I moved my mother into my husband's and my home in November of 2005. She had fell at home and broke her hip. She was not able to live on own any longer anyway. This gave us an excuse to move her into our home. She was a very independent woman before the accident, but things have changed in the last few months.
Her short term memory is not good at all any more. She can not wheel herself around the house any longer.
She just got out of the hospital back in June about a 2 week stay with a blockage in her colon and then she contracted VRE. That is not fun to have in the home. I felt so sorry for her.
I am starting to have crying sessions it seems like every other day anymore. I do not see my mother any longer I see a person declining quickly. I am feeling overwhelmed and I don't think my family sees it. I have told them I need to get away for a few days, but that never seems to happen. No one has time to watch or be with mom except me. I am the only child so this is all on my shoulders. Her brother is not any help they have not spoke in several years now.
I do not know if I am just going through a stage or if I am starting to get depressed. I am with mom almost 24/7 except when a homemaker comes in daily. A person can go to Walmart just so many times to get out of the house. I seem to have lost my friends because I can not get together with them anymore.
This on-line discussion is a life line for me. This way I can communication with people and see how they handle different things that come up in their caregiving also.
So if anyone has advice please let me know how to get myself under control.
Losing Control
I was getting on to talk about pretty much the same thing. I'm having so much trouble dealing with my mom. She makes me feel so much like a failure at times. I gave up a job I loved uprooted my kids and moved to a state that she thought she would love to live in and now I am so miserable. I recently bought a baby monitor so if she needed me I could here and she called one of her friends and she just dogged me out like I don't spend enough time with her and all kind of things like that. I have been so down and depressed sometimes I just wonder why I keep doing this but, she is my mother but she can be so hateful and mean at times. My kids and I want to move back to Louisiana but, she don't and I can't leave her here. She is sickly and I know that is her problem but, why take it out on me and my kids she uses guilt trips for everything. Sometimes I feel like I am going to lose my mind. My oldest daughter tries to help me but, its not fair she has to go through this. My mom succeed in what she wanted me to herself away from all my friends and everything. Everytime I start to get a job she takes a turn for the worst and unable to leave the house. I feel like a prisioner at times. Is it possible to love someone and dispise them all at the same time. Then I get mad at myself because I feel like that. I know I promised I would always take care of her but, damn its getting hard. I am so glad I found this site because at least now I can talk to others going through the same thing as me I don't feel so alone as I did. THANK YOU ALL FOR LISTENING AND GIVING ADVICE!!!!!!!!!!!!!!!!!!!!
My mother does have other caregivers. She is not bedridden. She doesn't leave her home much but she has people she pays to help her with a variety of things. Also, my daughter lives free in her basement (but will be moving out soon) and drives her places and buys groceries for her some. So when my mother chews me out and says really mean things to me, I have been tempted to tell her to just pay other people more to help her out since she is so unhappy with the way I am. But I don't. I stay a way a few days and then we see each other and it doesn't get discussed. If I tried, she would change the subject or start criticizing me again or act like I was being mean to her.
I know what you mean about feeling like a failure. I think when our own parents criticize us it goes deeper than if someone else does. My mother attacked me for not having enough money last week. Yet I work two jobs and I'm a single parent. Some of my child support is ending next month because one of my boys turned 18. I can't possibly work any harder. I often work 12 hour days and still do things for my kids and for her.
Is your mother involved in any type of gerontology program or center? Where my mother goes for some of her medical care is a university gerontology program. There is a social worker there who has met with us a couple of times, but it is always to talk about what my mom wants to talk about. I am thinking, though, of maybe calling her and seeing if we can meet with her to talk about this issue. My mother can listen to other people or talk to her friends about their problems. Just not her family.
This is a great place to ask questions and feel good the people are wonderful and very helpful, best to you.
You have a lot to handle, since your husband has MD. You are a caregiver for two people. You'll have to balance the feelings of everyone, the best you can, and hopefully get some help so you can have some time to take care of yourself.
If your mother has dementia, and gets to a point where she cannot understand what you are telling her or if she gets violent or verbally abusive, you may have to consider a nursing home. A lot depends on her mental capacity. Your husband needs you. You can only do so much.
Do keep coming back to this site to talk. Sharing what you are going through helps the person sharing as well as the readers on the site.
Take care,
Carol
As for the humming, did you ask them if they were singing? Did you listen to see if it was a song they used to sing or favorite commercial? When my mom hums, sometimes I sing along, sometimes I ignore it. This is interesting as it has a bearing on the temperament of the person, the relationship of the people involved, the dysfunctional malady's, how far the disease has progressed and how one chooses to
react to it. As one loses the ability to communicate, they use other ways to try to communicate. Sometimes they are not trying to tell you or anyone anything, as much as they just need to get it out, to let it out, like venting, to ease emotional pressure.
It can be really annoying I hate to say it but its true it really plays on your nerves.
Thanks
Neonwacky I think you got it dancetoday LOL kinda like it! Well shiver me timbers I just got a phone call from my husband. This morning when I was leaving I said would you like to have lunch today? His reply well I have this to do and I said Oh I'm sorry I forgot you are so busy all the time nevermind. some other time. Maybe!! so I guess he thought about it he really hasn't been in my life much in the last three to four weeks just doesn't have a clue that he could be and I could be so happy doesn't take much to make me happy just a little togetherness a few hours a week. I work to boy do I work and I go go go but I can always find time for him I will let something go for him I wish he would learn to do that for me so maybe at least for today he is. That is my blessing today. As for my friend yes, you never know when your time is up, this is what I want my husband to understand when you are gone all the time like he is and he never calls me during the week to let me know whether I admit to it or not it is a stress. I have explained that to him and have told him you don't know this could be the last time you see each other. you don't have to be old and sick to die.
I am so happy for you NAUS I know your home will be less stressful although that opens another can of worms you will have to dedicate time to visit your Dad, I know mine were the same way my son does not like his grandmother because she never took the time to be a grandmother but she thinks just because she is she should be worshipped. Well I tried to explain to her the only worshipping going on is to God, she is not a saint by no means and even is she were she still wouldn't be worshiped. You have to choose your words carefully. Or so I am told. Well one more hour and I will spend some time with my husband, thank you God, thats what I've been wishing and praying for, for weeks and I am grateful. So I guess I need to tell my husband that. Boy the seesaw world we live in but I'm not getting so up in the air don't know what the rest of the week end will bring he might bite my head off for something just to hear himself growl. I hope not I hate when that happens makes me a nervous wreck. See prayers do work between you guys and my church family prayers do work, I will give my friend a extra special hug tonight when I see her She as I had the same kind of relationship with her husband that makes it pretty tough when one loves so hard and the other one might love but can't or doesn't know how to express it. will check in later
Anyway, I agree with Neon that it is especially difficult when the personalities of a parent are so different than our own. I also love the rain (we don't see much of it) dad finds it depressing, I love Fall-dad loves Spring--as far as tv shows and movies we couldn't be more different. I try not to let every little thing bother me. Every since I've known him ,EVERYTHING bothers him. My daughter and I, however, are almost the same in everything. Hopefully that will hold for when I grow old.
Anyway, don't worry about money grubbing relatives--they are like that because they are filling some other void--which will never be filled. Ever seen those shows about lottery winners and the hell that they go through? Not to say that I don't buy the occasional ticket. Spending summers in a cooler place would be awesome!
I sure could use a little lottery winnings too, LOL. But not meant to be I guess.
Neon, I'm so sorry to hear about your friends husband. It is so very sad. It just proves once again that life can be taken in a blink of an eye anytime. Don't know your friend, but give her a big hug for me.
My dad is going to assisted living in two weeks. I cannot wait to get my own house back in order again, whatever normal is, LOL. He seems to be accepting the idea, we will see if he accepts the change. He does not like the fact that it will be costing so much. But I told him, there are no other choices. I just hope he gets involved with the other residents, and takes advantage of all the activities they have to offer. He just likes to sit and stare, read magazines, or watch tv. But mostly he sits and stares when he runs out of stuff to read. I think novels are too complicated for him now. He won't do crosswords, or jigsaw puzzles. He hasn't wanted to be involved in my or his grandchildren's lives for a number of years. Whenever I asked him to attend the children's school or church functions, I always got "Do I have to?" "Groan, grunt, sigh, oh well, if I have to then, I guess." He attended grandparents day at my daughter's school once. I asked him to do it for her. The grandparents were treated to a nice lunch, and activity, then a photo with their grandchild. The photo he took with my daughgter shows him not smiling, corners of mouth turned down. What a momento that was for her. She is now 19yrs old, and still remembers that day. He has a new Great-grandson he is not even interested in. When my daughter and her family come to visit, he doesn't even turn his head to look at them. Just sits and stares at the tv, or off into space. This is so sad.
I didn't ask my mom a bunch of questions. She brought it up. She ASKED me if I needed any money and then when I said that I did, she started to chew me out about it. That's what made it so upsetting. I had already decided it was a BAD idea to talk to her either about health or relationships. Those are out. Now I guess I just have to not talk about money, either. There is the weather, I guess. Then there is my mother complaining about her health issues, which I know she needs to talk about. It's just not a great dinner table conversation when I can't bring anything up and she has nothing to talk about except her health.
Yeah, my mom knows best, too. That's why I stopped talking about MY health issues. Even if I told her that a specialist had told me XYZ, she would say "Oh, I don't think so. I think you should blah blah blah."
You're right, life is too short. I think I'm going to go out and buy some more duct tape! Hey, it should come in more colors! Then when we are fixing things with it, we could have more fun decorating!
You talk about your sister and brothers and their money honey let them enjoy their money that is their God there are greater rewards after this life make your goal towards them the ones in my life that are all consumed with their life and things think they have it made although they still continue to complain to me about how hard they have it, when my sister had a hurricaine problem "charlie" my husband and I drove twice 650 miles to be there for them, they have a much nicer home than we have and everything is better than it was pre hurricane but they are having such hard times can't even come for a visit and I can't go there and honestly don't want to. Go out on boats and have lunch and all kinds of things but still so tired so poor. Well they ought to try living with mother, feeding her, taking her where she wants to go which isn't much but so much waiting involved for me it drives me nuts. Than the poor pitiful me I can shop and buy but I can't lift the bags to bring in the house. Well last night I made her put her own stuff away she buys so much junk and clothes and never goes anywhere except the doctor and grocery store and dollar store and she sure don't wear them at home looks like a bag lady all the time. It's a shame they aren't my size. I won't even get that and there is no money here for me they neverworked(parents) so she gets minimum SS and 46.00 worth of food stamps I do make her pay board which she hates but she made us pay board when we were just trying to start out and she and dad lived with us several times because they were going to get evicted so don't worry about money it will always work out some of us aren't supposed to have too much and thats just the way it is for me that is the least of my problems I am behind on some bills because husband had a cut in work in november but slowly but surely getting them caught up and even got one paid off, that is my goal this year to get them paid off Ijust want to buy myself one more thing and thats a tire, and than I won't have to ask anyone to do anything for me not even lunch LOL Well hope you are feeling better try not to press your mother with questions it saves you a lot of stress. I find that the less I ask mine the better off I am, we have absolutely nothing to say to each other. she watches tv, sleeps, eats, reads her enquirer does her laundry and she's very satisfied, I stopped thinking she would be a part of our family and help a little bit with emptying dishwasher and little things but she doesn't want to be bothered she pays her board and thats all she thinks is required of her so I leave her to her own devices, she doesn't want to eat right and I stopped that battle to one day it will be death by salt or death by sugar she has HB and is getting bigger everyday. But she knows best and thats the way it is. I am not stressing over someone who knows it all and thinks I'm stupid and ignorant so I just go to work, do house work,make meals, work in the yard, do my mentoring, go to church, and bible study today I have a veiwing to go to a friend of mines husband was killed in a head on collision with another semi and he burned up so you see life is too short to worry about stuff we have no control over he was only 47. Take care and what don't get fixed use duct tape that seems to be a mans way of fixing things anyway I swear we used to live in a house and it shined it had so much duct tape on it. Week ends are just more work days for me won't be doing anything special either although I hoped we would but wrong again. That seems to be the one thing I am consistant about LOL
Neonwocky, dancing is the only thing that keeps me sane sometimes. I truly feel happy when I get a chance to dance. It isn't often enough. I can't just turn on music and dance at home because my kids are at the age that they would make fun of me and it would be such an issue it wouldn't be worth it. I have an ipod player in my room but not enough room there right now to dance. SOME DAY when I have some time, I'll figure out a way.
My sister has a lot more money than I do. She's married to a doctor and even if she wasn't, her profession pays a lot more than mine. They collect original works of art and take cruises and yet somehow my sister convinced my mom that she needed to give her a big chunk of money this year and not the rest of us (my mom had originally said she wasn't doing that any more as she needed the money now, her expenses were up, which is probably true).
I think part of why my mother blew up at me was that she got confused and asked me what I'd done with the money, and then realized it was my sister she'd given it to. Whenever she gets confused or can't remember something and she thinks that I'm somehow questioning her (sometimes I'm just trying to understand what she's telling me, not criticize her memory) she blows up at me.
Neon, I understand about the sibs. I haven't even mentioned that I have a brother who lives HERE who cut off all contact to my parents before my dad died. There is no real explanation. He is back in contact with my sister and brother but not to my mother or me. So there is no help from him. And he is a doctor so he has the financial resources he could help out but he doesn't and just sits and waits for his share of the money when she dies, I suppose.
I also totally relate to having to learn how to do what you thought the guy was going to do. I am SO pleased with myself when I use a staple gun, drill, etc. (so far, it's very basic). IF I HAD TIME (is there a theme here?) I would really learn how to make stuff and fix stuff and to H%#L with worrying about having a man help me out! Can't always afford to pay one (to fix stuff) and can't seem to find the free kind that's worth having around!
I hope everyone has a good weekend coming up, whatever that may be for you.