Helpful Answer (3)
Reply to PeggySue2020
Report

You might want to contact an official in her home country to see if she can be transported there and taken care of. You need to protect yourself at this point.
Helpful Answer (4)
Reply to JustAnon
Report

So your grandmother does not have a greencard? If she does, how many years has she been here since getting her greencard?

You may need to talk to an Elder lawyer or Immigration lawyer. Seems to me its not safe for you to have this woman in your home. Maybe she needs meds to calm her.
Helpful Answer (6)
Reply to JoAnn29
Report
PeggySue2020 Jun 4, 2026
If she’s only on emergency medi-cal, she is way removed from green card status. She is probably out of status entirely. California being a sanctuary state won’t call ice on her but won’t help her.

Perhaps the goal here is to get grandma a liquid prescription of Seroquel and Ativan that can be put into her food. Er workers would rather tack on a couple of refills so as to see her later rather than sooner.
(2)
Report
See 2 more replies
Kombucha, I’m sorry you’re in this very difficult situation. Thinking of you. Update us if you can.
Helpful Answer (5)
Reply to SnoopyLove
Report

Try taking her to the ER and telling them her behavior has changed and she might have a UTI but is refusing care. Don't tell them she has dementia since this is not considered a medical emergency. Make sure you tell the discharge planner that she is an "unsafe discharge" -- that you cannot care for her safely. Then ask to talk to a hospital social worker about getting her a court-appointed guardian.

Maybe the hospital will do a social admit (5150) and keep her hospitalized to try to medicate her so that she isn't so agitated and aggressive. But if she doesn't have Medicare or Medicaid... not sure the meds will be covered.

I'm so very sorry you've been put into this situation. If you find a solution please come back and tell us since you're not the only person to post about this dilemma.
Helpful Answer (9)
Reply to Geaton777
Report
PeggySue2020 Jun 4, 2026
Medi-cal has paused new enrollment on federally ineligible noncitizens on hold, meaning no skilled nursing or in home help or anything other than emergencies. It may well be that she will be discharged to a homeless shelter once she’s stable and deemed non emergent if you’re not around to care for her. If I were op I’d have an understanding of whether that’s the case before attempting an er drop off.
(0)
Report
See 2 more replies
California has paused new applications to medi-cal for federally ineligible noncitizen groups, which means either selling the house if she owns it to pay for memory care as it seems she is beyond the point of being able to return to her home country.

I would call Area on Aging (211; 311) and immigration groups to verify what happens if a federally ineligible noncitizen is left in the er. Would they just stabilize her and call a cab to a homeless shelter?
Helpful Answer (2)
Reply to PeggySue2020
Report
Kombucha Jun 3, 2026
She owns no property, hasn’t worked in years. Nor has any social security
(1)
Report
Ask a Question
Subscribe to
Our Newsletter