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Lewy Body dementia is the second most aggressive dementia of them all, with a life expectancy of just 7 years.
While that of course is an average, all the folks that had Lewy Body dementia in my support group died within that 7 year window.
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Reply to funkygrandma59
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Try these support organizations:

Lewy Body Dementia Association
https://www.lbda.org


Lewy Body Dementia Resource Center
https://lewybodyresourcecenter.org

"We have the only live Helpline for LBD in the United States. Available 365 days a year. Please call: 516-218-2026 or 833-LBD-LINE"
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Reply to Geaton777
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We'll need a lot more info from you (if possible) about this question. That is, are you a caregiver? If so, for how long? Has the person been formally diagnosed (imaging, neurologist's evaluation)? The rotten truth about any form of dementia, is that timelines from onset to fully disabled can vary by years/decades from person to person. If you do online research about this, make sure it's a reputable website-like Mayo Clinic, Cleveland Clinic or the Lewy Body Association.
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Reply to Ariadnee
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You can go online and do research if statistics are what you long for here, but do know that no doctor will give you a road map about this particular trip. It will vary as surely as the thumbprint of your loved one varies.

Learn all you can. Lewy's in unique in that it can have an "up and down and all over the place pattern" where most dementias have a certain downward trajectory whether on a slow slide with intermissions or whether on stair steps with platforms of stability at each step down. Lewy's is more unpredictable to be certain.

My own experience with Lewy's began when my brother, then 85, was diagnosed with probable early Lewy's by symptoms. He hoped to die before he was robbed of his brain and he was lucky enough to do so of sepsis only a year and one half after diagnosis. So I cannot know where he would have gone but here are some things that were true for him.
1. Diagnosed early he was able to research his disease with me and protect himself by making me his POA and Trustee, giving me all bill paying and decision powers. He was able to choose his care by going to different places with me.
2. Being in care helped him and made his hallucinations MUCH less frequent. He was able to talk about his world and how it was changing.
3. He admitted that knowing someone he trusted had his bills, had his care, had his BACK protected relieved him to the extent the hallucinations were less and the anxiety was less and I am convinced it slowed progression.

Everyone's experience is different.
I wish you the very best of luck.
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Reply to AlvaDeer
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