My mother is one of the most miserable humans on Earth, and has been for years. Whenever anyone has asked her "How are you doing?", for as far back in my memory as I can reach, I can never remember her saying "I'm fine". Now she's smoked herself to death. She has COPD, CHF, steroid-induced diabetes, a colostomy, osteoporosis, bone spurs in her neck, neuropathy in her limbs, brittle skin that tears at the drop of a hat...the list seems endless. She refuses to get out of bed to try to exercise to keep up any strength, and wants me to do more and more and more for her.
She's in the hospital right now because of a fall last week. She says her knees gave out.
I don't think it's so horrible that I just want this woman to finally have some peace, and yes, honestly, for the rest of us around her to have some as well. The discord and disharmony this narcissist spreads with her always ALWAYS negative attitude takes a toll. She will never change, and her health will only continue to go downhill.
I realize that I don't get to make the decision of when she goes, but I will admit that I do want her to. I think it's the only way she'll finally be "fine".
If she's not ready for a nursing facility.. when she gets out of the hospital, let her stew in that misery on her own at home.
You can also seek a social worker for her... there is a program where they can set up someone to call the parent I believe once a month to chat with them. I have that setting up for my mom.
But you gotta back off.. because it's stressing you to the point that you're wishing for her passing.
My mom's very negative, afraid of the world, judges others & extremely combative & argumentative. It exhausts me so much, I have to get up and leave. If it starts, I'm gone! And I stop talking.
So step away!
Also, try to keep yourself from thinking this way of wishing her to pass. When you get so frustrated with her...leave, get off the phone, separate yourself from her etc., and immediately start thinking good things.. fun stuff you're going to do..or call a good friend & chat to get you out of that mood!
Also, therapy can help. I have never had or needed therapy until now. I have two. Plus I vent to my close friends. I try to handle it with certain strategies.. I shut it down & just stop.... Stop listening.. stop talking!
I wish you well!♡
I am caring for 2 LOs... only 4 yrs now. I remind myself that it is ok to feel trapped and resentful sometimes. And these two LOs are dearly beloved by me - but still not easy. Take care of yourself.
She isn't the only one I've run across in this age range. My suggestion is to get homecare or respite care to take care of them and caretakers take a break!
I understand . I had a lifelong narcissist for a mother . I think you should go ahead and call the ambulance next time he falls . Hospice won’t be much help for the daily hands on care . They only come a few times a week for a few hours . None of you want to get hurt picking him up . He falls in your house , it’s your say to call an ambulance , not your sister in law’s. He needs 24/7 care in a facility .
In case the ambulance does not take him , start looking for a nursing home . Tell the old guy , this can not be handled at home anymore . I hope he can do without the booze .
Maybe 88 is the very common age .
Between my husband and I , three of our parents died at 88 and one at 89.
He has advanced cancer (no longer treating), early Parkinson's and dementia which is getting worse. He fell three times yesterday. My SIL brought a walker up when they came to get him up (I was at work). He hardly uses it. He does everything to sabotage himself, I guess because he knows someone will pick his stupid ass up. He has always been a drinker and has vodka and beer in the evening and, when he is confused about what time it is (like this morning), in the morning.
So, we have been praying for him to die. I have never wanted someone to die before in my life, but here we are. My wife is the same and is actually more vocal about it than I am. So, no...it is NOT wrong to wish someone to die. Either to ease their suffering or to ease our own.
I should add that, since he is not bed ridden, he will likely still be up and down and falling, even in hospice. Her sister objected when I mentioned calling an ambulance after the third fall saying that if there's nothing wrong with him, they would have to pay out of pocket. I spoke with my wife last night and I think we will do just that if he falls again before hospice comes. And then just tell the hospital to make arrangements for him to go to a facility because we can no longer take care of him. The sister won't because she works from home. She was SUPPOSED to be the one to have him, but he drove her bat shit crazy within 2 hours and would not let her alone while she was working. That's how we got him 5 days a week.
I am angry and bitter and am not thinking fondly of my mother because she dumped this on us because they did not trust their kids.
My mother died last year and I’m in year three of dealing with my father’s Medicaid for his nursing home stay. I hate them this. I wish my father was gone already so can feel some relief.
It is pretty awful to say this but that is his how I feel. I have to do this and worry about all this for someone who is not there anymore and is just existing.
They didn’t have this stress with their parents and I resent them for their lack of foresight.
As I watch my MIL disappear from dementia, I find myself wanting that same freedom for her and for my husband and I.
Like many of you, I have a caregiving for my parents backstory that spans years and would take pages to type. But Mom is finally in an AL facility and doing pretty well there.
The good news is I don't have to fill her pill minder, make sure she takes all her meds, make sure she eats, stand outside the bathroom while she showers, help her off the toilet when she is stuck, etc. etc. etc. because there is a care staff and a RN on her floor. The flip side of the coin is that Dad died last year and my estranged sister --who lives 5 minutes from Mom--wont visit and rarely calls Mom, so I am the person who has to do Mom's weekly shopping for incidentals, has to make her numerous ongoing doctor/medical appointments and then take her to them, plus I'm the one who the RN calls and says Mom has a cough and low-grade fever so I need to take her to urgent care immediately to be tested for COVID. And of course, I have to pay all of her bills and manage Mom's business affairs.
Everyday I wake up and feel like managing Mom, her healthcare, and her finances is a prison sentence I have to serve--and it won't stop until she dies. It's difficult to explain to somebody who isn't in a similar situation, but it feels like I'm carrying a heavy rock that is slowly crushing me.
I corrected her and said "no, you want a few things."
It went right over her head.
Either way, I'm not dropping everything to run to the store. She can wait until this weekend.
It sounds like you have reached your limit, there is a lot of understandable rage and desperation in your message. Please try to take some time for yourself, it sounds like you too are the only caregiver and are likely sleep deprived and burned out. I have started to look for support in my area (I am not sure yet what is available), please do the same too. You need time off. Is there any way you can go on a short vacation (even just a staycation in which you can sleep and recover) while your mother is in the hospital and being cared for? It is hard to be always sweet and loving when there is never a reward and the past was not great to begin with. Is there anybody else who could possibly alternate with you taking care of her, or would it be possible for her to go to AL, where trained personnel? We are humans, and caregiving is one of the hardest job. Forgive yourself, and try to find some moment of serenity. I don't know if counseling is an option you may want to try, or if there is somebody you can talk freely too over a cup of tea or coffee.
And, to answer your question, sometimes wishing somebody dead actually means wishing for the freedom that will come to the caregiver when the person is gone. It is not right, but it is understandable and human, as long as, like in our case, it remains a desperate thought. Try to carve yourself some freedom, you deserve it. A hug to you, I hope things will improve soon.
as far as I’m concerned, it’s completely understandable, and the only thing that is really wrong with this is that you felt (again, totally understandable!), a bit odd for feeling this way. A good person feels “wrong” for wanting to be a free soul!
I truly believe that it is perfectly reasonable and appropriate. It is basic self preservation! It is a part of survival, and very important.
I applaud your efforts to this point.
also, *Jenny10* has some good advice about tactics! Changing subject/leaving the room…yes. Coping strategies until she gets into the nursing home! She really needs
that level of care, .
and I agree, please get her into a nursing home. She sounds as though she needs that level of care.
ill say it again 😊
and YOU NEED OUT! But YOU must be your own advocate, really. YOU have to get it happening.
I am so proud of you and your HONESTY!!!
I can truly empathize…So much LUCK and hugs,
and admiration❤️
She actually turned out to be a really nice person and didn’t even ignore to her sad talk- it was just talk?
you could say hey mum let’s talk about something nice-the worlds too sad to talk doom and gloom and change the subject or get yourself busy and leave the room and make tea or something
she may get the hint
that said it sounds like you’ve been coping for a long time and reached your threshold of what you can continue coping with/putting up with
time to explore care options
she sounds like she needs full time care now
your visits will be less stressed to her and you will recover from the caring you’ve done and things won’t seem so bad
is it wrong to feel like you are
no
You’re at burnout and had enough
try and get the. Care sorted out before you spoil the relationship you’ve nurtured so well fir such a long time
you need rest- self care
explore all options of help so that you have some me time
best wishes
I'm feeling especially down and defeated the past few weeks. I'm beyond exhausted and cry a lot. My poor mother has lived with me since 2015. She's now 88, was diagnosed with alzheimers in 2013. It's a brutal disease. I've become so angry and impatient, and I can't figure out why? She's not mean, selfish (well not anymore than a small toddler can be), not abusive towards me. She's just confused and scared. She is eating less and less and just losing so much weight. Doctor says her mind will go and body will follow, well I'm watching it. She just wants me - to hold her hand, or hold her like a small child. But I'm so tired, in pain, just sick of the situation, that I can't stand it, until I finally settle down at night and sit next to her. The rest of the day is a blur, cleaning, laundry, etc.
We were best friends my entire life, I'm 63.
I'm sick at heart, having to watch my beautiful, once so vibrant, mother be beaten down by this horrible disease. She's from France, and is tough, born in 36. She's been through hell already! She doesn't deserve this. She raised us, 3 children, pretty much on her own. I owe her my life, I know that. She's extremely intelligent, a Libra, and everyone always loved her.
I get on that pity pot at times, then look at her and hate myself! She's lost everything. Her greatest fear was always alzheimers. She would hate this.
But she still sits on the couch, smiling as she draws on her paper, smiling at the tv, enjoys her ice cream at night, and looks at me like a little girl, with total trust.
So why am I posting this? Because I'm so alone, and so scared. I hate my anger, don't understand it. I love her, why am I so impatient?
Sometimes I do think it would be a relief for her to just go in her sleep. But at night I always say, not yet, I'm not ready to lose her yet. No matter how much it is killing me. I know I'll never be ready to lose her. I'm afraid of what will happen when the time comes.
I have been sole caregiver, 24/7 for 6 years, no help at all. Before when I worked, I paid someone, even my sister, to watch her when I worked. Now there is no one.
I guess I'm just venting. A little afraid doing that, but I'm desperate enough to chance it. Not sure what I'm asking, maybe just for someone to hear me, and understand.
Thanks to anyone who reads and understands.
My heart goes out to anyone in this situation.
Your mom is beyond blessed to have you.
I pray that you can find some peace, strength and comfort for yourself.
Great big warm hug!
Best to laugh about the situation, once it’s over everyone will be able to heal once and for all.
Maybe at that time you’ll just remember the good stuff, what there was anyway :)
I can’t laugh about it yet. Doubt I ever will. Keep wishing for something to take him already.