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Such guilt we place upon ourselves! I agree with cwillie and the rest who are all so very tired of the constant demands that being good caregivers require of us....I helped my dad ( now 88) take care of my mom who died 2 years ago from Alz. and my main reaction to her death was one of relief! Not only for myself, but for both my mom and dad. She was 92 when she died and she had been so very sick for such a long time and as caregivers my dad and I were simply exhausted, especially my dad. Being a good caregiver basically means you have NO life of your own...very few have anybody else in the family who is willing to give the primary caregiver (PC) the help he/she needs....although it seems that non-caregivers sure do tell you what MORE you should be doing or that you're doing it WRONG....I'm just going to say it bluntly, as someone who has 'walked the walk'.....IT IS NOT WRONG TO HOPE FOR SOMEONE TO DIE....The wonderful people (on this site) who take on the responsibility of caring for someone are coming to this from a position of LOVE, because only from this position of love could we all do this day after day, year after year and at great physical, mental and emotional cost to ourselves and WITHOUT thanks or help. To all of you who are still actively caregiving...Bless you! Lindaz
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Patticake, I think a lot of it is the desire to relieve ourselves of the never ending burden of caregiving. I've got to say I feel much more kindly disposed toward my mom since she is in a NH, when she was still at home her death would have been the key to my freedom, a terrible double edged sword.
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Hi everyone. This question keeps going around my head. I read somewhere on this site that just because we have a thought go through our head it isn't bad. I mean every morning I wonder is this the day or when I come home from leaving mom will I find her dead? I think it is called anticipatory grief? It isn't I want her dead... it's just I wonder how I will react?
I feel bad each time I clean her room I mentally rearrange the furniture for when she is gone. Now how awful is that???!!! I mean for crying out loud. What kind of daughter does that?
Mom has taken over my dining room because she can't do the stairs. I have a breakfast area but I miss my dining room. Just saying that sounds awful! I mean when mom took care of her mom they put on an addition with my uncles money. She also had two other sisters to help. It's just me with my husband and daughter. Well, there I said it all. Thanks for listening. I've erased this several times but I'm not going to this time.
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Reply to Patticake2
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I don't blame you for feeling the way you do. Being around someone so negative will make you negative too.
There are stages of COPD. Is she in the last stages yet? Is she on constant oxygen? Death may come faster than you think.
Maybe the hospital will suggest you put your mom in an aging care facility.
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Kind of random response. Haven't seen this question for a while. But I remember being a teenager, maybe a little older , when my dad told me about the day his dad died. I didn't know him because I was 2 when he died. Anyway, my dad said he was at the hospital when his dad was dying and he said "mo ( my nick name from him). Notre Dame was on and it took so long for him to die. I wanted to watch the end of the game". I know that sounds so callous and mean. My dad was under 3O when his dad died. No dementia but severe alcoholism. My dad was a very kind, social, intelligent guy. That did sound terrible saying that about his dad, but he was also only human and had endured a life of disappointments and turmoil because of his dads alcoholism, and I guess he was just being honest with me
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I so understand! Oh, do I so understand! I swear, the narcissism is so thick! God forbid my husband and I ever get to live just a few of the years that my mil was lucky enough to live- before she suffocated me and my husband.
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Thank you very much cwillie. Something for me to think about. I'm just getting resentful and unhappy because I'm putting her first . That's my choice and something I need to rethink. Thanks again for posting
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Erin, my mom is well beyond the point where she can voice an opinion, but even when she was more with it she was never they kind of woman who fought against the current. Several years ago I thought I had no choice but to place her in an NH and her response were a few tears and "whatever you think is best". As close as my mom and I were back then I would have never completely given up my own life on her say so, once I entered my caregiving years I made the choices that seemed sensible for both of us.
The IL/AL you have found sounds lovely, and you say it is affordable too! Change is always scary, but I know that is exactly what I have planned for my own future. My opinion is that most people wait too long to make the change, it is so much better to make the transition when you are young enough and well enough to participate in the process and still independent enough continue to participate in what you enjoy from your former life.
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Cwilllie if you don't mind would you explain how you got your mother to accept the move to a nursing home? Mine is quite content to sit here watching tv all day. Sleeps with her door opened,and tv on all night. She has zero desire to do anything else . I think an independent living situation would be much better for her and for me. The place I've looked into allows small pets. There is 24 security. The average residents age is 84. She'd be a youngster at 79. Most people there do have memory loss, but still function independently. The place offers so much. Weekly trips to casinos, art exhibits , etc. it's beautiful and affordable. There is also an assisted living part of this place for when the resident would need that. I just know she would hate it because she has been with me for 20 years. I'm kind of living in purgatory. Any suggestions would be greatly appreciated.
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That is true. I've been thinking less of myself that I really can't figure out what to do. She has herself hoarded away in her house. Her family doesn't care about her -- kind of sad. She doesn't have any friends, since she pushes people away. The only thing she has in the world is a daughter who would rather be anywhere else. It is really a sad world that she built for herself. It is a bit like a fort. I don't know how people get this isolated. I see old people out and about all the time. The only place my mother will go is to church and out to eat. There is one thing to the strategy -- If she watches TV all day long, it lessens the chance that she'll fall. Plus it doesn't take a lot of energy, so her battery stays full longer. A sad effect is that the people on the TV become her family and friends. She told me the other day that the Waltons were like family now to her. I wonder if John Boy and the others would like to help take care of her. :-)

I left her alone today and went out to enjoy some time eating and visiting. Social contact always helps me to feel better. I was never meant to whither away in a fort.
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Reply to JessieBelle
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That doesn't sound like an exit plan, that sounds more like an "I'll know when the time is right I hope it doesn't come to that" plan. That's what my plan was.
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Yes, I have an exit plan. My hands are tied, though, as long as she can do most of her ADLs and is determined to die at home. I can either stay or leave. Hiring caregivers or maids won't work because this is HER house and she won't allow anyone in. So I'm left with the legal and moral question of leaving her alone in her house or toting the heavy load longer. If I knew it would be one year, I could do it. But what if it is 10? It would be easier if she weren't so emotionally abusive.
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JessieB, as much as I hate the idea of my mom in the NH and as horrible as it was to finally make that decision it has truly been remarkable how relieved I feel to have finally laid down that burden. I don't recommend waiting until your psyche is as fried as mine was before you are forced to act to save yourself, do you have an exit plan?
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Yesterday was a tough day. There were two separate people who told me how lucky I was to still have my mother. These people were being nice, so no harm was intended. But their words hurt. I wish people wouldn't say that because they don't know what the caregiving child goes through. I don't feel lucky at all.
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I relate to many many of you. I was walking to work today thinking about last night. My mother decided that the individual packets of dishwasher detergent were candy. Nice shiny wrapper, the promise of a sweet. She tried to open the wrapper with a spoon. Needless to say she couldn't. I watched in disbelief as she finally took a scissors to open it. I asked what she was doing and she didn't answer. I waited, thinking she was just opening it for ? reason ( dishwasher was empty).
When she got it open she took her finger and wiped the detergent and licked it off. At that point I grabbed it out of her hand. I told her it was detergent. Then without missing a beat she went into the cabinet , took out the marsala cooking wine struggled with the scissors to open the top, wouldn't let me take it away. She got it open and began swigging it from the bottle! My mother doesn't drink ! I tried to get the bottle away from her because she was going to become unsteady and fall. She wouldn't listen to reason. I just held the bottle and stopped her from putting it to her lips. My father came into the room and he took the bottle from her, looking completely puzzled. He has short term memory impairment and won't remember the incident.
That said, my feelings are overwhelming. The situation is haunting, harrowing and horrifying. Will I become like her???? Will my children have to go through this scenario with me
( Heavens no. I will tell them to put me away) .
I understand her Parkinson's and her aortic stenosis. But not this behavior ( unless this is Lewy Body dementia). I can care for any other person's parents easily, but not my own. I never understood how the personal component could affect me. I walk with visions of her behavior every day. It seeps into everything I do because it is so unbelievable and I never thought it would happen. I think we should all switch who we are caring for so I can care for your parent and you can care for mine! At least we can stand farther from the fear and horror of this being us in however many years. We could divorce ourselves from the personal nature of the person we are dealing with. It would be much less painful because we wouldn't have to remember better days ( for those of us who had them).
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Annie, perhaps it's because you were "quoting" and not the OP. I don't know what difference it makes - nothing was lost to "censorship".

I, personally, am more curious as to what your impressions are regarding the subsequent posts which point out that nobody can assume just because someone gave birth to you doesn't make them an all loving mother. Some parent-child "relationships" are devoid of an atmosphere where children can have a heart-to-heart with their parent.

Thus, I wouldn't assume that the original poster was self-centered any more than posts of others that set forth just how screwed up parent-child relationships can be through no fault of the child. As a smoker myself, I can sure as hell say that my bad choice is no one's fault but my own.

Generally critical/broad stroke conclusions are what I might expect from someone who has their own unresolved issues.

While my mother wasn't abusive...she was indifferent. And it's that indifference that instilled my own sense of indifference. My mom's quality of life was not mine to control. Her identity revolved around whichever man she was in a relationship with. Now that she's older, alone and in total failing health...There's nothing I CAN do to undo her life choices. No amount of insight, forgiveness or understanding, undoes "you reap what you sow". 

Fact is, my mom is miserable, adrift and disengaged...Nothing I can do will give her a new lease on life...Why would I hope she lives a longer life? Is that a nobler or rather a just outcome? Either way, I have no control over that either - but I can hope.
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Just curious. Is there any certain reason for the discrimination and censorship? I quoted the original poster in my last response (look for quote marks), but some words in the quotes were censored in my last post. However, the same words were not censored in the original posters post. Can you please tell me why my post was censored? I'm not going to continue to use this site if censorship of this nature is going to continue.
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Bless you, Golden23. Mine is 86 to my 60. I'm not sure I can do this until I'm 80. What choice do we have though? I hope you've got many more years of peace in your life.
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Hi Kristen - thx for asking. Yes, my mum is still alive. She will be 105 next month and I will be 80 in late summer. She is bedridden and cannot do much for herself, but her heart, lungs, liver, kidneys, bladder etc are fine and there has been nothing to indicate that she will not go on for some time yet, However, she is now medicated due to psychotic episodes and on an antidepressant as well so her mood is much better than it ever has been and finally, I have some peace. I don't visit her in her alf very often as it still brings up bad memories.
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Golden23, I read your post here from 5 years ago and see that you're still posting. Out of curiosity, is your mom still alive?
If not, how did that transition feel?
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No..not at all an I understand what you are saying as we know no one gets out of this life alive .... an I honestly believe that when it's time why linger as it's not getting better but only worse. Don't feel guilty as you are not alone with those thoughts but rather it's the hardest thing to watch someone suffer an there is nothing you can do...I don't get the suffering part as it's so difficult to get out of this life I guess one can only pray for help from God - we just have no control over how things end but just do what you can an try to do the best even when it's not good enough an know you are not alone with those thoughts!
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Unfortunately just because you are a mother in title doesn't mean you are naturally loving and unselfish. Those type of women shouldn't have the privilege of having a daughter like you,Ali. I am very sorry to hear of your past experience and admire your ability to be objective in recognizing that none of it was your fault. I hope that you find your inner peace through all that childhood chaos because that really is terrible when the people charged with loving and protecting you weren't capable of it.
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Agreed - great post, ali. You said it so very well.
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AliBoBalia, great above post. I agree with you totally. People who say don't live in the past don't really realize that the past shapes the future and who we are today. (hug) to you.
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Just wanted to add -- I'm not wallowing in the past (though present circumstances bring up old dysfunction and pain every week or so...)

The issue is that my mother is still the same person, likely Borderline Personality Disorder or bipolar, and she is capable of being so incredibly hurtful to me at times. I never know when, exactly, that time will be, but when my mother or father is hurtful to me in the present, it does bring up the old wounds, too. Unfortunately. This is the issue. I cannot start from here and treat them as elders who are moody due to old age, because I've never known them to be different. I want all good things for my mother and my father. I can't do hands on caregiving, and that's due to my mother's inability to be self aware about how hurtful she has been, can be, still is to me... and same with my dad. There's nothing wrong with giving the amount of care that one can. To me, that's actually pretty noble. We do what we can, in spite of anything and everything. But I can't try to make the golden years rosy for my mother because "think of how loving she was to me"... because that's not who my mother was or is. She can cause chaos in my heart/head like no one else.

It's a primal pain you have to limit yourself from or you'll keep getting hurt, deeply hurt. People aren't perfect, so we all try the best we can, and we should never judge anyone else's decisions on what they can and can't take. Anyone who participates in this thread is trying very hard to "do right" by their aging parent. It's a different journey for everyone.
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((HUGS)) to all of you with traumatic childhoods. This job is painful for those of us lucky enough to come from "normal" families, I can't imagine struggling forward with the added ball and chain of early dysfunction. I may never walk in your shoes (thank god), but I respect your right to complain about the inevitable corns and callouses life has wrought.
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(((((ali))))) I'm so sorry...
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The rage... my mother knew nothing of my struggles when I was a child/teen.  I didn't trust her to tell her anything. There was one time I had to walk home because a child molester took me to his home (I was easily seduced with a little bit of attention and a promise of some beer at 15 yo). I was a virgin. I knew, at some point, that what he was expecting was something I wasn't ready/couldn't/wouldn't do. I ran out the door and walked several miles back home. It was Wednesday night, church night, and my mother met me with slaps to the face and such anger, such rage, that I had screwed up HER evening. I never told her what happened. I never told anyone. Then there was the time I was raped by a known felon/criminal when I was 19 yo. He wanted to carjack me, take my mother's car that I was driving at that time, being home from college for that summer. I talked him out of taking HER car. That's the only thing that mattered to me. My body didn't matter to me. I was nothing. After somehow extracting myself away from him, this felon, this criminal... I made the police report and had a hospital exam... and then I went home to my mother's house. My mother cornered me and hit me in the face repeatedly, and finally I told her what had happened, and I was so ashamed. And she told me "THAT'S WHAT YOU GET" for being out late.

She learned this hateful way from my maternal grandmother, I have no doubt. I'm just sorry that both she and my aunt, her twin sister, couldn't fully break from the pattern of abuse they both endured, and were hurt by, so much in their own youth.

With parents like mine, who needs enemies? :-/ I don't feel sorry for myself but I'd be a complete fool to think they can truly change their ways at this point in their lives. I have to keep a healthy distance for my own sake because despite what their actions have said through the years, I DO matter.  My life does matter.  I'm entitled to relative peace and pursuit of my own happiness. 


:) Not easy to say these things, to talk about the 'dirty details,' but unless you've had parents who do things like this to you, you can't understand what some others deal with, the very best that we can... ya know? Thing is - people think my mother is a relatively nice person, and she is. That's a part of her, too. But I experienced the horrific rage and physical abuse that she can dish out on me, her only daughter.  I still struggle to find the boundaries with her, and figure out how to prevent her from being destructive to me in the present while I maintain some type of relationship with her.  I don't if it's truly possible to do both -- have the boundaries and have a loving relationship.  

If you judge me for needing boundaries with my mother, a safe distance from her or from my abusive father, I would ask that you live my life and see if you can be the angel/saint/martyr that I can't be.  
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Oh cm, you nailed it. If I had done to my mother what she did for me... There was no safety, security nor love in all those years. There was ranting and raving, blaming and criticizing. Our home was a place of continual strife and you never knew when the next blast would be or what it would be about - often something very innocent. I remember the extreme anger, the rage my mother blasted me with when, as a preteen, I didn't wipe the kitchen table properly. I was trying, believe me, I was trying to do a very good job.
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That's the point, Annie, most of us will not get to where they are as they have life long mental health illnesses/narcissism that we do not have. I have also known older people who are delightful people, right in to their 90s despite physical illnesses. If you have not lived with/had a parent who was a narcissist or a person with a personality disorder you can't possibly understand a person who has.
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