Follow
Share

My father has Parkinson's (diagnosed in 2005) and the beginnings of Dementia (not technically diagnosed, but become more and more evident on a daily basis). He took a fall in his assisted living home and was hospitalized. Since then, his personality has completely changed and he has gone ballistic, yelling, screaming, thrashing, kicking, cursing, saying horribly inappropriate things, etc. He is convinced that the hospital staff is trying to kill him, that he has been kidnapped, that no one will help him, etc. He has had to be sedated and restrained (arms and legs) because he keeps ripping out his IVs and kicking and hitting the nursing staff. Today, he decided he was going to refuse everything - he won't eat or drink anything, he won't take his meds, he won't let them take vitals, he won't let them draw blood for labs, he won't let them do any physical therapy ... nothing. The one time they did take off the restraints so he could stand up to use the urinal, he tried to make a run for it and basically flung himself into a wall. They need to run tests to get to the bottom of his blood pressure fluctuation problem (which they believe is causing the dizziness that led to the fall - one of several falls over the last couple of weeks). An echo and an incomplete nuclear stress test showed the possible need for a heart cath, but he won't cooperate with any further tests to get a definitive diagnosis on either problem. We have been told that in all likelihood, he will not be able to go back to assisted living, but instead will need to go to a rehab or skilled nursing facility, which will seriously make him totally lose it. We are at our wits' end? What do we do? Oh, and this is all my fault - I am his oldest daughter - the only person willing to take on caring for him - and all of this is my fault.

This question has been closed for answers. Ask a New Question.
Find Care & Housing
He will probably not get rehab or skilled nursing. He might get Hospice, ask if it is time for that. Without Hospice he will be in a locked unit in Memory Care or even a psychiatric facility.
Helpful Answer (1)
Report

mrsmchappy, this sounds like a terrible situation with your father. The dementia that goes with Parkinson's is a Lewy body dementia. I wondered if the onset of the dementia coupled with the fall and being in the hospital has pushed him over the edge of reason. Are they trying to sedate him? There are treatments that are useful for LBD. Maybe they will work for your father. I hope someone will be on soon that knows more about the treatment options than I do. Paranoia and acting out are common in LBD, do this may be contributing to what's going on.

I don't really have any advice other than to ride this bad period out. Chances are high that your father may have to be admitted for psychiatric evaluation and medication stabilization. I am thankful that he is in the hospital so that you have the support of staff in making decisions. I hope that things smooth out soon so that your father can enjoy the rest of his life here on earth.
Helpful Answer (0)
Report

Does he have a UTI? Was he taking all his medication before he went to the hospital? If they are now giving him all his meds, he may be over-medicated.
Helpful Answer (0)
Report

Is he 70 and otherwise healthy, or is he 90 and failing in every way? I'm wondering if the heart procedures are appropriate for him.

It's so awful to watch one's daddy so upset and vulnerable. Best wishes.
Helpful Answer (0)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter