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My mom has been in the hospital for 8 months now. She has been on dialysis since 2019. She was doing good. On March 13 she was hallucinating and was complaining saying she was itchy. March 14 she was still having those symptoms, March 15 she started loosing feet mobility and by March 17 she lost mobility on both waist down and arms. Everything happened so quick. We called the ambulance and was sent to the hospital. She was put an oxygen mask and on Saturday March 22nd. She went into code blue and ended up being intubated for 14 days. Then they put a trache. The doctors diagnosed her with Guillain-Barré syndrome. They did up to 4 sessions and saw no improvement. One of the Doctors requested blood work and more studies. They ended up realizing she has LEAD POISINING her levels were at 164. Super high we all got tested they checked our home and only she had it. They started doing Chelation therapy and got it down to like 19 still high but better than 164. They said the reason she lost movement is because of the lead. After a month she got sent to a Sub Acute Hospital. She is still on the vent and suffers from ammonia now and lung infection. It has been really difficult. She has better days than others. Her blood pressure is stable her blood sugar is good, her heart is good, she is conscious she responds and all. We honestly are not comfortable with having her there anymore. We understand there are a lot of patients but the care there is not the best or reliable sad to say. We have experienced that she is not well taken care of. My sister, father, and I go each day to make sure she is ok. I just want to know is it possible to take her home we are willing to care for her at home. She is very loved and think she would be better at home. Any answers or suggestions is highly appreciated. Thank you

Don’t do it.
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Reply to LoopyLoo
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You and other family wishing to do this should all spend five days shadowing the care providers at your snf.
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Reply to PeggySue2020
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100% no. Absolutely not. Do you run an ICU at your house?
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Reply to southernwave
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No. You cannot.
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Reply to AlvaDeer
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Aside the fact that you are not medically qualified or licensed to take her into your home in that condition with that equipment, I think if you tried to remove her she would be AMA (Against Medical Advice) and therefore in a grey area in terms of insurance coverage. If you remove her AMA the hospital may refuse to take her back. Indeed, other hospitals may refuse to take her in.

Have you wondered how she alone got her extremely high lead levels and no one else did?

"Here are the most plausible explanations, based on patterns seen in toxicology, CDC case reports, and adult lead-poisoning investigations.

1. A Personal Product She Used (Most Likely Cause)

This is the #1 reason when only one person in a household has very high levels:

Cosmetics

- Kohl / kajal / surma (traditional eyeliners) — often 50–80% lead
- Certain imported lipsticks, powders, or bright red/orange cosmetics
- Herbal or alternative medicines

Some Ayurvedic, Chinese, or Mexican remedies:

- Pills for pain, digestion, or “energy”
- Folk remedies (azarcon, greta, bali goli, etc.)
- Spices & supplements (especially imported)

- Turmeric (sometimes intentionally adulterated with lead chromate to brighten yellow color)
- Weight-loss or “rejuvenation” supplements
- Bone-strengthening tonics
- Essential oils or tinctures from unregulated sources

Since only she uses these items, others would test negative.

2. Hobby Exposure (Second Most Likely)

If she has any hobby involving metal, solder, or antiques, this is a strong candidate:

Ceramics (using old glazes or firing glazed ware)
Stained glass making (lead solder, lead came)
Bullet casting or handling fishing sinkers
Jewelry making with imported metal beads
Painting furniture with old paint
Collecting or restoring antiques, especially toys or figurines
These create lead dust she may get on hands or inhale.

3. Occupational “Take-Home” Exposure (Even if She's Retired)
If she worked previously in a lead-related field, her body can still hold lead in the bones and release it later in life, especially after:

Osteoporosis
Rapid bone turnover
Hormone changes
Weight loss
Certain medications
Illness or immobility
This is called bone lead mobilization.
Example: A woman who worked decades earlier in a battery plant or auto repair shop may have a huge spike later in life even after exposure ended.

4. A Personal Belonging: Jewelry, Rosaries, Vintage Items
Some items she might touch daily contain unsafe lead levels such as an imported pewter cups or plates. These can shed lead long after manufacturing.

5. A Contaminated Personal Drinking Cup, Pot, or Dish

Lead exposure can be extremely localized:

A single mug with lead glaze
A decorative teacup she loves
A slow cooker with lead-leaching ceramic
A clay pot from Mexico, India, or Central America used by her alone
A lead crystal glass used for daily drinking or alcohol
If she uses one item daily and nobody else does, only she would be affected.

6. Lead-Containing Medications Not Prescribed in the U.S.

Sometimes seniors continue medications from another country:

- Cosmetic creams (skin lighteners)
- Pain relief balms
- Imported “traditional” multivitamins
- Memory or sleep supplements

Several have been found to contain extremely high lead levels."

7. Intentional Poisoning

Source: ChatGPT5
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Reply to Geaton777
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AlvaDeer Nov 25, 2025
Oh, that ChatGPT. And with all this our seniors are making it to 100? My brother ate off that Bauer and Fiesta Orange lethal pottery for so many decades only to die of a sore on his shin at 85. Fair boggles the mind.
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You do not have expert knowledge to handle a dialysis machine or ventilator.?Nurses are not allowed to touch a ventilator nor dialysis machine unless doing hands on work and competency teats. Ventilators require 500 hours of clinical contact. You will need 24/7 competent caregivers and hiring some will require mega big bucks because caregivers will require insurance. Regular nurses will cost > $65 per hour. ICU nurses will be more if you can manage hiring and sick calls. Then you have to consider the cost of 2 caregivers for turning and cleaning. She will not return to normal with 8 months being sick. Do you have upwards of if a quarter million dollars a year for professional care if signed out AMA?
You worry about facility care, dream on. Her next step is a LTC with a ventilator. I suspect there are no local beds for a facilitybin your state.

The last time I saw a patient sent hone was on hospice. The paramedics delivered the patient home then once they arrived, the patient was removed from ventilation.
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Reply to MACinCT
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I've been a nurse since 1984. A critical care nurse. And I wouldn't do it. Hell, I COULD'NT do it.
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Reply to TwoBlue
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AlvaDeer Nov 26, 2025
Amen. This old RN seconds that.
(8)
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Ohboy, her condition and her care needs are pretty complicated.
I wouldn't think it is safe for someone with pneumonia and lung infection to be removed from a hospital setting to home. Of course, if you feel she is not getting the attention in the hospital you could provide for her at home, I understand your dilemma.
First, don't remove her from Sub Acute care until she is stable.
It sounds like you are convinced she is fairly stable enough now to go home.

Second, before you try and take this on at home on your own, spend 24 hours, if you can, in her room. If they allow it, when my husband was in the hospital, I was there for days, slept in the room, and didn't want to leave him. I learned a lot about his care needs by watching the nurses and cna's. When he was subsequently transferred to a skilled nursing facility, I was there every day.
I went after work, and stayed a few hours, and would spend Fri night sleeping in a recliner, and spend most of the day Saturday in his room.
There, again, I learned what needs to be done for his care.
What I'm suggesting, is spend enough time with her to learn what it takes to manage her care needs. Ask a nurse what equipment you will need at home.

There are medical service providers who will make house calls for people who are home-bound. Find a nurse practitioner who will be her primary care provider, and will come maybe monthly to check on her and can also give you advice on what you are doing right and wrong.

I think probably everyone here will tell you, "Don't do it!"
That is because it is hard! It is more work than you know. It sounds like she has good family support, and you are all willing to give it a try. Just know what you are getting into before you do it. You have to make the decision that feels right for your family.
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Reply to CaringWifeAZ
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I had a private duty case w/ a woman on a ventilator. And, a G tube and totally immobile. Her husband was living w/ her. She had 24/7 RN's and LPN's doing the care if that tells you anything.
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Reply to Nan333
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No. Appears to require skilled nursing care.
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Reply to Patathome01
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Why would you? I know, you love your mom. You feel like you owe care because she cared for you. But you will Burn out quickly. You WILL burn out VERY quickly. I know a nursing home is not ideal. But, I promise you, she will live longer being place in a nursing home than being cared for by unskilled, inexperienced people at home. She would be going through all of this if she were in the SubAcute or at home. And in the SubAcute AND in a Nursing Home, the immediate care, bloodwork, med dosage adjustment, etc... is done right there. You can't provide that. I know you want to believe that the facility is at fault, but they aren't. She'd be experiencing all of it, at home, in your care, AND more often, AND resolved medically, A LOT slower.
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Reply to mommabeans
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With her extensive needs this would be a life consuming undertaking.
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Reply to JeanLouise
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No. You are not qualified to handle dialysis and a ventilator. Has your Mom indicated to you that she wants to continue living with her health the way it is? Does she have a Directive to Physicians document? This has reminded me to email my Directive to Physicians to my daughters right now. I hope the best for you, and for your Mom.
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Reply to Lylii1
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