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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
Lewy Body dementia is the second most aggressive dementia of them all, with a life expectancy of just 7 years. While that of course is an average, all the folks that had Lewy Body dementia in my support group died within that 7 year window.
We'll need a lot more info from you (if possible) about this question. That is, are you a caregiver? If so, for how long? Has the person been formally diagnosed (imaging, neurologist's evaluation)? The rotten truth about any form of dementia, is that timelines from onset to fully disabled can vary by years/decades from person to person. If you do online research about this, make sure it's a reputable website-like Mayo Clinic, Cleveland Clinic or the Lewy Body Association.
You can go online and do research if statistics are what you long for here, but do know that no doctor will give you a road map about this particular trip. It will vary as surely as the thumbprint of your loved one varies.
Learn all you can. Lewy's in unique in that it can have an "up and down and all over the place pattern" where most dementias have a certain downward trajectory whether on a slow slide with intermissions or whether on stair steps with platforms of stability at each step down. Lewy's is more unpredictable to be certain.
My own experience with Lewy's began when my brother, then 85, was diagnosed with probable early Lewy's by symptoms. He hoped to die before he was robbed of his brain and he was lucky enough to do so of sepsis only a year and one half after diagnosis. So I cannot know where he would have gone but here are some things that were true for him. 1. Diagnosed early he was able to research his disease with me and protect himself by making me his POA and Trustee, giving me all bill paying and decision powers. He was able to choose his care by going to different places with me. 2. Being in care helped him and made his hallucinations MUCH less frequent. He was able to talk about his world and how it was changing. 3. He admitted that knowing someone he trusted had his bills, had his care, had his BACK protected relieved him to the extent the hallucinations were less and the anxiety was less and I am convinced it slowed progression.
Everyone's experience is different. I wish you the very best of luck.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
While that of course is an average, all the folks that had Lewy Body dementia in my support group died within that 7 year window.
Lewy Body Dementia Association
https://www.lbda.org
Lewy Body Dementia Resource Center
https://lewybodyresourcecenter.org
"We have the only live Helpline for LBD in the United States. Available 365 days a year. Please call: 516-218-2026 or 833-LBD-LINE"
Learn all you can. Lewy's in unique in that it can have an "up and down and all over the place pattern" where most dementias have a certain downward trajectory whether on a slow slide with intermissions or whether on stair steps with platforms of stability at each step down. Lewy's is more unpredictable to be certain.
My own experience with Lewy's began when my brother, then 85, was diagnosed with probable early Lewy's by symptoms. He hoped to die before he was robbed of his brain and he was lucky enough to do so of sepsis only a year and one half after diagnosis. So I cannot know where he would have gone but here are some things that were true for him.
1. Diagnosed early he was able to research his disease with me and protect himself by making me his POA and Trustee, giving me all bill paying and decision powers. He was able to choose his care by going to different places with me.
2. Being in care helped him and made his hallucinations MUCH less frequent. He was able to talk about his world and how it was changing.
3. He admitted that knowing someone he trusted had his bills, had his care, had his BACK protected relieved him to the extent the hallucinations were less and the anxiety was less and I am convinced it slowed progression.
Everyone's experience is different.
I wish you the very best of luck.