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My husband‘s unexpectedly positive response to a switch in his Parkinson’s medication made a friend who is an RN specializing in neurologyquestion whether he had been misdiagnosed with Parkinson’s when what he actually had was Normal Pressure Hydrocephaly. He’s currently in hospice, so pursuing tests to discover whether he has NPH would require taking him out of hospice, getting him under the care of a primary doctor, being referred to a neurologist, and having an MRI done and possibly cerebral fluid tested. I suspect this would be a 4 to 6 month process. If the test for NPH was positive, treatment would involve the implantation of a shunt to remove fluid from his brain with no guarantee that his physical mobility would be significantly improved. I’d be interested in hearing from anyone who has experienced this, if they pursued the NPH diagnosis and treatment, and whether it was worth a time, effort and expense.

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Very interesting question. I think my husband has normal pressure ensephalitis and its not clear but his symptoms fit alot of neurological issues. He may not fit in one box. I am working diligently to get testing done but he has an HMO.
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