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Mostly Independent
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These hallucinations come and go. Typically they last for a long time. Things seen can be shapes or even people. My mom knows that what she is seeing is not real but they are very upsetting to her.
My mother was insisting it was raining outside her window every night when it wasn't. It was due to macular degeneration, the opthamologist said. He said it's common to see things that aren't there with the disease, so perhaps that's what is going on with your loved one. Glasses did fix the problem for my mom, fortunately,
Charles Bonnett Syndrome occurs as a result of loss of vision from macular degeneration. It is a hallucination, but has no component of mental illness and is not indicative of having any kind of dementia. My mother developed the hallucinations about 2 years after being declared legally blind. Sometimes it would be a person in the room with her, other times an animal, a roomful of flowers. They occurred frequently if she fell asleep in her her recliner and woke up,to a quiet room. She left the TV on and kept the draperies open. At night she left a light on.
Her ophthalmologist recommended a vitamin D supplement. She sat outside in direct sunlight for a half an hour everyday weather permitting. This did not stop the hallucinations. Avoiding stress was also helpful. It was frightening for mom especially if she had been asleep. She tried to not nap during the day. She kept a very rigid sleep schedule - going to bed every evening at the same time and rising at the same time. She quit reading before bedtime.
It it was difficult to cope. With, but she found her schedule and establishing good sleep habits helped her.
Wow, that is fascinating info Becky.........thank you for sharing. My mother (with macular degeneration) has been taking a Vitamin D supplement for years and also sits out in the sun every single day living in Colorado, so maybe that's why her situation never developed into Charles Bonnett Syndrome, thankfully. This is why I LOVE this forum........such a great learning tool here.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Her ophthalmologist recommended a vitamin D supplement. She sat outside in direct sunlight for a half an hour everyday weather permitting. This did not stop the hallucinations. Avoiding stress was also helpful. It was frightening for mom especially if she had been asleep. She tried to not nap during the day. She kept a very rigid sleep schedule - going to bed every evening at the same time and rising at the same time. She quit reading before bedtime.
It it was difficult to cope. With, but she found her schedule and establishing good sleep habits helped her.
That has to be tough. I’m so sorry. Hugs.
Others may have answers. Best wishes for you and your family.