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I took her out of a Nursing Home to care for her. My mom use to be a Sassy 84 year old going out walking her dogs 2-3 times a day the Mayor of the neighborhood Mom lived next door to me in a rental.then she suffered a massive stroke and is paralyzed on her left side. They told me to prepare myself. Fast forward after intense rehabilitation and then going into a Rehabilitation/Nursing Home (I switched from one to another because of how she was being treated. Put a diaper on in the morning and didn’t change her until bed time if she did get changed earlier then they kept her in bed for the rest of the day. Mom is prone to UTI’s and twice had to be taken to the hospital. I work on the road 2 weeks a month it was very stressful for me. Finally I just brought her home this past September. What a journey… Mom has stroke, Dementia per say, and just remembers everything from the past asking where her pets, my Sister who passed away a year ago, etc. Mom's stroke happened 4 1/2months later. Mom still thinks my sister is alive she says she was her or behind or arguing with people in the hall. The doctors have told me not to correct her re my sister and change the subject due to mental processing it is VERY VERY HARD. I knew it wouldn’t be easy but I am overwhelmed mentally. I went from grieving to caregiver in less than a year. My husband is supportive and retired early to help I do have an aide 25-30 hours a week to help us out. I have read a lot of answers her to try and make me take a deep breath. I don’t know what to do about my feelings I’m angry, sad and cry easy when I’m alone like right now.I have always been the strong one but I feel broken. I could be put my mom back in that kind of place and want her to thrive somewhat normally being in a loving setting. My husband says I’m in positive denial. that she has dementia. Mom is only mean towards me or yells at me. It breaks my heart to pieces for we were BFFsim just so sad. are there meeting groups for this. Do I need to talk to a shrink? I always say a bad day just last 24 hours and then you start all over.thank you all for letting me rant.

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It may or may not be dementia -- not that it matters. The results are pretty much the same. Differences are that with dementia, the decline continues. With a stroke, what's done is done and they don't (generally?) decline further. That's what my husband's doctors have said about him and the effects from his two strokes. Regardless of all that, this is truly a grieving process. And it is not linear. We revisit the various steps of grieving over and over. Acceptance is tricky, but important. Hang in there.
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Reply to Zookie
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So sorry to hear this. Yes you are suffering from the emotions of loosing your mother in a sense
I think you should speak to your doctor about counselling
and rant it all out some more!
maybe a temp course of anti depressants or something to help you cope might be in order
fur long term arrangements I would say you have reached all you can cope with and I think it’s time to release your mum
check up on her / speak to new card places on your concerns
buu I t I’d say that is the correct route fir you now fir your health sake
wishing you well
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Reply to Jenny10
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Dear Rosie118,
I hope it felt good to "rant", as you say. I would call it expressing your feelings.

Yes, the stroke killed brain cells, and depending on what areas of the brain were affected, will show different cognitive symptoms. It is vascular dementia.

Absolutely you would benefit from talking to a therapist, who can help you find a healthy perspective.

My husband, too had a massive stroke, after a series of mini strokes. It's been 10 years, but in the earlier years he had impeccable memories of everything pre-stroke; people's names, places, but had completely lost any short-term memory.
If one of his sons stopped by to see him in the nursing home, he wouldn't remember seeing him. He might ask for something, then 5 min. later ask for the same (or the opposite), and not remember at all what he just asked for.

He would ask to go see his mother or his brother, who both died years earlier.

It is very sad to watch someone we are close to go through this change in their mental state. It's like a whole different person.

I've been caring for my husband at home for 9 years. He has never been violent or mean (still isn't) but he is confused and scared when anyone gets close enough to touch him. He is non-cooperative for diaper changes, yelling like he's being tortured. He grabs or hits my hand away when I attempt to wash his face or any part of his body. If he gets hold of the washcloth, he will throw it to the floor. If he gets close enough to the bowl of warm water, he will knock it over.
It's a fight. Everything is a fight. I'm so tired of fighting my husband, whom I love very much, every day.

And it makes me sad that he now no longer sees me as his wife. If I remind him, he shakes his head, makes a face and says "no". He refuses to allow me a hug or small kiss on the cheek.

I cried a lot in the first years. Now, less often. This has just become our new normal way of life.

It is physically and emotionally draining every day, caring for someone as you are. You are right to seek out support. Give your husband a hug and thank him for his support :) Something like this can strain a lot of marriages.

My advice to you is: Take breaks, get away for a while.
Get to know the new person your mother has become. Try using humor, get her to smile or laugh at something silly. Don't take it personally when she seems mean to you. Instead, try and find out what it is she is trying to ask for, and can't. She is probably very frustrated and trying to express something, and it won't come out properly. That Sassiness is now on overload, with no impulse control to temper it. Try directing her attention to something else, more cheery, and less contentious, Offering a snack, or a tv show, or a walk outside.

And keep us updated as you go through this. We've all been angry and sad and frustrated! Allow yourself those feelings, but don't get swallowed up in them.
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Reply to CaringWifeAZ
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I’m sorry you are having to deal with this. It is hard to see the changes in our loved ones & even harder when we are living with them. That being said, I appreciate your efforts to try to take care of her at home. My mom had vascular dementia due to a stroke. She lived with my sister & brother-in-law. It was very difficult. On one hand, we’re glad we kept her at home, on the other hand we’ve had to put my dad in a nursing home after 5 years & see that side too. Yes, some nursing homes are horrible. But there are some pretty good ones too. They may not take care of our loved ones like we would, but toward the end, mom wouldn’t even let us come in her room without throwing things & yelling. If we would have placed her, she did well with caregivers, etc. & she wouldn’t have been so angry all of the time & maybe we could have gotten a little bit of a relationship back with her too. No one can tell you what’s the best thing to do. Only you know your situation. But just something to think about. It’s the last thing we wanted to do with dad, & the NH we placed him in would have been one of the last I would have wanted. It has had a bad reputation. They recently changed ownership. We have been pleasantly surprised. It’s not perfect, but they do a pretty good job & treat my dad well. My sisters health was suffering (mentally, emotionally & physically) after being the primary caregiver for both our parents. Even with our help throughout the week it took its toll. He has adjusted well, my sisters health is improving & we can take turns & be with him most days & love him & make sure he’s getting the care he needs. So don’t rule nursing homes out.
It’s a good thing you are doing. But make sure you are aware of your physical/mental limits & take care of yourself too. It takes balance, their health & yours and that balance is different for everyone. If your health (mental & physical) is spent, then will you be able to help your mom?
There are groups for general dementia, but also groups for vascular dementia that could help you too. Teepa Snow has several things that were helpful with our interaction with mom. A lot of free help, but then we decided to pay & have a consultation with her company too which gave us more help. You are definitely not alone!!
I hope you are able to find the help you need & be able to take care of both your mom & yourself in the best way for both of you.
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Reply to Ltracy
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You've likely read on this forum tons of warnings to not bring an elder back into your home for all the reasons you now deal with; sorry to be blunt but this is where you start to do what's best for your mom and yourself, your family. If you can place your mom in a facility where she is safe, well cared-for, and you can visit her to remain her daughter this will ease stress on all of you. Bless you for stepping up all this time, but reality requires simplicity and facing facts. You cannot change the progression of dementia/old age; because we humans now live longer than even our recent ancestors, dementia crops up for almost everyone as our lives wind down. It is not abandonment to place an elder in a safe space where professional caregivers take over; life is for the living, and comfort care is for those who are gradually transitioning out of this life. Sad, but true. Adjust to the facts and you will be more at peace, better able to handle your stress.
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Reply to Santalynn
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Hi Rosie. I also had a terrible experience in a nursing home. My mother lives with me in my home and I needed to find care for when I’m unavailable to care for her. I found some small residential group homes that care for only 5 or 6 residents. They are not advertised and are actual houses that have been made into facilities for our loved one. Go on your state’s website for licensing and you will find that it’s public to see if they passed inspections. It gives their addresses and phone numbers. They are licensed and legit and a total god send. I take my mother (also had a stroke and now dementia) to this place for respite care when my husband and I go on vacation. I’m so sorry you are going through this. Feel free to private message me if you want to talk.
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Reply to Candyhayu
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Your experiences are similar to mine. It takes great patience. Look up the Demensia Society of America. They have a free booklet called the "Big Umbrella" and a Q&A Zoom on Monday evenings. Typical speaker is Tami Anastasia, who also has a book with lots of ideas. Small lies and redirection are valuable tools. If I'm asked where many years deceased parents are, "I haven't seen them." Or "they didn't tell me where they were going."
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Reply to MikeinTexas
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Dear, many of us here sympathize with your transition into this season of life. The thing that has helped me the most to find some resemblance of peace has been daily prayer. Every morning when my feet hit the ground, I say a prayer and ask for God's Holy Spirit to fill me with the strength, endurance, patience and wisdom that I'll need for that day.
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Reply to jwellsy
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Strokes can cause irreversible personality changes. Dementia is a slow deterioration that affect thinking skills, speech, motor skills plus more. This sounds like a combination. You seem in denial that you will find a place that is 100% perfect in your mind. This includes your ability for your in home care. Seek counselling on the guilt factor. Seek to find a care situation that will be need to have (certain aspects of imperfect care) vs nice to have certain care. You know that you cannot do everything perfect at home.
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Reply to MACinCT
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If you work on the road 2 weeks a month, does your husband take care of mom during that time?

Dementia is dementia, whether it came from a stroke or not, it will progress and worsen over time. If you are already overwhelmed, caring for mom at home long term is not doable imo. Even with an aide.

It sounds like mom was in a SNF for rehab, not for long term care. Rehab is a different kettle of fish than a long term care arrangement, so changing an incontinence brief infrequently is more common in rehab as well as being left in bed after PT is finished.

Llook into a good long term care Skilled Nursing facility for mom where you can be her advocate and see to it she's cared for properly, that's my suggestion. Seeing a psychiatrist isn't going to change the fact that you're responsible for moms care 24/7/365. A therapist may give you some coping techniques to use, but at the end of the day, another one is coming up that's the same or worse than the one before it. Such is the nature of dementia and massive strokes with paralyzing side effects. A person doesn't get better from that trauma, only worse, with more strokes likely to happen in the future, unfortunately.

You have to take a realistic approach here, imo. To upend your life and your husband's life and retirement like this is a LOT. Your lives matter too.

Best of luck to you.
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Reply to lealonnie1
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So sorry for all of it. My mother also experienced a huge stroke, in her case it took every physical ability but left her mentally intact. It remains the cruelest thing I’ve ever witnessed. She could not sit up, roll over, use her arms, swallow more than puréed food, most speech, nothing. I tell people I lost my beloved mother twice, once when the stroke took most of her away, and again four years later when she mercifully died. By the time of her death she couldn’t eat or talk at all, likely having had more strokes. Sadly, the mother you had is gone, replaced by someone you don’t really recognize yet. That’s causing you understandable sadness and tears. It’s also overwhelming to deal with around the clock. If it becomes too much in a home setting, it’s okay to look for alternatives. Don’t judge all places by the one that wasn’t good. My mom’s huge care requirements could never have been accomplished in her home or that’s exactly where she would have been. We were blessed to have her in a nursing home that provided competent and compassionate care throughout. It’s important for you and your husband to guard your own health and financial future. A healthy, whole mother would want this for you. Getting counseling is never a bad idea, this is a lot to handle on your own. I truly wish you peace
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Reply to Daughterof1930
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I am so very sorry.
Welcome to the Forum, where really we don't have any other answers than what you already know and understand within yourself. If you stay, you will feel less alone. That's perhaps as good as it gets here.

I know that you understand that there are times when taking on this task many caregivers actually do die before their loved ones. We have seen that here and we have seen spouses pass and we have seen people broken by this care.
It can literally kill you, or shorten your life, and it's my feeling that your mom, who was your best friend, would not want this for you, having had already a good and long life.

You have not asked us any questions. So really, it would be wrong of me to attempt to give you answers. You have to make your own decisions for the life of yourself and your husband.
No one can do that for you. I do believe that you know that your mother needs now the care of several shifts with several people on each one.

In your care you have changed who you are to your mother.
You are no longer her DD or darling daughter. You are now the caregiver, the decider, the one who sets all the limits and frustrates her in not having answers for her in her confusion. You are not making her life better, and may be destroying your own, imho. But I understand you do not feel you can face what long-term care is in all its imperfections.

Again, I am so very sorry.
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