Three years ago I went through a divorce after 28 yrs of marriage. About the same time I began caring for both parents. Although they do not live with me, it meant doctor appts, shopping, errands, calls went household problems arose etc. My father passed away last November, but I still care for my mother. I work a full time job which means 8-9 hous a day and sometimes weekends. I am exhausted!. My mother who always appreared to be s trong woman has suddenly become helpless. Every day there is something she needs done. She is unable to or is unwilling to take care of anything. She has begun makingnotes for everything and seems to sit all day looking at catalogs that come in the mail. We have visited several Assisted iving places, but she cannot make up her mind. Yesterday I was called out of meetings because she had plumbing issues. I went by her house after work and tried to talk to her about how tired I am and that we needed to think of a way to get some help because I was exhausted and having difficulty keeping up with her needs, her home, her dog, my job much less my home and dogs. It did nto go well. She took a "poor me" atttitude and said "OK..if you want me to go into the stupid assisted living I will and I will be miserable." Mind you, my brother (who lives in Calif.) and I have purposley not told her that is what she should do beause we know the reprecussions of that. Well, one thing led to another and we had a pretty ugly argument.She left the room and I came home. I don't know what to do. we have aldy come in once a week to clean her home and then she comes back another day just to sit and visit for a couple ofhours. She is from a home care company. I asked mom to let her take her for some blood tests last week which is 5 minutes from her house, and she wouldn't. She seems to only want me to do thes things and frankly I just can't continue to take time off work not to mention how tired I am. I really don't know what to do . She won't discuss any options. I am open to any and all suggestions because I can't go on this way. Thanks for listening.
Could the lady who comes in twice a week come in daily, and do many of the things on Mom's lists? If you were clear that you could not continue to do certain things, then Mom would either have to agree to pay someone else to do them (like this lady) or perhaps consider AL.
She may "insist" that you do it all, but if you politely but firmly refuse to do it all, and instead outline the things you can/will do or tell her the number of hours a week you can devote or in some other ways set boundaries, then she will have to accept it.
Then, I felt so guilty about not being able to care for him myself that I was spending a ridiculous amount of money on rent at an independent living facility and having a caregiver to spend overnights with him there.
I've since put him in a full ALF, but there's still spill over. I MUST work two jobs to support myself and cover what his funds don't, and I find myself constantly struggling with balancing the two lives.
Employers don't take too kindly to me missing work to take Dad to the doctor, so I try to schedule them all on one day so that I only have to miss a day of work. I have no help, so I am the only one that can take him. The ALF has transportation services, but between Dad's COPD and dementia, he's not competent enough to go alone.
I secretly feel relief on the days that he goes to Adult Day Care because I know he's occupied. Otherwise, I get calls about how anxious he is or how he's not doing well which wreaks havoc on my concentration. As we speak, I am neglecting a work project because I can't concentrate because I just got one of THOSE calls.
So, what do I do? Drive 45 minutes to pick him up and take him to the ER so they can run a battery of unnecessary tests only to tell me that he has had a panic attack (again)? I called his psychiatrist at the VA, but it could take the better part of a week for her to respond.
I feel angry that my productive day has been ruined... that the lunch I was enjoying with my coworkers was brought to a screeching halt due to Dad's health... that leaving work will mean me not making yet another deadline at work... that taking him to the doctor or the ER will mean that I will have to cancel a much awaited hair appointment...
Then I feel guilty. I'm sure he would much rather feel better. I'm sure he's scared. So what do I do? I'm worthless at work right now and taking any action would mean missing a hair appointment or more work for something neither of us can control.
Is it bad for me to PREFER to work? I'm 39 years old.
Then I got a new job and I could no longer take off to take him to the doctor. He figured out senior transport and taxis. Don't get me wrong he had alot of 'last minute' doctor visit he desperately tried to get me to leave work for but I refused. He didn't want to use the taxi because he wanted someone to sit in the waiting room with him. I don't have the luxury of that kind of free time. Even things I did have to attend to I put off until it was convenient for ME. Can't tell you how many "the end is near" phone calls I got saying he wanted to see me "One last time". Despite the fact I saw him a few days earlier. I didn't fall for it.
Figure out what you can do and that is all you do.
Tinyblu, I totally understand.... all those sleepless nights worrying my phone would ring that someone had fallen. But I bet my parents were sleeping soundly with no worries. Then the next day at work I was lucky not to fall asleep at my desk. My brain was worthless half the time.
So, back to the enabling. I was afraid to say "no" as one doesn't do that with ones parents. I didn't realize I could say "no" until I found this forum a couple years back. Oh how I wish I could get into a time machine [move over Sheldon] and do things differently.