She lives with me in NC. Due to her diabetes, I have my mom on a meal schedule, count her carbs, test her blood sugar and give her insulin, and make sure she takes her medication. I have healthy high protein, low carb snacks for her close by. She is prone to UTIs due to her urethra not closing at all, and poor hygiene, and pressure sores because her arthritis makes it painful for her to walk so she will not move around enough, and fungal infections because it is a struggle to get her to bathe. My mother will raid the refrigerator at all hours, drinking a couple of glasses of milk at a time, eating a quart of yogurt in one sitting, etcetera, which sends her blood sugar soaring and all that sugar feeds the fungal and bacterial infections that she is prone to getting.
There is absolutely NO money for a decent nursing home, though her doctor says its getting to that point because she is so resistant to following medical advice. My mom is dead set against a nursing home, and with the lack of funds I can only imagine the sort of place she might wind up. It is getting to the point where if she doesn't comply, the doctor might take steps to take that decision from her. So, is it ok for me to install a lock on the refrigerator to keep her on track for her health? I have tried talking to her, explaining about drinking too much milk and overeating, and she would just snack and eat all day long and get no exercise if I didn't keep my eye on things.
I do have to work, and when I am out of the house ,all bets are off. There is no money for any sort of home health assistance, so I really need to keep her from raiding the refrigerator when I'm at work. I really cringe at the thought of locking the refrigerator but I need ingredients on hand to cook for us, and if I don't prevent her access to it, there is no controlling her blood sugar and helping to prevent the subsequent infections that come from it being too high. Another concern is that when I tell her that her blood sugar is too high, on occasion, she has gotten her insulin from the refrigerator and given herself 60 or 90 units to bring it down, and I am concerned about that, though lately she's been forgetting how to fill a syringe, so that's not the danger it once was.
When her doctor mentioned a nursing home, she got better about regular meal times and bathing, and for about a week, that's been ok, but the snacking continues and I'm having trouble steadying her blood sugar. I'm hoping with a few more weeks of regularly scheduled meals 3 times a day and a couple of low carb snacks, her urge to snack incessantly will stop. She eats when she's bored, and spends all her time on the Internet, so if the Internet goes out or she gets confused and can't remember how to log in, she gets bored and just eats and eats. If we could get her a new prescription for reading glasses, she would read books when she can't get online, but with her blood sugar up and down so much, new glasses would be useless because her vision changes from week to week based on her blood sugar and its effect on her eyes.
I feel like some sort of monster for even asking about the legalities of locking the refrigerator, that seems like such a horrible thing to do. I just don't know how else to keep her on track with her meals and blood sugar control and now that she's afraid of a nursing home after her doctor spoke to her about that two weeks ago, she is more willing to be compliant with her treatment but the snacking is a long ingrained habit.
I lost my grandfather to uncontrolled diabetes. His kidneys failed and dialisis is not fun to watch and him going blind wasn't fun either.
We could not store other foods because she would get into them either to eat or put her hands into it all and the leave them opened. After she ate raw bacon and company desserts at random that needed to set, I moved all other food into a garage refrig.
One good idea that you can do is have a spare fridge in the garage (if you have one) and keep all of the perishable food in there along with her insulin.
Tip:
Having spare appliances in an alternate location will require you to keep that area locked.
* It's not hard to find used appliances at private sales or even a thrift shop at times. You can also run an ad in your local newspaper or even check the current ads for used appliances.
You can also use a spare deep freezer (that's not plugged in) for staples requiring no refrigeration. You can put a lock on spare appliances, and keep healthy snacks for your mom in the main refrigerator that she currently raids. When she realizes that she can't get to anything else but the healthy alternatives, she'll eat those if she's hungry enough.
Another thing I thought of is to look into daytime activities that your mom can participate in such as bingo or other social activities. I know what it's like to be bored and alone, and yes people will start snacking in those conditions even when they're not hungry. Obviously your mom definitely needs more social support than she's getting, or she wouldn't be acting like you're describing. If she was engaged in some kind of activity to actually keep her busy, she wouldn't need those snacks near as bad as she does now. Again, to some point I really do understand what your mom is feeling and what she's going through when it comes to boredom and loneliness.
* If she's home alone with no one to socialize with, there's your problem.
The solution
Perhaps you know someone who lives near you who could come in during the time your mom is alone and sit with her. Remember though, it must be someone you can trust. Perhaps you can make some kind of arrangements with someone, it's really not that hard.
If you put yourself in your mom's shoes, I think you would understand if you tried staying alone with nothing to do for long periods of time. Until you've been there, you really won't understand.
* It really does take someone who's been there to fully understand, so please take it from someone who lives alone and is often bored, and trust me, you too would also find yourself snacking under such conditions. I've been there, I really know what I'm talking about since I've also snacked excessively. I may not be diabetic, but I know what it is to blow right through all the snacks you just brought home just because you're bored and alone. Believe it or not, many people go through this very same thing you're describing, look at the obesity epidemic especially among our youth. Since technology has taken over our society there's less physical activity than there used to be. People don't really exercise as much as they used to because they've become couch potatoes hiding behind a screen. Even all of the TVs and modern homes have tempted people to just plop down and watch a movie, and with that movie comes some kind of snack often one right after the other. This should give you an idea of what society has become. What I have to say gives you a look into today's world and a look back at what we used to be like. We can take back our society one household at a time by incorporating physical activity back into our lives once again. Taking back our society starts with us, because no one will do it for us. Taking back our society starts with our desire to turn it around and actually acting on that desire.
I would worry if you had someone there with her who told her she couldn't eat what she wanted, she'd take the frustration out on the caregiver. Assisted living or board and care might work as long as they understand healthy eating for a diabetic. Adult day care, with lunch, might work for her too.
I agree, your Mom is showing more than just natural aging signs. It could be diabetic related. If she is eating the wrong things when u are working, she could be showing signs like Dementia. Can't remember if its too much blood sugar, too much insulin or low blood sugar but the can become loopy, for a better word. Seems like your doctor is on board with the nursing facility. Might be time to see if you can get Medicaid and place her somewhere. She then will be monitored and you can go to work knowing she is being taken care of. You can visit often. Your health will eventually suffer. If she is ever hospitalized, that will be the time to place her in a facility.
You mention that your Mom is bored. There are Senior Centers and Adult Day Programs that are income based. I don't know where you live or I will be glad to look those resources up for you. There are also programs in every state for in home care...call your Area Agency on Aging to find out how to have your Mom assessed. There will likely be a wait list but at least you would know that she will eventually get services. In the meantime, adult day programs and senior centers provide a healthy warm meal, socialization and activities for older adults...hopefully she would be engaged in something other than the TV and food and that would be a better quality of life for her.
By chance was your Mom a veteran or married to a veteran. There is a program for war time veterans and their surviving spouses to assist in paying for care in the older years.
Hope these ideas help! Sandra
Um. What are you going to do when she can't manage as well as she is currently doing? Will you be able to get help lined up ready for that time?
You got a lot more advice than that -- because as caregivers we can empathize with what you are going through and we'd really like to see your life improved.But your attitude that you're "stuck with it" and that there is a "reason" why every suggestion for change won't work means, I think, that you are indeed stuck in the situation. Could you get unstuck? Oh sure, but not with your present attitude and belief system.
That's OK. You are entitled to any outlook on life that you choose. You think your mother did her best and now you can do your best. Your life, your decisions. But I sincerely hope that you can accept your limitations gracefully and NOT go into the black hole of guilt.
It is hard to not try to control what they do when we know that it would be better. But we do have to remember that they are adults and inside feel that they are the same people as they were when they were younger. In some cases if you did things like lock away food, the person could become destructive. I don't know if that would be the case for your mother. There is so much that we just have to play by ear.
I find it better with my bull-headed mother to approach her at her level. If your mother wants treats, buy some of the sugar-free jello snacks or similar things that may satisfy her cravings for sweets without adding a lot of extra sugar.
If nothing works, it is something you can't control and you'll have to make hard choices -- to continue to keep her at home while she goes downhill or to get professional help for her. It worries me that she sits in her chair all day without bathing and with bed sores, but I know you can't make her do what she won't. My greatest concern here is for you. You happiness is being totally consumed, along with all the food in the refrigerator.
It sounds like you and I are about at the same point on this downhill ride. I am personally ready to say "Enough! I have to get my sanity back."
In your place, I would move her out. If she's actually capable of taking care of herself (except she won't), I'd move her into whatever little senior apartment she could afford on her own income, and I'd tend to her minimum needs at her house. I'd stop preparing nutritious meals altogether for someone who refuses to follow the meal plan and snacks indiscriminately the rest of the time. I'd make sure she took her meds, check her over for injuries and worsening of symptoms, and leave the mess behind me when I walked out the door.
Your mom has put you in an emotional prison of guilt - I cleaned your diapers so now you clean my urine and feces. The difference is that a child doesn't know any better and had no choice on being brought into the world. Your mom KNOWS better and can DO better and chooses to be non-compliant with her entitled attitude and disrespect for you, her daughter. My heart goes out to you, because you've got quite a burden to carry with your mom. I couldn't do it and wouldn't wish it on anyone else.
She keeps very odd hours, and due to her diabetes, really needs to be on a regular meal schedule. Without that, and with her raiding the refrigerator all the time, her sugar has been out of control. That leads to fungal infections and UTIs and her refusal to get up and walk enough leads to pressure sores. Her doctor told her that to avoid a nursing home, she has to be on a regular meal schedule and go to sleep around the same time every day and bathe regularly. I have gotten her to bathe regularly by telling her that no, I will not help her log into this or that program until she bathes. Her refusal to use pull ups ... to be honest, a good deal of that is that she doesn't care that someone has to clean up after her. The way she sees it, she changed the diapers and bathed five babies, so one of them can clean up after her now. She actually shorted out her old power chair with urine, and now wants another power chair. I told her if she gets a new one, she has got to wear the pull ups and pads inside them and change the pads as needed, and if she doesn't do that, it will be back to a wheelchair. She can walk, but she has an extraordinarily low pain threshold and walking hurts her arthritic knees so she refuses to do anything but the bare minimum. When I say low pain threshold, her doctor was lancing a skin infection to drain it and she passed out cold, and when she has blood drawn, she gets faint at the pain from the needle prick and someone has to hold her arm or she will jerk away from the needle. This is not something new, she's been that way since I can remember. She has always refused PT because they focus on her walking, which she won't do. She won't take pain killers because she thinks they will damage her liver or kidneys, depending on the pain killer in question. I tried to point out that she is 84 years old, and being with less pain and possibly doing some long term damage might be all right in terms of quality of life. I spoke to her doctor about a PT consult, focusing on helping her with what she needs help with and will actually do ... she has got to be able to stand up and sit down with greater ease, and get in and out of vehicles.
I know that she can do for herself, she simply refuses to in a lot of cases. She can cook, she can wash dishes, she can bathe herself, she can dress herself. After a recent doctor visit in which her doctor mentioned a nursing home, due to her non compliance, she agreed to a regular schedule. So she gets breakfast, lunch, and dinner at the same times every day, and an hour before breakfast she bathes and then I watch her take her meds and I test her sugar and give her the appropriate amount of insulin. So things have improved except for the refusal to wear pull ups other than at bedtime, and the snacking. Her doctor scared her with talk of a nursing home, and she's been far more cooperative since then. Getting her bath ready, doing her laundry,taking care of her meals and meds, and mopping the floor are what I do to assist her. She folds and puts away her own laundry and does her own dishes when I put my foot down about it and tell her I am going to turn off the computer until she takes care of things. While she likes to go out for rides and to get her hair done, and to lunch, she is not really interested in socializing with people her own age. She prefers her online communities from which it is difficult to pry her away for more than a few hours. Until about 8 years ago, she was an avid gardener and belonged to a gardening club, but as her arthritis got worse, she stopped moving around, and once she got online, she got out less and less and has been in a pretty rapid decline since then. She doesn't need constant care or supervision. On good days, about three hours spent with her all told, with a few minutes here and there throughout the day checking on her and reminded her to elevate her legs, mop the floor, fix whatever she's done to mess up her computer, etc. Days she has appointments, a lot longer.
My mother was never "mother of the year" ... always short tempered, always quick to spank or worse. Of her children, I'm the only one who has any tolerance for being around her, carrying on a conversation, taking care of her because my siblings have long memories and do not forgive. My attitude has always been that she did the best she could as a mother, whether that best was dreadful or not, so in good conscience, I should do the best I can for her. Where we live, I am her de facto caretaker and can be held liable for neglect so there is no moving her out to anywhere but a nursing home and she will not hear of that. I'm pretty much stuck with her and trying to make the best of it.