My mother tries my patience on a good day but I usually manage to stay calm....failing that I go to my car or garage and scream
Today is a scream day. Firstly she doesnt want me to go out this afternoon for something I have had planned for 6 months. I will be out 90 minutes and providing she goes to the toilet before I go and they lays on the bed no harm can come to her.
So 10 minutes after me reminding her we were having lunch at lunchtime she decided to soil herself royally, followed by the words you cant go out if I am like this all day. Now if she hadnt added those words they would have come to me all on my own but BECAUSE she added them I started to wonder.
Then she said she felt sick and didnt want any lunch - but when I came in very quietly (OK yes I was spying) there she is stuffing her face with biscuits and cake which I leave by her side. She has been awake just over 4 hours and I have been in to speak to her chat wash clean her soiling clean the room 14 times which I think is pushing your luck really.
So what has she just done? Asked for coffee so I made her a latte just as she likes it and she now wants sugar in it - has NEVER taken sugar in anything. Then there was too much coffee in the cup - its dispensed mum it is always that amount.....well its too much Ive always thought so
I could see her fidgeting so I said lets get you across to the commode mum. I dont need to go there ...well I think you do... wasnt gonna happen. I came back in 5 minutes later and despite her reluctance I got her up and here we go again she wet and soiled herself in front of me. You wont be able to go out this afternoon you'll have to ring and cancel.
As I count 1 to 10 and find it needs to be 100000000000 I count to now.
Hmmmm OK lets try my theory. I went out of the room and 'made' a phone call. I know she could hear what I was saying because I was stood right by the door and I spoke louder than usual. When I finished my call, I waited a while then went back in. And what did she say. I feel much better now you could have gone after all
I havent told her yet but I havent cancelled I spoke to the phone not to anyone the other end so at 5pm I AM GOING OUT SCREEEEEEEEEEEEEEEEEEEAAAAAAAAAAAAAAAM
Whats your screaming point?
I pray for grace. I pray for patience.
Another screaming point: when she badgers me with personal remarks she knows will upset me. Yes she has dementia. Yes, her brain is broken. So why does it feel deliberate?
Peace
And I am chuckling as yesterday, I actually said "No." in a calm voice and continued on with what I was doing. And here is the rest of the story....
So, I have not been speaking to my mother for 5 days now (other than a Good Morning this morning), and leaving the "Do NOT bother me" sign on my door.
Yesterday, as I am madly going through a cleaning/straightening streak in my bedroom/office which has been a disaster for a very long time, my mother shows up in front of my closed sliding glass door, mouthing words I cannot hear. So I open the door and she asked do I have a few minutes to talk to her..... I pause, look around the "everything strewn everywhere", the full garbage bag of shredded paperwork, and I turned back and said "No, I don't have time." and closed the door and continued on.
And more of the rest of the story, 5 days ago was her 93rd birthday, I had reserved a table for 6, for mom, me, and 2 granddaughters and their boyfriends. But of course, mom was not ready when I got home to pick her up, was in our one bathroom, spraying a full can or two hair spray which immediately started choking me up... and yelled at me "Don't make my day any worse than it has been!" [Oh my gosh, what??? watching TV, playing the computer game, playing with her 2 adorable and sweet dogs ]. to which I turned around raced out back to the car and waited another 20 minutes. She enters the car, stinking to high heaven of hairspray and I roll down all the windows and drive (race?!) to the restaurant 15 minutes away, and everyone has been waiting almost a half hour for her, and I let her out ( just a few steps to the outside tables where everyone is), and...... wait for it..... I drove back home, fed the dogs, fed the cats, opened the bathroom window (it still reeked), loaded up with food items, a big glass of wine, went to my room, made signs for the door and the sliding glass door which said "Do not bother me.", closed and locked both doors and pulled the curtains of the sliding glass door, settled into bed with my computer and Netflix and had a great time!!! Meanwhile, the one daughter accused me of being "SH*%$Y" and has not talked to me since, and I have not spoken to my mother since. [Of course, my mother over the past how many years, has talked negatively about each one of my kids -and everyone else in the family - to me, for which I let her know clearly she is NOT allowed to do, and that I will not listen.]
And, in 4 days, I get to fly to visit one of my dear friends for 5 days, so I will not be having any conversations with her before I go, either! BECAUSE, mother has no empathy (no one with NPD does) and can NOT be happy for anyone, so I totally won't let her spoil my enjoyment anticipating my trip!!! Yes, today I am happy!
Then not.
If I didn’t say something, my mom would never bathe, wash her hair, wash her hands, or take her meds. At this point I have to help her do this, but before I got involved in her personal care, she rarely bathed or washed her hair. Now her scalp is in such a mess I don’t know if I will ever get it cleaned up. It’s embarrassing. I have to fight her to get her clean - every single time. And every single time she tells me she doesn’t feel like taking a bath. That’s her excuse when she doesn’t want to do something.
She has a bad cold now with a bad cough and I gave her some decongestant cough medicine earlier in the day. I wanted to give her another dose at bedtime. She took the cup in her hand and set it on the nightstand. I said “go ahead and take it”. She said “I will when you leave.” To which I responded “I’ll leave when you take it”. She says “I don’t have to do what you tell me”.
I lost it!!! Here my husband and I have opened up our home to her and doing our best to take care of her and she acts like we are always trying to poison her.
Of course there are many, many things that led up to this episode, but it was the proverbial last straw!!
Thanks for that suggestion. I guess you could make all the choices on that trip. . .
You may not be able to physically get away but you can mentally take a break.
Put this heading in the search box;
If you could escape your caregiving duties, where would you go?
Then lock yourself in your room for a few minutes, close your eyes and "go" where you desire.
No, it's not the same as going but it's a good diversion. Bon voyage.
This must be the most challenging situation (caregiving a dementia sufferer) that I can think of. It would try the patience of Job.
It's normal to feel anger and frustration (especially at the end of the day). It's how you handle it that matters. I've tried to remain calm, doesn't work when she's screaming at the top of her lungs that I'm trying to kill her. I've tried "stuffing" my feelings but that doesn't work when she insists on pulling her pj's and diaper off and is peeing on the floor. I use the intellectual approach (their brain is broken) but it backfires on me when she throws her sandwich at me and screams and shakes her fists in my face. All my resolve is lost as the night time pills go shooting out of her mouth, across the dining room table, hitting the wine bottle. (Time for another glass of Cabernet-for me!) I just can't answer the same 5 questions 50 times a day (each) without it getting on my last nerve.
We're only human. Check out the previous posts for some good screaming locations. My bed pillow works for me.
Good luck. 😕