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There is a question asked under MY NAME……AND I ABSOLUTELY DID MAKE THE STATEMENT!!!!!!!!! ”Sporadic dementia….blah blah blah”. Not sure I trust this site anymore!!!!!!!!!!!!!!
She is correct, this is not her original post. She was asking about Lewy Body. Why would the Administrator change it to "Sporatic dementia" I have never heard of this. Do we maybe have a hacker?
Well, my DH would state emphatically that I have this--when what I have is chemo-fog-brain. Can't find words to always make coherent sentences--annoying as humbling at the same time.
I have heard of chemo fog but this is the second time in the last few days someone has complained about their header being changed. I have belonged to this group for years and have never noticed a header being changed and there have been a lot that should have been to make them clearer.
The administration here changed the title of the very first post I ever made here, and I was glad of it, because the state of mind I was in when I posted was - shall we say - agitated. I thought the admin did a very admirable job of summarizing my question in one concise sentence, which I think brought more "traffic" to my question, which in turn got me quick, helpful advice.
I don't think it was done to "mess" with me; I think admin is often trying to make things a little clearer. I really don't believe there is evil intent to these changes.
Having your words changed would make anyone wonder. However, the Admins have a right to edit at their discretion. Until now, I was supportive of their work.
This happened to my post. I think that it shows there is some unnecessary EDITING going on. See this:
[The original question that I posted was: "Can you post something positive in 25 words or less?" It was posted under "Questions".
The Admin changed the topic to "Discussions", but changed it back to "Questions" when that caused the responses to be out of order, then causing comments to not make sense. The Admins comments correcting that have now been deleted.
The topic has now been changed back to "Discussions". The title has been changed to: "Can you get out a positive thought in 25 words or less?" ]
However, I think that it may not be the Admins changing things in a thoughtful manner as before (1-2 years ago).
In reading Sendhelp's post I am wondering if the person changing this is of a foreign decent. I know when something is a scam from overseas because of the way the message is worded. Reread the change made to Send help. This is not a person who was raised in the US. We don't talk this way. Now Arimethia's change makes sense. Lewy Body can be sporadic.
Just chiming in to assure you that there's no hacker afoot and our moderators are based in the U.S.!
Arimethea33, I'm sorry you did not approve of the edits to your question. It has already been changed back.
Notgoodenough, thank you for your kind words. You're spot on. We strive to preserve members' original posts, but edits to questions and discussions are sometimes necessary for clarity, length, spelling and grammar. I think many of you would agree that a concisely worded question or discussion topic is more likely to receive answers or comments. We respect your valuable time, so we moderate in a way that (hopefully) enables members to decide at a glance which posts they want to interact with and facilitates quick responses to OPs who are seeking advice and support.
Our intention is to make as few edits as possible while also driving engagement, but this isn't an exact science. Since more than one person is responsible for moderating several times a day, 7 days a week, there will be a certain degree of variation in how this role is carried out. We're also human and do make mistakes!
Lastly, BarbBrooklyn is correct—AgingCare is owned by A Place for Mom.
Hopefully this offers some clarity on the moderating process. We do our best to ensure that AgingCare is a safe space where family caregivers can give and receive advice and support. Moving forward, the best way to address questions/concerns is by messaging this account or using the contact us form on this page: https://www.agingcare.com/aboutus
Thank you all for your patience and understanding!
Thank you AgingCareCM! You are right, you referenced the post that you had edited, placing it back to questions for me. I was so appreciative at the time.
Thanks for clarifying.
So glad there are no hackers modifying our comments.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Arimethra, is this not your post?
Did you makes it? I think yes?
Or did you not make it?
Does anyone know who owns this site now?
Lots of changes have occurred in the last several months.
I don't think it was done to "mess" with me; I think admin is often trying to make things a little clearer. I really don't believe there is evil intent to these changes.
Having your words changed would make anyone wonder.
However, the Admins have a right to edit at their discretion. Until now, I was supportive of their work.
This happened to my post. I think that it shows there is some unnecessary EDITING going on. See this:
[The original question that I posted was:
"Can you post something positive in 25 words or less?"
It was posted under "Questions".
The Admin changed the topic to "Discussions", but changed it back to "Questions" when that caused the responses to be out of order, then causing comments to not make sense. The Admins comments correcting that have now been deleted.
The topic has now been changed back to "Discussions".
The title has been changed to:
"Can you get out a positive thought in 25 words or less?" ]
However, I think that it may not be the Admins changing things in a thoughtful manner as before (1-2 years ago).
Something is awry.
But this change makes so sense. She asked a direct question concerning Lewy Body and it gets changed to Sporadic Dementia?
I hope that the original staff of Aging Care moderators are still there.
Where is the ACCM?
Just chiming in to assure you that there's no hacker afoot and our moderators are based in the U.S.!
Arimethea33, I'm sorry you did not approve of the edits to your question. It has already been changed back.
Notgoodenough, thank you for your kind words. You're spot on. We strive to preserve members' original posts, but edits to questions and discussions are sometimes necessary for clarity, length, spelling and grammar. I think many of you would agree that a concisely worded question or discussion topic is more likely to receive answers or comments. We respect your valuable time, so we moderate in a way that (hopefully) enables members to decide at a glance which posts they want to interact with and facilitates quick responses to OPs who are seeking advice and support.
Our intention is to make as few edits as possible while also driving engagement, but this isn't an exact science. Since more than one person is responsible for moderating several times a day, 7 days a week, there will be a certain degree of variation in how this role is carried out. We're also human and do make mistakes!
Sendhelp, I can't speak to the way your positive thoughts post was moderated last year, but I did apologize for unintentionally scrambling the order of posts when changing a question to a discussion here: https://www.agingcare.com/questions/going-to-the-doctor-in-2022-473248.htm
Lastly, BarbBrooklyn is correct—AgingCare is owned by A Place for Mom.
Hopefully this offers some clarity on the moderating process. We do our best to ensure that AgingCare is a safe space where family caregivers can give and receive advice and support. Moving forward, the best way to address questions/concerns is by messaging this account or using the contact us form on this page: https://www.agingcare.com/aboutus
Thank you all for your patience and understanding!
You are right, you referenced the post that you had edited, placing it back to questions for me.
I was so appreciative at the time.
Thanks for clarifying.
So glad there are no hackers modifying our comments.