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Absolutely do not quit. You will need the money for when you can't or don't want to work any longer.

When my mother declined I took a few months off under the Family Medical Leave Act. If you want to do that to get her affairs in order and to arrange for long-term care, I think that would be okay.

A nursing home would probably be best. When my 91-y.o. father in law arranged for in-home, 24-hour care for his wife who had Alzheimer's it was $20K a month. The caregivers mostly sat around looking at their cellphones or studying, if they were students. It was all-hands-on-deck when she had to go to the bathroom, and then back to the cell phones or studying. In a nursing home there might be some opportunities for socialization and I think the staff would be better equipped to handle incontinence issues, but that's just my guess.

Also, you can get her on Medicaid in a nursing home. Maryland only allows Medicaid in nursing homes, not home care. Do research on it online and you may need to contact an elder care attorney to arrange for her asset protection. If you don't do asset-protection and Medicaid, and you continue to work, as you should, long-term care will be really expensive.
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Wondering if a home health companion for mom would help you during your working hours? Sounds like you are exhausted doing both jobs. Working could be a source of accomplishment, self fulfillment and socialization for you —and an outlet for you to grow and plan for your future. Full time caregiving brings its own set of problems. Take care of you properly so that you can take care of Mom. Don’t give up your life entirely if you can avoid it.
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Its your choice where your priorities and your NEEDS lie. Loving a loved one, and giving up one's life for them are different things - especially when they cease to recognise us. Can you get a period of respite for both you and your sister, and see if you can look at the problems from "the outside" whilst you are not under pressure.
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It may be time to move your mother into a long-term care facility.

If you decide to quit your job, don't before you have a written agreement in place with your siblings about your financial support. That could include being paid out your mother's funds. But it should include both current monies, monies paid into a retirement fund.

It is highly likely, that if you go years unemployed, that you willhave difficult finding employment. Plan for that with your siblings before you make this life changing decision
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Lots of feelings of loss & grief - as to be expected with you all now living with Mother's life-limiting diagnosis.

No-one can predict the future, but the known facts my help to make realistic plans. What is Mother's diagnose? What are the time frames?

Is this is a terminal situation? Or a living with an ongoing, worsening condition?

If terminal, is *end-of-life* likely within a short time frame (under 6 months)? If so, maybe you would want to quit (if you can afford to). To spend this time with her, fully focused on her needs & pick up your career later.

But if the situation is more likely to be longer term, it may be called *life-limiting*.

If so, care is required, then more care added, then maybe hospice support, then full-time nursing home care. Folk can stay in their home for differing times, depending on the illness, the care needs, the resources available.

Goals will change along this journey. A goal of *staying home* may change to *staying home as long as is possible*. A goal of *I will do the hands-on care* may need to change to *Myself + Aides will do the hands-on care*.

"I don't want to put mom in a nursing home".

It may be useful to shine a light on this statement & ask yourself the reasons WHY. Do that now.
Many carers become full-time carers, give up their careers, income, own housing & then face poverty & homelessness if the elder does need NH care. I admire their compassion & caring natures but the lack of a wider view or practical matters is a real hazzard.
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First, what resources will you have for your own old age and retirement? Log into Social Security website and look at what you can expect to receive at age 70 if you quit now. What will you have to suppliment that amount?
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my2cents May 2021
Keep in mind that the $ SSA shows you can expect to receive at age 70 - that is assuming you continue to earn the same wage until that time. If you resign now and, let's say, don't work for the next 10 years, that is a lot of -0- income years to become part of your average wages. Too young to do this, in my opinion.

The other thing to consider is your mental approach to work right now. You are freezing up just trying to fill out an application. If you quit now without resolving that issue, applying for a job after you've been off for years is going to keep that 'freezing' up feeling as the way to deal with your stress later on. I would not suggest letting your brain think it was the right thing to do.

Sounds like sis doesn't have a job if she drives 2 hrs a day plus taking care of your mom. Is it possible for mom to live with sis? You could go there on day's off to help her. Can you work from home/any location? If so, sell the house and move closer to sis who will help you and keep your job. You work - can you afford all the housebills out of your salary? If yes, use all of mom's money for care while you're working and let sis fill in as needed before you wear her out, too.
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Dementia can go on for years. If you give up your job now, you might have a really difficult time getting back into employment after she's gone. No work experience for even about 6 months can make or break job offers. If you're talking years, "would you like fries with that" might be your job (actually, even those jobs would not be suitable, as you would be considered overqualified!)

"Seeing my mom decline, the pressure of my job, being a caregiver, fighting with my other siblings to be involved, doctors appointments, just made me unable to think clearly and miss on work/professional growth opportunities---i literally freeze every time I see a job application."

Your mom will continue to decline. There is nothing you can do to stop that. Staying in your job or quitting won't change it. Fact of life. Second fact is you NEED a job to pay for a place to live and food, minimally.

Job pressure is tough, but if you can resolve some of the other issues, it might give you more strength and fortitude to get back in the groove.

One thing mentioned IS going to drain you and WON'T change: fighting with the other siblings to get involved. You're fighting a losing battle. You can't make them do what they won't do willingly. You're using up energy and dragging yourself down with anger and/or resentment. Please put that on the shelf and forget about it. This isn't uncommon. Sad, but it happens. The BEST you can do is let it go.

"Is it time for me to resign? resigning means losing an income, but I feel I will walk out of my work with dignity rather than being that one under-performing worker."

Dignity is NOT going to keep a roof over your head or put food on the table. How can you possibly think you can care for your mother better if you have no income?

As to the care-giving - be sure to thank your one sibling who helps out. She needs your support as much as you need her to watch mom while you work. Just being the youngest and/or single and/or without children does NOT make one the ideal care-giver. Clearly the others are not cut out for it, as they refuse to help. Between you and your sister, you need to find an appropriate place for her.

That said, none of the links in your profile work, but I recall your screenname. One question - does mom speak English? I may be confusing your user name with another, as I only found these two recent postings doing a search:

https://www.agingcare.com/questions/caregiver-regrets-am-i-wrong-for-asking-just-3-nights-a-week-to-sleep-466600.htm?orderby=recent

https://www.agingcare.com/questions/my-lovely-neighbors-and-my-dementia-mom-am-i-overthinking-this-467409.htm?orderby=recent

Based on those other postings, this isn't just about job pressure. You have a serious situation at home and although you took this on with the best of intentions after graduation, you are in WAY over your head.

If she only has dementia, you should find a place that does respite care. NOT a NH, but a care home or MC/AL. She may need medication to tone down the screaming (has she had UTI culture and blood work done? Has the doctor been consulted about her behavior and lack of sleep?) If you can find a place, sign her up for TWO weeks, minimum. A month if you can. When you've had time to sleep, and get focused, see how you feel. You can't think straight or make good decisions with no sleep/stressed.

Most people would rather not put their LOs in a "home", esp NH, but sometimes it's the best for both sides. They have expertise. They go home and rest overnight. They get weekends off. They get vacations. You are one person trying to hold down your career. You WILL need it and should NOT give it up.

If you absolutely refuse to put mom in a facility of any kind, then hire 24/7 help and go stay at the hotel you booked previously. You can't keep going on with this situation as is.

What's better, you end up seriously ill, unable to care for her at all, or her being in a safe place, with care and you can watch over her and visit?
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jacobsonbob May 2021
As a respected colleague told me when I was considering providing care for my parents at home vs a nursing home, "They're professionals; you're not!"
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I understand your not wanting to put mom in LTC, but saying that - placing your mom in an appropriate facility is NOT failure - and you will still be her caregiver by advocating that her needs are met and again being her loving daughter. Your mother is not going to get better, but devolve further into her dementia causing more stress and more exhaustion and more burnout.

Remember - someday you will be an elder and you need to plan for your future now. So I wouldn't quit my job - maybe when you are less stressed and less exhausted you can re-evaluate whether this is the job you want; then make plans for your future.

Placing your mom is not a decision you should make by yourself - even if you and one sister do all the caregiving. Call your siblings and tell them that you are exhausted - that it is time to place mom. See if you all can work on this together. When my MIL needed to go to AL all 3 of her sons and wives worked together - my husband and a SIL looked for the facilities and narrowed them down so the family could make the final selection. They then worked together to get MIL in the facility.

Good luck.
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Don't quit your job. You're exhausted for a good reason. Give yourself grace. You have every right to feel drained. I hear hopelessness in you and I'm so sorry. I would highly consider starting the process of finding assisted living or a nursing home for mom. You won't be able to care for her until the very end. Your mom might also need her assets (house / property) to fund care. Like what others have said, your mom wouldn't want you to give up your life for hers. You sound like a great daughter. A thought...isn't it also loving to put her into a home with professionals that can better care for her? Visit daily or weekly. Give her your utmost care and love when you visit, rather than pure exhaustion and frustration and possibly resentment.
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These next ten years are your peak career years, and important to your future as well as your present. Don’t quit your career, even if you do seek a different job.

I don’t know where you are, but if you are in the US you can take FMLA, family medical leave (unpaid after you run out of paid sick time and vacation time) that protects your job. A month of that, or similar, might help you get some perspective on how you need to proceed.

Starting a new job is tremendously stressful, which is why I suspect you are reluctant to do so now. You have a lot of stress going on now, so it’s not the best time to do something major like that. Try for a break, not an ending.
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I took leaves of absences from my work to care for my dad and stepdad. However, it was definitely not a long term solution. The hands on caregiving will increase. The needs will become much greater and unpredictable in some ways. I would seriously consider finding a long term care facility for your mom. If you enjoy your work...it will truly help you cope with dealing with your mom’s aging and decline. These are just my own thoughts and may or may not be helpful to you. I understand the uncertainty.
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I don’t think that you should quit your job. It’s very hard watching a parent decline. You have cared for her for a long time. It is most likely best for you to look at placement. It may be fearful for you because you don’t know what to expect but you can start by speaking to a social worker to see what your options are.

You can still look after her by being her advocate in a facility. She isn’t going to improve but you don’t know how long you would be away from your job. You do have to look out for your own future needs too.

I don’t think your mom would want you to give up your job and jeopardize your future.

Wishing you peace during this difficult time in your life.
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Please don't become me -- you're far too young.

I've put my life on hold to care for my parents for the past seven years, but that's mostly OK since I wasn't working anyway and still had a couple of kids at home early on. (I'm 60 now.) However, I have no friends where I live, don't let myself get involved in anything where I would need to be there every week reliably, and I rarely agree to go on a vacation. My husband retired a year ago, and thanks to Covid, we haven't really done anything anyway, but now that things are opening up, we'd like to travel and move to another state, but I just can't do it, because literally every time we go so somewhere, a crisis befalls Mom and/or Dad. My husband has been a saint about it.

You'd think from the description above that I'm caring for my mom (Dad's gone now) full-time, but no, she's in a memory care. I cared for both my parents in their house for the two months my dad was sick, and I knew immediately that the situation would never improve and would only get worse. Both my husband and brother suggested we move into my parents' house so I could care for Mom full-time, but I nixed that idea immediately. The memory care place has done an infinitely better job of caring for her than I ever could. I still worry about her a lot and have kept my life on hold, but at least we were able to leave town on short notice last week to deal with a crisis with one of our kids.

Your mom's situation is not going to improve, and it doesn't matter that you don't want to put her in a nursing home. You will simply be unable to care for her soon, because dementia doesn't kill people and she could go on a long, long time. (My mother is on Year 7 of dementia PLUS congestive heart failure.) Ultimately, you will likely have to put her in a nursing home, and then your career will be in tatters when you try to return to it. That's not a good plan for your future when Mom's no longer around.

Your marital status nor your place in the birth order do not require you to sacrifice your life. You have exactly the same responsibility to your mother as every one of your siblings has, and that's to ensure she's safe, fed, and cared for as best as possible. That doesn't always mean staying at home. The staff of a nursing home, especially a memory care, can do so much more than you could ever do alone, and that will add to your mom's quality of life -- and yours as well.

Tell your siblings that the current situation is untenable, and changes need to be made. Stand up for yourself, and don't let yourself feel guilty for deserving to have a life of your own, a job you like, and the satisfaction that comes with those things.
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I have a slightly different perspective: find a combination of the two.   But first, loss of confidence is I think one of the primary aspects to affect career women.   And it does take awhile to recover.   If you quit full time work, recovery of your self confidence will be more challenging.  I speak from experience.

I'm wondering if you've explored part time  or work from home opportunities, either in the same company or same field.   Both would allow you to continue caring for your mother and work at the same time.   Working at home seems to be growing in popularity as a result of the pandemic.   I kind of suspect from what you've written though that this is a firm that requires a lot of interaction and "face time" with other employees as well as management.

Does your company offer family leave opportunities?   If so, that might work for a limited period of time while you plan you and your mother's future.    I'm wondering if your mother's or your financial status can support in home care.  (And for all those who insist that you aren't obligated to financially support your mother, I offer that we're each entitled to our own opinions, and if you want to assist her financially, that's YOUR choice.)

And as to being discriminated against  (and that's what it is) for taking time out to care for your mother, two of the best firms for which I work felt that my going to school at night "interfered" with my own prospects for advancement.   (I was working on my BA.)   Employers can find anything to use as a tool against advancement.
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You are too young not to work; you cannot get paid for caring for your Mom. You are living with her. When we see this happen on forum often the caregiver ends up homeless, jobless, desperate and without a job history. You need to have your own life, your mother having already had hers.
I think that it is time for you, once you know your Mom needs someone 24/7, to consider her placement in LTC so you can continue to work, have a life and a home and a family of your own.
I suggest you see a Licensed Social Worker trained in counseling (often they are highly trained on life transitions counseling.)
This is a decision that is full of grief for all involved, but there is no fix it here. There is no way you can both sacrifice your own life to your Mother and still HAVE a life of your own, and we all deserve to have a life this our one and only go around in life. You are only 33. The time will come when your OWN children will face this same dilemma; would you want them to sacrifice their lives to you? I am 79. It would deeply hurt me to think that could happen to my children, and I have worked hard and saved big to prevent my children taking this responsibility on.
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Your 37 years old, has your current job been so lucrative that you can afford to retire? Read your second paragraph again. Are you considering resigning to look for another job or to become a full time caregiver? The best time to look for another job is when you're currently employed. So do that if you want. You say you love the company you're with, but the demands are stressful, so look for an intra-company position that's not so taxing.

Unless you're anticipating caring for your mom until the very end, which may be an overreach of your caregiving limits, and much longer than you expected, she may need care facility placement at some time. Sometimes a LO will adapt to placement in a care facility more easily early in their disease. Think about it. And what income would you have during your caregiving years?

Having been a caregiver for several, and possibly many, years is not one of the qualities or the experiences a prospective employee is looking for in a resume'. Your master's degree means nothing as a caregiver, but does have credence to an employer...stay employed.
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I think that you need to get a handle on what mom's needs are. Does she need a nursing home for a serious and chronic health condition? She won't be eligible for NH setting based solely on dementia.

Have you considered a Memory Care facility?

Do you have a sense from mom's neurologist what her prognosis is?

How many years can you afford to be out of the work force before it makes it impossible for you EVER to retire? Would your mom want that for you?

When my mom developed dementia after a stroke, had CHF and broke her hip, it became clear that she needed fulltime care.

My brothers and I all had mortgages to pay and no ability to stop working for more than a day or two when there was an emergency. Mom did very well in her Nursing Home...for 4 1/2 years.
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It is time to quit...but not your job. Place your mother in a living situation where she will get the type of care that will allow you to live your best life, and she will be cared for appropriately. You are already staggering under this weight. Act now before you collapse.
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