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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
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Since no-one has rushed to read this, I’ll give some details. It’s the most interesting thing I have ever read about finding a solution for AZ!.
The medical team was investigating a family where kidney failures were common and found a DNA variant, one extra letter in a gene called MUC-1. “How can a single extra letter in the DNA lead to so much trouble?”... “We found that the mutation in the MUC-1 gene is generating a mangled, misshapen mutant protein that does not go to the surface of cells, but instead accumulates inside …. cells because of another molecule, a so-called cargo receptor”….
“This mysterious kidney disease was not so strange or mysterious after all. In fact, we learned that it belongs to a group of disorders collectively known as toxic proteinopathies. You may have heard of some of them, all terrible, incurable diseases like ALS and Alzheimer's disease”.... “We are finding that the same may be true for different misshapen proteins accumulating in cells in the brain, causing some forms of Alzheimer's disease”. Cargo receptors may be able to “grab and accumulate misshapen proteins in different cells and organs in the body”. And clearing them may solve ‘rare’ genetic problems that in total affect 10% of the population (including me and my daughters with scoliosis and marfan body type).
This “newly uncovered biology is operative in a form of blindness called retinitis pigmentosa, which is caused by a different misshapen protein accumulating in cells in the eye. In preliminary studies shown here at TED for the first time, here is a mouse I cleared of mutant protein”.
I wasn't able to access the transcript so I clicked on the video. But then she started to get all technical and my mind just sort of drifted away....☁️
For sure the new genetic research is fascinating, even identifying genetic markers is revolutionary.
It is great news if some forms of dementia (and rare genetic conditions as you mentioned) could be treated as the researcher is hypothesizing. I certainly hope so! It would be party time! 🎉🥳 🎈
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
The medical team was investigating a family where kidney failures were common and found a DNA variant, one extra letter in a gene called MUC-1. “How can a single extra letter in the DNA lead to so much trouble?”... “We found that the mutation in the MUC-1 gene is generating a mangled, misshapen mutant protein that does not go to the surface of cells, but instead accumulates inside …. cells because of another molecule, a so-called cargo receptor”….
“This mysterious kidney disease was not so strange or mysterious after all. In fact, we learned that it belongs to a group of disorders collectively known as toxic proteinopathies. You may have heard of some of them, all terrible, incurable diseases like ALS and Alzheimer's disease”.... “We are finding that the same may be true for different misshapen proteins accumulating in cells in the brain, causing some forms of Alzheimer's disease”. Cargo receptors may be able to “grab and accumulate misshapen proteins in different cells and organs in the body”. And clearing them may solve ‘rare’ genetic problems that in total affect 10% of the population (including me and my daughters with scoliosis and marfan body type).
This “newly uncovered biology is operative in a form of blindness called retinitis pigmentosa, which is caused by a different misshapen protein accumulating in cells in the eye. In preliminary studies shown here at TED for the first time, here is a mouse I cleared of mutant protein”.
A genuine WOW which should upset nobody!
For sure the new genetic research is fascinating, even identifying genetic markers is revolutionary.
It is great news if some forms of dementia (and rare genetic conditions as you mentioned) could be treated as the researcher is hypothesizing. I certainly hope so! It would be party time! 🎉🥳 🎈