I moved my mother into my husband's and my home in November of 2005. She had fell at home and broke her hip. She was not able to live on own any longer anyway. This gave us an excuse to move her into our home. She was a very independent woman before the accident, but things have changed in the last few months.
Her short term memory is not good at all any more. She can not wheel herself around the house any longer.
She just got out of the hospital back in June about a 2 week stay with a blockage in her colon and then she contracted VRE. That is not fun to have in the home. I felt so sorry for her.
I am starting to have crying sessions it seems like every other day anymore. I do not see my mother any longer I see a person declining quickly. I am feeling overwhelmed and I don't think my family sees it. I have told them I need to get away for a few days, but that never seems to happen. No one has time to watch or be with mom except me. I am the only child so this is all on my shoulders. Her brother is not any help they have not spoke in several years now.
I do not know if I am just going through a stage or if I am starting to get depressed. I am with mom almost 24/7 except when a homemaker comes in daily. A person can go to Walmart just so many times to get out of the house. I seem to have lost my friends because I can not get together with them anymore.
This on-line discussion is a life line for me. This way I can communication with people and see how they handle different things that come up in their caregiving also.
So if anyone has advice please let me know how to get myself under control.
Losing Control
Do you think that some of the depression is almost grieving over who your parents once were? I found that I kept wanting them to be who they were. Once I accepted their changes, it seemed that some of my depression lifted. At the same time that I accepted their changes, I began to see my responsibilities different and was able to realize I could not be all things and sought more help.
Mary
It seems that nothing we do is every enough for her, and we're the only ones doing for her (me and my husband). My two sorry brothers don't do anything. She even called one of them to tell him to call her to wish her a Happy Mother's Day. How pathetic. But these are the ones that get the glory, and that's why I have to continue to do all unto God and not man because man will mess you up every time.
Me and my husband have a date night once a week, and she asks as if we need to be home with her 24/7 and I am not willing to do that. I feel that as long as she's being taken care of that's all that matters. I am not going to allow her to disrupt my family outings, etc. As we do need time to ourselves as well.
When she doesn't want to do something then she starts getting upset, and when I try to talk to her about being mobile she also gets upset. I believe that she's being extremely lazy and that she can do some things but just doesn't want to.
I am really frustrated with my Mom at this point.
Please take time out for yourself and don't allow your mother to stop that. My Mom seems to get upset when me and my husband go out, but oh well. She'll just have to be upset. I am no longer going to let her get me upset.
Carol
Carol
When I picked him up, the nurse said "I don't think he has Alzhemeir's he just can't hear.... but, she asked me to sign him out & read everyting... " Why do I have to put up with this. Finally, now that Chris is about to face lung cancer, some people have come over to help... never before just me... but, my cousin after 6 years of me doing this all alone is coming for 5 days... I guess to say goodbye.
Today my father went nuts, I had to put his Chihuahua in the vet so that I could prepare the house (cleaning & everything)... his dog bites everyone & pees & poops everywhere. Chris started wailing that I took his dog away and he has nothing to live for anymore. (I've only known my birthfather for these horrible 6 years). When he 1st got here his wailing was the same about his dead wife. I am now deep in debt & these doctors will not OK hospice because they say at 80, with one kidney, Alzhmerier's, COPD, bladder & ureter cancer, a stint, he can survive the Lung Surgery. So I am waiting until Tuesday when we have the consultation w/ the Thoracic Surgeon to see if Chris is well enough for the surgery & if he wants it. If not, I am going to finally get some help in hospice. In the meantime, I'm afraid his elder rage is getting so bad that he will stab me while I'm sleeping.... my health is really going down & I've lost my health insurance due to not being able to work. I have put my foot down about Pepe... he bites & he has to stay out of the house til I get it clean if hospice comes in... also, my nerves are on the very edge... thanks for letting me vent...
Sulynn
I just can't believe that after all these years these doctors will not give me respite, hospice or home healthcare ... but, if he goes in for the surgery... they'll have to... he barely made it through the bladder surgery. I felt so bad for him & cried ever since I found out about his lung cancer... but, after today, when he turned on me... and then was very nice to my cousin, like nothing was happening... I think I realize that I have been taken for a fool by a lonely old man who wanted someone to care for him til he died... sad but true... manipulating & sad... I am a giver... I am an enabler... and this is going to stop... he will go into a home or I will get help soon ...
Sorry to hear about your dad. I know in some ways it could be a relief that they are not suffering but, in the end they are still gone. It was like that with my dad but, he went fast and was a surprise. My mom is in a bad way right now I feel guilty sometimes because I get overwelmed and frustrated with the situation. I know she can't help it but, the more I try to help her the more she yells at me and is mean to my kids who are just trying to help her. This is a tough situation to be in but, with gods help I will make it through this.
i will keep you in my prayers, one thing that happened when my dad went into his frustrated bouts and yelled at me that helped me, he stated rude comments and said he was going to fire me...LOL - I simply told him he could do that and no I did not have to do everything he wanted me to do when he was going to talk to me in that manner, I could take him to the nursing home if he preferred thier assistance. it didn't stop his frustrated attacks but it defused the immediate attack quickly. I don't know your situation with your mother, but I informed my dad curtly that he had a choice and I didn't have to be taking care of him, I was doing it becaused I loved him. Good luck...
Breakdown, so sorry about your Dad, and your loss. Thank you for your wise words of advice. I will use that ploy concerning reminding Mom (and myself) that when she's nasty to me, that "perhaps she'd prefer a Nursing Home," and that "I don't have to care for her." Thanks for that reminder. It might be a sanity saver, if I can remember the comeback when needed... Sure gonna miss you if you go away. But after Caregiving, I'm assuming there's..........life? I am praying you find some much needed and well-deserved rest. God be with you, Breakdown...
SacrificingDaughter, that "crushing feeling" is way so familiar! I swear Mom's Dementia, that she says she "doesn't have" makes me feel so sick to be around sometimes. It's oppressive and sometimes confusing. Moments she seems fine, and then the bottom drops out of everything. Thanks for speaking what I feel, because it validates I'm not alone, as it feels sometimes.
And Sulynn, God will help you. I can say that because he helps me, but it's easy to forget, and sometimes we feel alone when we forget to go to him. (I do, anyway.) I can relate to what you say "feeling like you're losing it." What an awful emotion to experience. When they say "hurting people hurt people," I think Demented people dement their Caregivers at times. Take care...God is there.
Praying for all of you! It's a bumpy path at times, with jagged turns, and steep inclines. We'll just keep lifting each other up, and praying for health, comfort and strength in the journey. God be with you!
Just had lunch with the little girl I mentor I only have two more weeks of that so than can slow down a bit and not rush around like a crazy person. the next thing will be school again in sept and in oct I will be giving a demonstration on flower arranging for a garden club one town over. that should be a fun thing but don't know what october will bring as don't even know what tomorrow will bring.l I jumped the gun on paying bills and had to call my bank thought a check was deposited yesterday and not until next wed. so will have to juggle this week add that to my many talents LOL.
Stay well my friends, I was very impressed with your posts Jerome, thank you.
sometimes we just need to get out of our own way!
I remember someone posting that it's like dealing with a child again and to try to deal with it as such. Fine in some extent, but what two-year old do you know grabs a knife to end a temper tantrum? Dealing with a child was MUCH easier--you could get their minds off of things with a little fingerpainting or cartoon viewing-- without them repeatedly screaming about someone who wronged them 102 years ago (OK- well, maybe 50 years ago)