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We were discussing Celine Dion’s health and how she is dealing with a rare disease. Sorry for not mentioning her by name in each post. Nothing personal or private.
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Apologies for my confusion. I feel that I was going to be intruding into a private conversation trying to find out who "She" was.
After scrolling back to yesterday, I now know.

My dH always criticizes that I use too many personal pronouns and he cannot follow the conversation or know who I am referring to, after the first "she said, he said".

It was about celebrities. I guess it was a private conversation.
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Nacy,

Because she grew up so poor she didn’t eat very much. Audrey Hepburn was the same way. Audrey was the goodwill ambassador for UNICEF.

They were both incredibly thin.
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Needs, I assumed for years she had an eating disorder, then I heard that. The poor women must of been tormented with fear and pain.
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Nacy,

She’s an interesting woman.

She grew up extremely poor. She fell in love with her manager at a very young age.

She’s had an incredible career. She has three sons that she is raising.

She started having health issues and had no idea what was going on. No one did. I can’t imagine having a disease that rare.

It tortured her to hide her pain. She felt incredible relief after she stopped hiding that she was suffering.

She remains hopeful and hasn’t lost her sense of humor. She’s an amazing woman.
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Needs, I didn't watch it but heard about it. I think it's an autoimmune disease? Which probably came out because of stress care giving. Poor women, has been though so much.
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Anyone else watching the Celine Dion interview with Hoda?

She just said that trying a lot of things when you don’t know what is going on can kill you.

Wow! She was taking 90 milligrams of Valium in a day to try to get her muscles to relax so she could sing. She didn’t know that she was taking too much.

I feel so badly for her. No one knew that she was suffering for so long. She hid it. She was taking care of her dying husband. Two days after her husband died, her brother died. Very sad.

This rare neurological disease, Stiff Person Disease that she has only affects one in a million people. That’s crazy, huh? The disease is progressive and doesn’t have a cure.

I am glad that she was finally able to speak out about it. She couldn’t lie anymore.
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Just a heads up to all you caregivers. Mom was getting really off balance, for a month. I assumed that I wasn't going to take her out anymore,

A few weeks later she got a noticable sinus infection. A week on antibiotics, her balance is getting noticably better. Hopefully it continues will see, a little early to tell for sure.

So like UTIs we need to watch out for sinuses issues too.
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I was in Girl Scouts for many years and we loved rounds:
Make New Friends
White Coral Bells
I Like the Flowers
Ho Young Rider (interesting one, Slavic origin)

And there was the "Canoe Paddle Song" (which has several variations in the lyrics):

My paddle's keen and bright,
Flashing like silver,
Follow the wild goose flight.
Dip, dip and swing.
Dip, dip and swing her back.
Flashing like silver.
Follow the wild goose flight.
Dip, dip and swing.
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I was a summer camp kid/employee most of my childhood! Lots of those songs sure bring back some memories!
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No I never heard that before, I remember a native American commercial, sitting on a horse with a tear, in front of a dieing lake.

Oh that's interesting, so instead of, what the devil, it's what in Sam Hill
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I remember Found a Peanut but I never heard the Titanic song. It is sad and these songs certainly do date us. Pete Seeger was great.

I remember "What in Sam Hill." Looked it up and Sam Hill stands for the devil or h3ll personified.

Does anyone remember "Don't drink the water and don't breathe the air Pollution, pollution" Tom Lehrer
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Never heard that one Alva , but kinda catchy

Have you ever heard the term " what in Sam Hill" no clue what that means but mom use to say it
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When I was writing my Thesis on the Titanic my friend used to sing me her old camp song, chorus of which:
Oh it was sad, Lord, Sad,
Oh it was sad, Lord, Sad,
It was sad when that great ship when DOWN.....
to the bottom of the................
Husbands and wives
Little children lost their lives...........
It was sad when that great ship went down.

Dating ourselves here.
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Found a peanut
Found a peanut
Found a peanut, just now.
Just now I found a peanut
Just now.

Honestly not sure if that's a song or something I made up as a kid

I use to love My Bonnie

And " on top of spaghetti"

Golden you had some good ones there
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nacy - Amen! Everyone take care of themselves!!!!

lu - quite a few more. I don't know the Ford one but I can already hear it in my head!

The Bear went over the mountain
Camp Grenada - Hello Muddah Hello Fadduh (after my camping time but great song)
Down by the Riverside
My Bonnie Lies Over the Ocean
The Happy Wanderer
Kumbaya
Peanut Butter (Toot toot)
Kookaburra
Dem Bones
Head, Shoulders, Knees and Toes
There’s a Hole in the Bucket
The Hokey Pokey
and more

Lots of fun!!!
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Golden..l.do you remember any more camp songs?
Did you do the one about a Ford?
It went:
I got a little ole pile of tin,
Nobody knows what shape it's in.
Got 4 wheels and a running board,
It's a Ford ,Oh it's a Ford.
Honk honk ,rattle ,rattle ,rattle ,crash,beep,beep
Honk.honk.rattle,rattle.rattle crash beep beep
Honk ,honk rattle rattle rattle beep,beep.
Honk-honk.
I loved going to Girl Scout camp every summer,when I was a kid.....
A l o n g time ago~
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And I wanted to say to ALL of you, sence Needshelp issues, please take care of yourselves.

This is purely selfish, you all have helped me so much, and I'm not done learning from you all, I very much need you guys . 😥🌹❤️🙂
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They stick in your head , and sometimes you can't get them out. A newer song that sticks in my head is

"That solo Cup, I pick you up, let's have a party"
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Can't get those campfire songs out of my head!!!

"Here we sits like birds in the wilderness..."

I often feel like a bird in the wilderness waiting for??? Currently for my house to sell, but it could be any number of things.

"Oh, it ain't gonna rain no more, no more
It ain't gonna rain no more
How in the heck can I wash around my neck
if it ain't gonna rain no more?"

Seems to be a bit of a waiting song too.

"She'll be comin' round the mountain when she comes. She'll be comin' round the mountain when she comes...

Talk about repetition. But life seems like that at times.
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Hey! Venting. You're a regular! That gets you SOMEthing, right? I mean, otherwise.........
Take care. Keep Venting. We're here.
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Thank you for lifting my spirits!!!
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And when you start feeling better ya kinda realize how dumb you where.

Not that you guys are dumb at all but that's the way I feel thinking back

3 years I didn't go to one store by myself, not that I'm a huge shopper, but I took mom to every store I went to for 3 years, and they where always the stores she would want to go to. If I ever did go somewheres for me I felt so guilty, or it was to pick something up for her.

I devoted 3 years to my mom, who won't even put me on her emergency call list at her doctor's. So yeah looking back I kinda think , what the heck was I thinking!

Houseflower and venting, you will have those moments of " what was I thinking '

And yes the freedom I feel walking into a Kohl's just for me is amazing 😍.

Don't get me wrong, I still have a bumpy road but the bumps are fewer and farther between.
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It’s work guys .
But seeing the bigger picture of how the world is and what you want out of life after caregiving is worth it . Peace is what I want most , including within myself .
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Alva - good to let go of taking responsibility for everything. I think there are many of us here. I've learned quite a bit about that even in the past few years. Re the dr who dropped, surely no news is good news!

venting ((((hugs))). Only you can reclaim or rebuild your life. It's easy for some of us to get lost in the problems of others. You matter. You are as important as any one else, including those demanding seniors. You can put yourself and your needs and wants first. Start with baby steps and do something good or fun for you regardless of what others want from you. If you were hit by a bus they would manage - believe me, they would. You are not essential to their welfare. But you are essential to your own welfare.

hothouse ((((((hugs))))) for you too. Can you change anything in your situation to take some of the pressure off you? Like with venting and all of us - you are important too. Your needs should be met. Your peace of mind matters. When something hurts us it's time to make a change. Easier said than done, I know, but sometimes we have to work hard and even fight for ourselves. Others may be unhappy but's that's their problem.

nacy - glad you are on a better path - it's so freeing!!!!

way - you too - Giving up fixing is a hard lesson but so worth it!

Peace to all!!!! 🕊
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Way, I was actually invited to an old highschool/ neighbor friends bday party today.

Saw her through he dad's deteorating and passing, she is never there for me, when I complained about my mom, she said to me, your just going to have to suck it up.

Guess what, I didn't respond and I didn't go!!! 😁😁😁
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Nacy,

Not just see things differently about your own family .
I now see other things differently .
I’ve learned to let more go . I learned to look for peace rather than trying to be the fixer. It was hard , because I was raised to be the fixer ..
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Oh way I'm starting to see things so different now
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You will find yourself again , it takes TIME though . And it’s WORK.
Work well worth it .

But you will also find out it will be different in some ways . You will view some things differently . Perhaps some priorities are rearranged, shift a bit . Some old interests remain , some new interests may appear , some things don’t feel as important anymore . But that’s ok too. It’s a new chapter of life .
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Sorry houseflower, I have my moments and really bad days for sure and there will be more , I'm sure.

But I'm learning to have my good days too. I'm relearning how to be happy in spite of everything.

Please work on doing that, it's so bad for all of us to hold that stress in. You are worthy! You both are worthy of happiness.

Sometimes I even feel guilty for being happy again but I'm sure you would both say the same thing to me if things were the opposite.

What bundle said today , don't die before your dead, was beautifully well said and what we all should be telling are selves
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