I moved my mother into my husband's and my home in November of 2005. She had fell at home and broke her hip. She was not able to live on own any longer anyway. This gave us an excuse to move her into our home. She was a very independent woman before the accident, but things have changed in the last few months.
Her short term memory is not good at all any more. She can not wheel herself around the house any longer.
She just got out of the hospital back in June about a 2 week stay with a blockage in her colon and then she contracted VRE. That is not fun to have in the home. I felt so sorry for her.
I am starting to have crying sessions it seems like every other day anymore. I do not see my mother any longer I see a person declining quickly. I am feeling overwhelmed and I don't think my family sees it. I have told them I need to get away for a few days, but that never seems to happen. No one has time to watch or be with mom except me. I am the only child so this is all on my shoulders. Her brother is not any help they have not spoke in several years now.
I do not know if I am just going through a stage or if I am starting to get depressed. I am with mom almost 24/7 except when a homemaker comes in daily. A person can go to Walmart just so many times to get out of the house. I seem to have lost my friends because I can not get together with them anymore.
This on-line discussion is a life line for me. This way I can communication with people and see how they handle different things that come up in their caregiving also.
So if anyone has advice please let me know how to get myself under control.
Losing Control
I won't ignore you if you stop acting so stupid his tee shirt, my reply If you act stupid I will ignore you!
Would you like service with that? thats my saying when someone asks me a stupid question and my favorite
I have a stupid question ME: okay hopefully I'll have a stupid answer.
People do not care about customer service, I recently ordered something from Blair well not too recently over 2 months ago, got a email stating they rec'd my order, well it still ain't here so I contacted them and told them to keep the damn thing haven't had it in two months think I don't need it at all, they replied we have no record of you sending us a email for an order, I contacted them I didn't send it by email dipshit I mailed it to you you emailed me a confirmation keep it I decided you might have nice items but who needs the stupidity, I realize you have to downsize so you can make a Qadzillion dollars this year but to sacrafice customer service will do you in so if anyone else is having trouble with your company not being able to keep up with your orders because there is no one to fill them, someone has to do double duty and is too tired. I hope they cancel their accounts than you won't have so much to keep track of and can stay home and play video games, oh man was I livid. and I will pay this off and never order from them again my new motto if Wal_mart don't have it I don't need it. I hope this made you feel better so people don't follow thru on anything no matter what the subject and I take great pride in calling people back to make sure their problem has been resolved see I am the help desk at a five facility soon to be six facility healthcare system 3 nursing homes, 1 assisted living 2 hospitals and one to be built shortly. I take care of all computer phone issues and anything inbetween if the switchboard operator doesn't know who to send the call to she sends it to me so i take great pride in my work although somedays trying to drill information into some of the hard heads is very frustrating than I go home to mom . Ah isn't that the life??
Bigsister
I'm new on here and not sure how these forums work. It is different than others I'm used to where there are multiple threads and you can see the various posts in a list and decide what to read. I felt like I would need to read through 1000+ posts on this topic before commenting. Is everyone keeping up with all of it?
I DO need to vent, but wanting to make sure I understand how these forums work first.
Dancetoday
Are you nauseated from issues of caring for family members? What is going on with me right now is that my mother is still living on her own but needs a lot from me. I drive her to the store and the bank, sometimes help her deal with bills, etc... But she has other help that she pays, too. I'm a single parent and my mom is not rich but she is doing ok from my father's retirement and their savings. Every once in a while I have some financial crises and she has given me money. I hate to ask her but there are times when I have. So a few days ago I took her to the bank and we had some paperwork to get done. While the banker was filling out a form, my mom went to get some cash. She asked me if I needed any and I said that I didn't, I was doing ok, thanks. Then a couple of days later I realized that I didn't have the money to pay for the summer programs for my son and I needed to reserve a spot and wouldn't get paid for over a week. We were going out to dinner with my mom and so I mentioned that I had that come up. She said ok, come in after dinner and she would give me some money for it. So when I went in the house after dinner (left my son in the car, thank goodness), she asked how much I needed. I started thinking it over out loud. Suddenly she got this look and tone of voice she gets when she is being really critical of me. She started telling me how I have to do SOMETHING about my finances. (I am working two jobs and raising two kids, there just isn't time to do anything more, I am trying really hard.) We have been through this before. I would love to do something about it but it just isn't happening. She got really awful and critical of me and told me she would give me this money but then nothing for my birthday. I said "fine, ok." Then she just went on and on about how I'd spent this money she'd given me at the beginning of the year. She did NOT give me any money at the beginning of the year. She had given some to my sister and told me about it and how she had just given her some this year. I said that she didn't give me any money. She just got madder and madder. So I left without taking the money even though she was yelling at me "Here, take it, take the money." It was awful.
Everyone who knows my mother thinks she is just the sweetest kindest person you could ever meet. They don't see this side of her, the way she treats me sometimes. She tried to call once yesterday (this happened Sunday) and I didn't answer. She isn't capable of talking about this. She will just want to pretend it didn't happen. Which isn't ok for me because it has happened before and I know it probably will again. But I know she isn't going to change, either.
Ok, guess that sort of summarizes it. Thanks for "listening."
Dancetoday
I have an appointment for dad tomorrow at an assisted living facility, 10 min from my house. We are going to take a tour, and make a decision. I did say a few months ago that he wanted out of here, and has been saying it for 7mos now. So now is his chance. He will be losing his house of 40yrs., it's just a broken down old house that he owes more on than it is worth right now. Hanging on to it, in this current economy will be more damaging than helpful, I see no other way out, but a short sale. Have a good night all, you will be in my prayers as well.
It does sound like you at least have the condition of the house in your favor in getting him to move to assisted living. My mom's house is in pretty good shape although she hasn't used very good judgment with repairs and improvements she's paid for recently.
Dancetoday
Money is power - we all see this. There seems to be a power play going on with your mother. She is ready and willing to give you money for your family, but then rubs it in or otherwise abuses you. Flip-flopping. I've seen this often. Depression could figure in. Also, dementia starts much earlier than real "symptoms" appear. Researchers aren't really sure when it starts, but actually stage one of Alzheimer's shows little or no symptoms under test conditions.
So, keep your eyes open for changes. Hopefully, your mother will have her depression treated. But, unless this is a huge personality change, it does sound like she's using money as a control mechanism.
Bless you for how hard you are trying. Two jobs, kids and a mother who needs help. A lot of know what it's like to work as hard as possible, take care of a bunch of people, and still not come out financially. Our hearts are with you.
Carol
Neonwocky, dancing is the only thing that keeps me sane sometimes. I truly feel happy when I get a chance to dance. It isn't often enough. I can't just turn on music and dance at home because my kids are at the age that they would make fun of me and it would be such an issue it wouldn't be worth it. I have an ipod player in my room but not enough room there right now to dance. SOME DAY when I have some time, I'll figure out a way.
My sister has a lot more money than I do. She's married to a doctor and even if she wasn't, her profession pays a lot more than mine. They collect original works of art and take cruises and yet somehow my sister convinced my mom that she needed to give her a big chunk of money this year and not the rest of us (my mom had originally said she wasn't doing that any more as she needed the money now, her expenses were up, which is probably true).
I think part of why my mother blew up at me was that she got confused and asked me what I'd done with the money, and then realized it was my sister she'd given it to. Whenever she gets confused or can't remember something and she thinks that I'm somehow questioning her (sometimes I'm just trying to understand what she's telling me, not criticize her memory) she blows up at me.
Neon, I understand about the sibs. I haven't even mentioned that I have a brother who lives HERE who cut off all contact to my parents before my dad died. There is no real explanation. He is back in contact with my sister and brother but not to my mother or me. So there is no help from him. And he is a doctor so he has the financial resources he could help out but he doesn't and just sits and waits for his share of the money when she dies, I suppose.
I also totally relate to having to learn how to do what you thought the guy was going to do. I am SO pleased with myself when I use a staple gun, drill, etc. (so far, it's very basic). IF I HAD TIME (is there a theme here?) I would really learn how to make stuff and fix stuff and to H%#L with worrying about having a man help me out! Can't always afford to pay one (to fix stuff) and can't seem to find the free kind that's worth having around!
I hope everyone has a good weekend coming up, whatever that may be for you.
You talk about your sister and brothers and their money honey let them enjoy their money that is their God there are greater rewards after this life make your goal towards them the ones in my life that are all consumed with their life and things think they have it made although they still continue to complain to me about how hard they have it, when my sister had a hurricaine problem "charlie" my husband and I drove twice 650 miles to be there for them, they have a much nicer home than we have and everything is better than it was pre hurricane but they are having such hard times can't even come for a visit and I can't go there and honestly don't want to. Go out on boats and have lunch and all kinds of things but still so tired so poor. Well they ought to try living with mother, feeding her, taking her where she wants to go which isn't much but so much waiting involved for me it drives me nuts. Than the poor pitiful me I can shop and buy but I can't lift the bags to bring in the house. Well last night I made her put her own stuff away she buys so much junk and clothes and never goes anywhere except the doctor and grocery store and dollar store and she sure don't wear them at home looks like a bag lady all the time. It's a shame they aren't my size. I won't even get that and there is no money here for me they neverworked(parents) so she gets minimum SS and 46.00 worth of food stamps I do make her pay board which she hates but she made us pay board when we were just trying to start out and she and dad lived with us several times because they were going to get evicted so don't worry about money it will always work out some of us aren't supposed to have too much and thats just the way it is for me that is the least of my problems I am behind on some bills because husband had a cut in work in november but slowly but surely getting them caught up and even got one paid off, that is my goal this year to get them paid off Ijust want to buy myself one more thing and thats a tire, and than I won't have to ask anyone to do anything for me not even lunch LOL Well hope you are feeling better try not to press your mother with questions it saves you a lot of stress. I find that the less I ask mine the better off I am, we have absolutely nothing to say to each other. she watches tv, sleeps, eats, reads her enquirer does her laundry and she's very satisfied, I stopped thinking she would be a part of our family and help a little bit with emptying dishwasher and little things but she doesn't want to be bothered she pays her board and thats all she thinks is required of her so I leave her to her own devices, she doesn't want to eat right and I stopped that battle to one day it will be death by salt or death by sugar she has HB and is getting bigger everyday. But she knows best and thats the way it is. I am not stressing over someone who knows it all and thinks I'm stupid and ignorant so I just go to work, do house work,make meals, work in the yard, do my mentoring, go to church, and bible study today I have a veiwing to go to a friend of mines husband was killed in a head on collision with another semi and he burned up so you see life is too short to worry about stuff we have no control over he was only 47. Take care and what don't get fixed use duct tape that seems to be a mans way of fixing things anyway I swear we used to live in a house and it shined it had so much duct tape on it. Week ends are just more work days for me won't be doing anything special either although I hoped we would but wrong again. That seems to be the one thing I am consistant about LOL
I didn't ask my mom a bunch of questions. She brought it up. She ASKED me if I needed any money and then when I said that I did, she started to chew me out about it. That's what made it so upsetting. I had already decided it was a BAD idea to talk to her either about health or relationships. Those are out. Now I guess I just have to not talk about money, either. There is the weather, I guess. Then there is my mother complaining about her health issues, which I know she needs to talk about. It's just not a great dinner table conversation when I can't bring anything up and she has nothing to talk about except her health.
Yeah, my mom knows best, too. That's why I stopped talking about MY health issues. Even if I told her that a specialist had told me XYZ, she would say "Oh, I don't think so. I think you should blah blah blah."
You're right, life is too short. I think I'm going to go out and buy some more duct tape! Hey, it should come in more colors! Then when we are fixing things with it, we could have more fun decorating!
I sure could use a little lottery winnings too, LOL. But not meant to be I guess.
Neon, I'm so sorry to hear about your friends husband. It is so very sad. It just proves once again that life can be taken in a blink of an eye anytime. Don't know your friend, but give her a big hug for me.
My dad is going to assisted living in two weeks. I cannot wait to get my own house back in order again, whatever normal is, LOL. He seems to be accepting the idea, we will see if he accepts the change. He does not like the fact that it will be costing so much. But I told him, there are no other choices. I just hope he gets involved with the other residents, and takes advantage of all the activities they have to offer. He just likes to sit and stare, read magazines, or watch tv. But mostly he sits and stares when he runs out of stuff to read. I think novels are too complicated for him now. He won't do crosswords, or jigsaw puzzles. He hasn't wanted to be involved in my or his grandchildren's lives for a number of years. Whenever I asked him to attend the children's school or church functions, I always got "Do I have to?" "Groan, grunt, sigh, oh well, if I have to then, I guess." He attended grandparents day at my daughter's school once. I asked him to do it for her. The grandparents were treated to a nice lunch, and activity, then a photo with their grandchild. The photo he took with my daughgter shows him not smiling, corners of mouth turned down. What a momento that was for her. She is now 19yrs old, and still remembers that day. He has a new Great-grandson he is not even interested in. When my daughter and her family come to visit, he doesn't even turn his head to look at them. Just sits and stares at the tv, or off into space. This is so sad.
Anyway, I agree with Neon that it is especially difficult when the personalities of a parent are so different than our own. I also love the rain (we don't see much of it) dad finds it depressing, I love Fall-dad loves Spring--as far as tv shows and movies we couldn't be more different. I try not to let every little thing bother me. Every since I've known him ,EVERYTHING bothers him. My daughter and I, however, are almost the same in everything. Hopefully that will hold for when I grow old.
Anyway, don't worry about money grubbing relatives--they are like that because they are filling some other void--which will never be filled. Ever seen those shows about lottery winners and the hell that they go through? Not to say that I don't buy the occasional ticket. Spending summers in a cooler place would be awesome!
Neonwacky I think you got it dancetoday LOL kinda like it! Well shiver me timbers I just got a phone call from my husband. This morning when I was leaving I said would you like to have lunch today? His reply well I have this to do and I said Oh I'm sorry I forgot you are so busy all the time nevermind. some other time. Maybe!! so I guess he thought about it he really hasn't been in my life much in the last three to four weeks just doesn't have a clue that he could be and I could be so happy doesn't take much to make me happy just a little togetherness a few hours a week. I work to boy do I work and I go go go but I can always find time for him I will let something go for him I wish he would learn to do that for me so maybe at least for today he is. That is my blessing today. As for my friend yes, you never know when your time is up, this is what I want my husband to understand when you are gone all the time like he is and he never calls me during the week to let me know whether I admit to it or not it is a stress. I have explained that to him and have told him you don't know this could be the last time you see each other. you don't have to be old and sick to die.
I am so happy for you NAUS I know your home will be less stressful although that opens another can of worms you will have to dedicate time to visit your Dad, I know mine were the same way my son does not like his grandmother because she never took the time to be a grandmother but she thinks just because she is she should be worshipped. Well I tried to explain to her the only worshipping going on is to God, she is not a saint by no means and even is she were she still wouldn't be worshiped. You have to choose your words carefully. Or so I am told. Well one more hour and I will spend some time with my husband, thank you God, thats what I've been wishing and praying for, for weeks and I am grateful. So I guess I need to tell my husband that. Boy the seesaw world we live in but I'm not getting so up in the air don't know what the rest of the week end will bring he might bite my head off for something just to hear himself growl. I hope not I hate when that happens makes me a nervous wreck. See prayers do work between you guys and my church family prayers do work, I will give my friend a extra special hug tonight when I see her She as I had the same kind of relationship with her husband that makes it pretty tough when one loves so hard and the other one might love but can't or doesn't know how to express it. will check in later