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Sure, if he pays you!

A person with dementia needs many kinds of care. Professional caregivers are trained to provide it twenty-four hours a day and seven days a week. They're paid to deliver it with kind words and a smile. You will find it extremely difficult to live up to that standard, trust me.

When we marry someone, we take on the responsibility, like it or not, of becoming an unpaid family caregiver for him/her when they become gravely ill with dementia. We sometimes give up our paid jobs to do it. We adjust to lack of sleep, no vacations, little help from family, cleaning up feces and urine all over the place, and being asked the same questions by our loved ones over and over and over and over and over. We no longer go to club meetings we once enjoyed, we have to figure out how to get spouse to ride in the car to the doctor when he keeps trying to jump out while it's in motion, and we learn to remove hazards from our home, such as stove dials and toilet paper, which they choke on when they eat it.

By refusing professional care in a memory care unit, you've ruled out the top-notch care your husband needs and deserves. Certainly you've made your life more difficult as well. Being part of a professional team looking after a beloved spouse is gratifying, and you will never know how beautiful that is. You'll be going it alone, learning on the job when you are worn and weary and don't think you have one more ounce of energy left in you. I've been there with both parents and my husband, and I know.

Please let us know how it goes because we care.
Helpful Answer (3)
Reply to Fawnby
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A "nursing home" by the term we have used in the past does not exist.
There are facilities that offer:
Independent Living. this would be for anyone that does not need help but wants a safe place to reside.

Assisted Living. this would offer a variety of levels of care/help

Memory Care. this is for anyone that has cognitive diagnosis. Most important for anyone that may wander.

Skilled Nursing. this would be for anyone that has chronic or acute medical problems that can not safely or legally be managed in any other level of care.

Please do not discount placing your husband in a facility that can manage their care safely.
Look into paying caregivers that will help you. Honestly taking care of someone with dementia 24/7/365 is a lot. No one can do that year after year and not get burned out.
Look into things like
Adult Day programs
Senior Centers where he can take part in activities. Now if he wanders or needs close supervision this might not be an option.
Check with your local senior Service Center and see if you may qualify for programs that will help with caregivers.


Can you be compensated. It depends.
It is possible that if he is a Veteran the VA may pay you to care for him.
You could check with an Elder Care Attorney and find out if you can pay yourself with household funds. This may prove later that funds were used for his care if there has to be an application for Medicaid.
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Reply to Grandma1954
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The key to preventing caregiver burnout is to stay flexible and do creative problem-solving. Facility care for many is a problem-solver -- and life-saver. My MIL was in an excellent, faith-based LTC facility on Medicaid for 7 years. She could not have had a better experience and we were grateful for it.
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Reply to Geaton777
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Please don't assume all nursing homes are the same. My mom is in a wonderful memory care facility. The meals are homemade country food like she is used to. They have activities that she enjoys and it's been a great move for her even though she told me she never wanted to move into any facility. You might want to visit some now to see how things have changed in the last few decades. There are ones that look more like a retirement center than the old 1980s nursing homes. One near our church has an indoor movie theater and many luxury amenities you wouldn't expect.
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Reply to JustAnon
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Spouses are not compensated for caregiving unless your husband pays you. Don't ever write off the possibility of Memory Care Assisted Living or a Skilled Nursing facility if your health and sanity are at risk. It normally takes many caregivers working in shifts to care for a person suffering from AD/dementia.

Best of luck to you.
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Reply to lealonnie1
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Please don't be so hard on yourself. Things will change everyday and there may be a time when you can't do it anymore. Do the best you can, but keep your options open. Who knows what will happen in the future, especially with dementia. So many of us were determined to not use a facility and then felt so much guilt when it had to happen. Take care of yourself too. Maybe someone else can comment on getting compensation for his care.
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Reply to Sandra2424
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