I moved my mother into my husband's and my home in November of 2005. She had fell at home and broke her hip. She was not able to live on own any longer anyway. This gave us an excuse to move her into our home. She was a very independent woman before the accident, but things have changed in the last few months.
Her short term memory is not good at all any more. She can not wheel herself around the house any longer.
She just got out of the hospital back in June about a 2 week stay with a blockage in her colon and then she contracted VRE. That is not fun to have in the home. I felt so sorry for her.
I am starting to have crying sessions it seems like every other day anymore. I do not see my mother any longer I see a person declining quickly. I am feeling overwhelmed and I don't think my family sees it. I have told them I need to get away for a few days, but that never seems to happen. No one has time to watch or be with mom except me. I am the only child so this is all on my shoulders. Her brother is not any help they have not spoke in several years now.
I do not know if I am just going through a stage or if I am starting to get depressed. I am with mom almost 24/7 except when a homemaker comes in daily. A person can go to Walmart just so many times to get out of the house. I seem to have lost my friends because I can not get together with them anymore.
This on-line discussion is a life line for me. This way I can communication with people and see how they handle different things that come up in their caregiving also.
So if anyone has advice please let me know how to get myself under control.
Losing Control
I am so sorry to hear you are having such a rough time. I feel many here will identify with your feelings.
A few months back, I was feeling like you do now. From posting my feelings and listening to feedback, I feel like I have my sanity back.
One of the things I decided to do was put myself in her shoes from time to time. It at least helped me to be a little more patient. I also started changing the way I did things. Like, if the Velcro is driving you crazy, get snaps. When she is picking at her nose(dry skin) I ask if she wants her lotion. Or ask if she put her lotion on today. It tells me when she is nervous or anxious.
I am going to take a risk here and say something that I pray does not offend you, but hope you take a little time to think about. When people make deathbed promises it is a very emotional time for all concerned. And maybe I am getting into semantics here, but taking care of someone does not always mean living in the home. Sometimes it means to find the best place for your elder, making sure they are very well taken care of in a facility. Or finding a respite facility where she can go a few days a month and give you a break.
Possibly we have to make decisions based on the here and now, and not back then. Guilt is a feeling that is preceded by the way we think about things. Healthy guilt tells us when we are doing something that is not right.
The kind of guilt that leads to resentment, is not doing anyone any good.
You just sound so overwhelmed and am so glad you told us the way you are feeling. Feelings are not right or wrong, it is what we do based on those feelings that are healthy for us. We all need time away to regroup, breathe, cry, laugh, and kick a post.
I can feel how overwhelmed you are and I know how hard it is to get it together long enough to make a healthy choice. But you have done this much, and it sounds like you desperately need a break.
Just try to do one thing for yourself everyday. Take a walk when it gets too much. I go outside and look at the sky, listen to the birds, watch the baby calves. I realize I have a near perfect place to do these things, and am very grateful for that. But if I were stuck in the house, I would turn on the radio and dance, sing, and get my mind off things just for a few minutes.
Think about some of your options to saving your health and sanity. I found when I was trying to think of things to do to keep from going crazy some of the anxiety was gone because I wasn't so focused on the things that upset me.
When we are feeling this way it is so hard if not impossible to have empathy for how miserable our elders lives have become.
I pray you get some relief soon.Thank you for sharing how you feel. Take care of yourself and let us know how you are doing. God Bless
This has all happened so fast, our minds are still in shock. Now we're having to face the fact that I don't believe we'll ever get to bring Mama home and I can't bear that thought! I think we're just all living some kind of pretend life and when the reality gets too close . . . the tears and panic starts!
I lay in bed at night and think and think - but, it does no good. I try to figure out a way to bring Mama home, but my sister says that it would be too expensive. I was injured a couple of years ago and can't lift or pull so I'm not of any good to help with the physical duties. My sister can't do the physical part either. She thinks that we would have to pay someone for round the clock care. I think we could come up with a little over $3,000 a month for help, but she says that won't be enough.
When I talk to Mama, I forget sometimes about the dementia and for a while, it's just a regular conversation and then suddenly she'll ask if I've talked to Daddy today and then it's like someone jerks a rug out from under me! Daddy has been gone for over 10 years now. Sometimes she has a nurse call and tell me she's ready for me to come and get her and I fumble for words. All I can come up with is that we can't come and get her until her doctor releases her. Other times, she thinks she's been at home and wants to know when I'm coming as she's been cooking a roast all day. It hurts so bad! We play a fantasy game and I smile and laugh with her and we pretend to add food to the roast, etc., but there's no roast! Sometimes I feel like I'm falling to pieces, but I can't let Mama see or know that. She's always been there for me and now I feel like I'm letting her down, because I can't find a way to bring her home!
She's been at that place since early June and I wonder if she realizes that. Sometimes she'll tell me that she's never been in the hospital this long before, but I don't really know how long she thinks she's been there. And the worst part is, when I visit with her and it's time to leave and I kiss her and wave goodbye and then have to walk down that long hallway and out the door where I smell fresh air!! The guilt is overwhelming! I went out to eat a couple of weeks ago and as I was eating, I realized it was something that Mama loved and then suddenly I couldn't swallow. The holidays come and go - the sun shines - life goes on and seems to drag me and my sister along and we both feel so guilty we can't stand it! I ended up in the hospital a couple of months ago and it was stress related - but, I can't find a way to get rid or deal with the stress. If I think I feel bad, all I have to do is think of where Mama is and I could beat myself up!
I'm so sorry that all of you are having such struggles too. I do want to offer something I have learned. We were told by attorney after attorney that our Mother's house and assets would be going to medicaid to help pay for her care at the rehabilitation home. Of course we heard all about the look back period, etc. However, after some praying - I found an "elder" attorney which is different from estate attorneys, etc. Through him we found that because social security finally decided because of my injury a couple of years ago that I'm eligible for disability social security - I then became a "disabled" child (even though I'm an adult) which qualified me to be able to receive my mother's assets, cash and quit claim deed to her home with no look back period or penalty. This was all done even with my mother in the nursing home. He also filed through the VA and there is money because of my Dad being a veteran (even though he is deceased) to help pay for her care. So, please check out all avenues before giving up your parent's assets to the government.
In reading your posts, I see the strength - emotional and physical that it takes to care for your loved ones. Maybe I needed that to realize that it is impossible for me to be able to bring Mama home and take care of her. But, I still can't help but wonder if I'm missing some way some how that I could get help for her at home. It would mean so much to have her home! On the other side, I remember my prayers over the years for Mama to not worry and have happy memories and then I realize that even though Mama is in a nursing home - at times, she thinks she is at home cooking and taking care of her loved ones - so maybe, God in His mercy has blessed us more than we realized!
Thanks for listening! I'll be checking back to see how everyone is doing! God bless each and every one of you!!
I'm so sorry to hear about your situation. My mom isn't as bad as your mom yet, but I don't look forward to that day either, so I don't envy what you are going through. It's going to be hard when I do lose my mom so I can totally sympathize with your situation. I just wish you lots of prayers and hope you can find a way to bring your mom home.
I love my parents but this is just not working!!! My daughter and I moved from Florida last year; my parents moved too because they couldn't afford mortgage payments and lost their house. (My dad was working a lawn maintenance business, but stopped doing it because he's to out of shape and he had 2 minor heart attacks that he didn't even know about)
I work and pay the bills, and my job doesn't pay alot so I never have any money. I know that I sound selfish posting here with everyone else having medical problems with their parents, but this is stressful too. I feel like my life is over and I'll be sitting with my parents for the next 15 years watching Wheel of Fortune.
My older daughter (that lives in Florida) is going to have a baby in June...I'm so excited!!!! I'm looking for a job in Florida and my youngest daughter and I are trying to move back so I can be close to my grandson. My parents are trying to guilt me with "what are we going to do", "how can we live", etc. I told them they could come back to Florida with us, but they want to be in North Carolina so I told them to get a place of their own. I feel like a terrible, horrible daughter.
My parents go to Ohio to see my brothers 2-3 times per year, so I don't think that they are as broke as my dad says. I think he wants a free ride.
I have a sister and three brothers, but they are no help.
Ok, I'm done. I feel better. I'm thankful for all my blessings, that my parents are still here and I can spend time with them. Thanks all for listening.
Thanks
Last night I spent a long time writing the biggest vent, and was kind of embarrassed about it. But it didn't post, even though I had logged in first. Phew! My husband said, "Some things only your computer should know..." lol
Sandi, thank you for your kind reply! It truly means a lot!
Lisa, sounds like you're on the right track!
Anne . . . I know what you mean about the venting and writing! LOL! Sometimes, it just feels good to let it all out . . . even if no one else sees it. But, if you want to talk - as you can tell, there are friends here to listen!
Thanks for the tip about elder attorneys. You found a good one, and thank God were able to save assets for yourself because of your disability. I will have to remember that, as I have a disabled son.
Everyone, be very careful to check out the elder attorney or estate attorney. Ask for references, as you would anything else. You, Angel, found a good one and got what is due to you. God bless you and your family. Thanks for the encouragement and please keep coming back to the site. We all need each other.
Carol
I moved my parents here over two years ago from Baltimore I live in Ga. I have a brother who lives in MD about 1 1/2 hours drive from where they lived and he hadn't been to see them in 10 years. When I lived in N C I would go up at least every 3 months and it was a good 8 hour trip. I even brought them down for a two week vacation. Now mind you Ihave never had a great relationship either of them but I knew from the time I was a little girl I would always have to be there and there is a lot of stuff inbetween these years that needn't go into. Well soon after I brought them here and Ihad everything ready I knew they only made a little bit of social security to live on because neither of them ever wanted to work they want the good things in life but don't want to work, well I'm so sick of working I could just throw up. Anyway this May Dad will be dead 2 years so I had some time with him 8 months and it was a good thing I brought them here. I got them HUD houseing reduced electric, food stamps etc the apartment was two bedrooms and very nice and the land lady had their rent down to 109.00 a month they had inspection every three months, which my mother hated which meant she had to get off her ass and do something. Well she came up with this outrageous story that I investigated that the 87 year old lady next door with dementia was having men in and they played a band almost every night and she just couldn't stand the noise anymore so could she move in with me. Well there was no band i was hoping there was I sure miss dancing and the men were relatives who took turns with their wives staying with the old lady. So mother has moved in with me since then I took her to a hearing doc and had hearing tested, her hearing is so bad she isn't even a candidate for a hearing aid she can't see won't have the cataracts removed and I noticed this week, she has forgotten how to use the oven, can't remember how to use the microwave, plus lots of other things. She is a self centered person always has been and I do get frustrated about two min after I walk into the door. I am two years to retirement and hope I get to make it but I sure would love a respite. I've been working full time since I was 15 and I'm tired of working especially when all she does is sit and If you can find someone to help you that is the best thing to do seems all my life I've been moving my parents to and fro gets old after awhile. If all else fails and your mother is on medicare/medicaid to to walmart for those 4.00 prescriptions I had to have my doctor rewrite my prescriptions so I could do that and I have insurance but this way I save close to 800.00 a year. Since I've moved my parents down here and have been going like the energizer bunny I now have High blood Pressue, 30 % blockage of my heart high cholesterol and take something for my nerves and to sleep and of course menopause, I'm like a walking pharmacy. LOL I take more medicine than my mother but than she knows more than the doctor does so she isn't going to take anything she doesn't agree with him about and it doesn't make any difference what doctor or what state. Also, its my fault she has lost her husband and has to live like this which by the way Ihave a very nice home or should say I had a very nice home until she got so destructive I should have left them in MD. You know what I think thats the first right thing she said in her entire life. Good luck to you. Live your life you have your daughter to think about and these are very formative years for her. don't let her grow up thinking you thought more of your parents than her you brought her into this world love her to death. I hope I have encouraged you somewhat Upward and onward. Neon
Sorry about whining a couple of days ago. I should have typed it and deleted it!!!! Thanks for all of the advice that you gave me. I really appreciated it.
Karen