My mother was diagnosed with dementia about 2 years ago. I quit my job to stay home and take care of her which is something i chose to do. Little did i know how awful this disease can be. It seems that if we stay at home (familiar surroundings) she doesn't seem to act out or have major delusions. However if we go out, even to the grocery store, etc. by that evening she goes into full delusion mode. Searching the house for unknown objects, asking where her mom and dad are (they passed away 25 and 45 years ago) and she becomes very upset. My question is, should i not take her anywhere? She always wants to go places and enjoys herself while there but the evenings are always a mess. It is also nice that I get a chance to go out even if I have to take her with me but I'm not sure its good for her and I don't want to cause her undue stress/harm. I would value your opinion! We have the opportunity to get Disneyland passes and would go all the time. I think my mom would love it but again, I don't want to make her evenings more difficult for her.
I repeat, go to Disneyland without your Mom. Go regularly! Bring someone in to stay with Mom and you go blow off some steam and enjoy yourself. The adjustment to a new, occasional caregiver would be nothing compared to the adjustment for her of feeling adrift in really unfamiliar surroundings.
By, all means do things with your mother. Get both of you out of the house. Go on a journey together! Just choose wisely where you go.
Sometimes we think they would enjoy something,when in fact it is more confusing and more stressful on yourself. As a caregiver,I would advise you to go without her and YOU enjoy yourself. If a trip to a grocer leaves her delusional,then you can only imagine what noise and crowds would do to her.
I'm familiar with Sundowner Syndrome from caring for other elderly relatives. With my mother-in-law the doc gave us low-dose Ativan to give her if she got too agitated, and that worked well.
Agree, Disney for you; not your mom.
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