I moved my mother into my husband's and my home in November of 2005. She had fell at home and broke her hip. She was not able to live on own any longer anyway. This gave us an excuse to move her into our home. She was a very independent woman before the accident, but things have changed in the last few months.
Her short term memory is not good at all any more. She can not wheel herself around the house any longer.
She just got out of the hospital back in June about a 2 week stay with a blockage in her colon and then she contracted VRE. That is not fun to have in the home. I felt so sorry for her.
I am starting to have crying sessions it seems like every other day anymore. I do not see my mother any longer I see a person declining quickly. I am feeling overwhelmed and I don't think my family sees it. I have told them I need to get away for a few days, but that never seems to happen. No one has time to watch or be with mom except me. I am the only child so this is all on my shoulders. Her brother is not any help they have not spoke in several years now.
I do not know if I am just going through a stage or if I am starting to get depressed. I am with mom almost 24/7 except when a homemaker comes in daily. A person can go to Walmart just so many times to get out of the house. I seem to have lost my friends because I can not get together with them anymore.
This on-line discussion is a life line for me. This way I can communication with people and see how they handle different things that come up in their caregiving also.
So if anyone has advice please let me know how to get myself under control.
Losing Control
I have learned that just because someone has dementia it doesn't preclude situational behaviours. It is true there are signs and syndromes attached to most cognitive disorders, but at the same time sometimes the answer is right in front of us. Boredom
Yes, it is always best to get your information ahead of time instead of waiting until the time actually comes and as far as relying on those who do not help with the care giving they are not there 24/7 like you are, you are important enough to do the care giving than you are important enough to make the right decisions as you see the daily decline. Please, do not second guess yourself, think about it put the facts on paper if you have to pros and cons than make your decision and stick to it, if others don't like it they will have to deal with it. If they don't want mom or dad in a nursing home they can feel free to take them out and take them home. That is what I told my husbands sister when we had to put his mom in nursing home so she did it only took her 6 years to decide it was her mother and she shold be the one taking care of her. She is also the one we split wood for and drove to another state and delivered it free of charge and couldn't even send her son out to help my husband and son unload it and we didn't even get a thank you but we know that mom was warm for that winter anyway. It takes all kinds you know what kind you are and so do I or you wouldn't be hurting the way you do, if you didn't care it wouldn't hurt. God bless all the caregivers and those we care for God sees and does not forget. Trust in yourself, God trusts you. Neon
Carol
Then when I finally say no I am filled up with guilt and feel bad. I am not happy and need an attitude adjustment. Anyone have any books they recommend that might help?
Signed Tierd of being angry, wore out and running out of tears.
Hang in, we're thinking of you.
Carol
Yes we are with you we know it's hard.
As to cleaning, I can't let it go too long. My Bernese Mtn Dog has what the vets think is an auto-immune disease. He coughs terribly, has the worst junk coming out of his nose all day long. After a bout of pneumonia, he's on very expensive antibiotics (probably forever). So I need to keep the dust and dirt down to a minimum for him. Just one more thing to deal with.
I have the same problem with Mom leaking when she sits down on the toilet, especially now - takes longer to sit with the pelvis break. I throw cheap dish towels over her jeans before we pull the diapers down. And I wash the floor a lot. I'm making Mom put her shoes on as soon as she gets up so she won't slip. When she gets in the shower, I'm always right there so she won't slip. I realize that won't work for everyone but Mom has needed help with getting in/out of the shower for so long, she just expects it now.
I'm not saying to let your house go I mean does it have to be done every day but a few times a week.
My mother was too out of it, one year, to sign her taxes, and I had a POA, so I signed for her. The CPA was fine with that. But then she rallied and realized later and was asking about them. I knew she'd be livid that I signed them as POA - even though it was the only way to get them in on time, so the CPA was kind enough to make a duplicate. I got the "sign here" stickers, and she signed again. He was/is a good man. She was happy and her taxes got in on time. She didn't owe, but still had to file. Whew! What we go through.
Blessings to all of you,
Carol
How is Austin doing? Its funny not haha funny but odd how you connect with each other here and are concerned for one another. I like that reminds me of a good Beatle song Come together I'm a beatles freak. Can you see me at 80 in the nursing home going " Okay everyone tonight we are having a special party called Beatlemania get out them love beads and them peace signs and lets dance "far out" Sometimes I just crack me up.
It doesn't matter if you are an only child or not Only one of us is going to be caregiver I can assure you. there are three of us well I thought there were three of us don't know where the other two are??? funny how that works out but don't internalize too much do the best you can do and the stuff you can't do ASK someone else to do it or use faciities that are available. Have a life God gave you the life, mother and daddy didn't do it by themselves God wants you to do what is right with your life and he wants you to be happy. I hope thesefew pearls of wisdom help (I named the new dog Pearl) LOL Take care and find time for YOU Love and hugs to all Neon
I hate writing about the pain and negative stuff I have to deal with. It makes me feel vulnerable after posting, not relieved. Like I'm a whiner or something. Perhaps I am. I am so blessed in most areas of my life, except to do with family. Dad is OK, but Mom's the hardest. And so is my sibling who does nothing but criticize me. Sad. Thank God for friends and loving supporters! And thanks be to God for providing the love of friends. Since this is a vent site, I did. I shouldn't have to feel "guilty" for that, but it doesn't feel any more comfortable than the pain and burdens I carry in my heart. We weren't "allowed" to share feelings in our family, unless it included anger. So it will probably never feel comfortable to share my true feelings and intimate longings. Only a few safe people hear the whole of it, and only by the grace of God do we find comfort. Sometimes blowing sunshine doesn't fit with the reality of the grief and pain we bear. Thanks for listening, responding, and caring.